On behalf of the ICA and IC community, we extend our thanks to Rhea for creating a birthday fundraiser! “For my birthday this year, I’m asking for donations to the Interstitial Cystitis Association. I’ve chosen this nonprofit because as a … Continued
ICA is grateful for the leadership role Haley Wiscount is taking to raise IC awareness and fundraise for ICA. Haley has chosen to host a Comedy Night featuring comedian Joe Ohrin, a buffet dinner, and auction with 100% of proceeds … Continued
ICA is conducting a survey for the next issue of the ICA Update. This survey will focus on IC and exercise and should take approximately 5-10 minutes to complete. Thank you for taking a moment to provide your feedback. Complete … Continued
Check out this video by YouTuber MissM where she talks about what having IC feels like: https://www.youtube.com/watch?v=tgf8qM-TVyI&feature=share Do you have an IC video you would like to share with us? If so, please email the link to icamail@ichelp.org.
One of the many things your donations support is IC awareness and education of healthcare providers to help ensure early diagnosis and optimal care for IC patients. That includes ICA’s representation at the AUA Annual Meeting, an event that draws … Continued
As you may already know, the Interstitial Cystitis Association is a member of a steering committee of patient advocates advising Grünenthal, a pharmaceutical company that is interested in pain. One of the projects we’re involved with is a new pilot … Continued
On Tuesday, May 15th, The Balancing Act will be featuring a segment on interstitial cystitis (IC). The show will be aired on Lifetime at the following times: 7:30 am EST 7:30 am PST 6:30 am CST 5:30 am MST The … Continued
ICA will be participating in the AUA’s Patient Advocacy Hub again this year, which gives us the opportunity to meet and speak with numerous urologists and share the voice of IC patients. We will be participating in the Research and … Continued
At their visit with Representative Karen Handel’s office during the ICA’s Capitol Hill Walk, Irma Rodriguez, ICA Chair and Mike Greenwell, Vice-chair, were invited to an “opioid Summit” In the Atlanta area. They talked to Rep. Handel and she is … Continued
ICA board members, staff, patients, and advocates made their annual visits to Capitol Hill on April 24, 2018. ICA’s legislative priorities for FY 2019 include: CENTERS FOR DISEASE CONTROL AND PREVENTION (CDC) Provide $1,000,000 for the IC Education and Awareness … Continued
