On the Road with IC

From the Winter 2017 issue of the ICA Update The condition and its symptoms can make traveling a challenge. Patients share what works when IC is your travel companion. Read the full article at https://www.ichelp.org/wp-content/uploads/2018/08/On-the-Road-with-IC-2017-Winter-Update.pdf.

Summer Issue of ICA Update Mailing Soon

The ICA Update is an award-winning magazine with in-depth stories about interstitial cystitis (IC) research, treatment, and lifestyle issues. The ICA Update is a benefit of donors who give $50 or more to the Interstitial Cystitis Association. In this issue: … Continued

People in Pain Speak Out

Rebecca Sidden Shares Her Story at HHS Pain Task Force Meeting “Hi, my name is Rebecca Sidden. My story starts as a 22 year old graduate school student diagnosed with a rare condition known as Interstitial Cystitis, which is an … Continued

Climbing Mountains, Raising IC Awareness!

Heidi and Estelle have both had the opportunity to learn about IC over the past several years through their work at Aquinox Pharmaceuticals. As IC is not well known and many suffer in silence with few treatment options available, they … Continued

Aquinox Halts Development of Rosiptor (AQX-1125)

As many interstitial cystitis (IC) and bladder pain syndrome (BPS) patients may have heard, Aquinox has halted its development program for rosiptor (AQX-1125).  The purpose of the LEADERSHIP 301 trial was to assess the effect of once-daily rosiptor (AQX-1125) on … Continued

Walk for an IC Cure – Register Early, Space is Limited

Many in the IC community have asked for local events to help spread IC awareness and raise funds for IC research, education, advocacy, and support. We heard you, and we listened! ICA is excited to roll-out an IC awareness/fundraising event: … Continued

Pain Scale Survey

As you may already know, ICA is a member of a steering committee of patient advocates advising Grünenthal, a pharmaceutical company that is interested in pain. Together we have designed a pain survey to better understand from the patient’s perspective … Continued

ICA Presents “Walk for an IC Cure”

Many in the IC community have asked for local events to help spread IC awareness and raise funds for IC research, education, advocacy, and support. We heard you, and we listened! ICA is excited to roll-out an IC awareness/fundraising event: … Continued

Support ICA While Shopping on Amazon Prime Day

Amazon’s Prime Day is almost here. Deals start July 16, 3pm ET and run through July 17. Prime Day is one of the biggest shopping events of the year. Just a reminder that when you shop at smile.amazon.com, Amazon will … Continued