Do you have an IC story you want to share with the IC community? Stories are being accepted from patients and healthcare providers, as well as family and friends of IC patients who have been affected by IC. Check out … Continued
My journey with interstitial cystitis (IC) has been very long and at times lonely. Although I was diagnosed as an adult, I remember the life altering and painful symptoms long before I had any answers. Since the beginning of my … Continued
From the Fall/Winter 2015 issue of the ICA Update. For chronic pain sufferers, support can be as close as a phone call away. Chronic pain can be isolating, both physically and emotionally, making it difficult to reach out for help. … Continued
ICA Board Vice-Chair Irma Rodriguez and her husband Fred walked in the Atlanta Peachtree Race on July 4th. It’s the biggest 10k in the nation with 60,000 runners. They did it on behalf of ICA to encourage others to get … Continued
From the Spring 2015 ICA Update “3:55 a.m. and I’m awake with unbearable pain,” one IC patient wrote recently. And while the middle of the night is no time to reach out to a doctor, or even a family member … Continued
ICA is conducting a survey for the next issue of the ICA Update. This survey will focus on IC and health literacy and should take about 5 – 10 minutes to complete. Thank you for taking a moment to provide … Continued
ACTION ALERT Last week, Senate Majority Leader Mitch McConnell (R-KY) released the Senate version of health reform legislation entitled The Better Care Reconciliation Act (BCRA). The bill was slated for a vote this week but, after fierce opposition from the … Continued
ICA executive director, Lee Lowery, and board member, Jane Elsten, represented ICA at the “US Patient Day Symposium” hosted by Grunenthal. The aim of the Symposium was to identify issues of great concern to the pain community and areas of … Continued
Whole Foods Magazine published an article entitled Urologic Health – Understanding the category and what your inventory has to offer. The article features the most common urologic diseases, including interstitial cystitis. Read the article at http://www.wholefoodsmagazine.com/supplements/features-supplements/urologic-health/.
From the Winter 2016 issue of the ICA Update. What is the Pelvic Floor? The pelvic floor is a shorthand term for the muscles, ligaments, and tissue that support the bladder. Stretching across the bottom of the pelvis like a … Continued
