Call for Stories of Hope

Do you have an IC story you want to share with the IC community? Stories are being accepted from patients and healthcare providers, as well as family and friends of IC patients who have been affected by IC. Check out … Continued

A Message from ICA Board Member, Barb Zarnikow

My journey with interstitial cystitis (IC) has been very long and at times lonely. Although I was diagnosed as an adult, I remember the life altering and painful symptoms long before I had any answers. Since the beginning of my … Continued

Pain Connection

From the Fall/Winter 2015 issue of the ICA Update. For chronic pain sufferers, support can be as close as a phone call away. Chronic pain can be isolating, both physically and emotionally, making it difficult to reach out for help. … Continued

Raising Awareness for IC

ICA Board Vice-Chair Irma Rodriguez and her husband Fred walked in the Atlanta Peachtree Race on July 4th. It’s the biggest 10k in the nation with 60,000 runners. They did it on behalf of ICA to encourage others to get … Continued

5 Ways to Use ICA’s Online Support Community

From the Spring 2015 ICA Update “3:55 a.m. and I’m awake with unbearable pain,” one IC patient wrote recently. And while the middle of the night is no time to reach out to a doctor, or even a family member … Continued

Where do you go to for information about IC?

ICA is conducting a survey for the next issue of the ICA Update. This survey will focus on IC and health literacy and should take about 5 – 10 minutes to complete. Thank you for taking a moment to provide … Continued

Interstitial Cystitis Featured in Whole Foods Magazine

Whole Foods Magazine published an article entitled Urologic Health – Understanding the category and what your inventory has to offer. The article features the most common urologic diseases, including interstitial cystitis. Read the article at

The ABCs of IC and PT

From the Winter 2016 issue of the ICA Update. What is the Pelvic Floor? The pelvic floor is a shorthand term for the muscles, ligaments, and tissue that support the bladder.  Stretching across the bottom of the pelvis like a … Continued