Winston-Salem Walk for an IC Cure – Tomorrow!

Tomorrow is the big day!! The Interstitial Cystitis Association (ICA) is hosting our 2nd IC awareness charity walk, ICA: Walk for an IC Cure in Winston-Salem, NC. The event gathers IC patients, caregivers, healthcare providers, therapists, friends, and families to … Continued

IC Advocates on Capitol Hill

On April 9, 2019, ICA board members, staff, and volunteers went to Capitol Hill to advocate on behalf of all IC patients. We had 22 advocates meet with staff at 23 congressional offices. We also dropped information at an additional … Continued

Pain Advocacy Groups Tell HHS Secretary Revise CDC Guidelines

A coalition of pain advocacy organizations (including ICA) have written a letter to HHS Secretary Alex M. Azar that analyzes the draft report of the HHS. The public comment period expires next Monday April 1st. Read the letter at http://nationalpainreport.com/pain-advocacy-groups-tell-hhs-secretary-revise-cdc-guidelines-8839320.html.

Interstitial Cystitis in the News

‘Incurable’ Bladder Pain Brings Women Together to Fight Back  “Where medicine has failed to find a cure, women are banding together using social media to find solutions to interstitial cystitis, a painful bladder condition.“ Read the full article at https://www.ozy.com/fast-forward/incurable-bladder-pain-brings-women-together-to-fight-back/92363. What … Continued

ICA Awareness Video

ICA has created a video entitled “You Have IC, Now What?” that was developed as part of an #ICAwareness campaign. Watch the video at https://www.youtube.com/watch?v=odUvCZaatww&t

IC & Diet Webinar – Save the Date!

  ICA is excited to announce that we will be hosting a webinar on IC & Diet on Wednesday, March 20, 2019. Speakers will include Dr. Barbara Shorter, RDN, CDN, ICA Medical Advisory Board Member and Professor of Nutrition at … Continued

When the Cure Is Worse Than the Disease

New York Times posted an article on their website entitled “When the Cure Is Worse Than the Disease” that discusses the struggle that many interstitial cystitis patients are facing with the opioid crisis. “Katie Tulley suffers from an incurable bladder … Continued

Have You Considered Fundraising on Facebook?

Facebook has made birthdays a time to do something positive! Most of us don’t like getting older, but Facebook has created a birthday fundraiser that makes it easy, with no fees, to fundraise for the ICA. Go to https://www.facebook.com/fund/InterstitialCystitisAssociation/ and follow … Continued

Lindsay Chandler’s Facebook Fundraiser

Why did Lindsay Sarah Chandler choose ICA for her Facebook Fundraiser? “I chose ICA as a fundraiser since I’ve had IC about two years now, and my IC becoming much worse last year causing me to lose my job and … Continued