I.C. A Cure Comedy Night

ICA is grateful for the leadership role Haley Wiscount is taking to raise IC awareness and fundraise for ICA.  Haley has chosen to host a Comedy Night featuring comedian Joe Ohrin, a buffet dinner, and auction with 100% of proceeds … Continued

IC and Exercise Survey

ICA is conducting a survey for the next issue of the ICA Update. This survey will focus on IC and exercise and should take approximately 5-10 minutes to complete. Thank you for taking a moment to provide your feedback. Complete … Continued

What Does IC Actually Feel Like?

Check out this video by YouTuber MissM where she talks about what having IC feels like: https://www.youtube.com/watch?v=tgf8qM-TVyI&feature=share Do you have an IC video you would like to share with us? If so, please email the link to icamail@ichelp.org.

Calling patients with CRPS and/or vulvodynia pain

As you may already know, the Interstitial Cystitis Association is a member of a steering committee of patient advocates advising Grünenthal, a pharmaceutical company that is interested in pain.  One of the projects we’re involved with is a new pilot … Continued

Interstitial Cystitis Segment on Lifetime TV

On Tuesday, May 15th, The Balancing Act will be featuring a segment on interstitial cystitis (IC). The show will be aired on Lifetime at the following times: 7:30 am EST 7:30 am PST 6:30 am CST 5:30 am MST The … Continued

ICA Attends Opioid Summit

At their visit with Representative Karen Handel’s office during the ICA’s Capitol Hill Walk, Irma Rodriguez, ICA Chair and Mike Greenwell, Vice-chair, were invited to an “opioid Summit” In the Atlanta area.  They talked to Rep. Handel and she is … Continued

ICA Visits Capitol Hill

ICA board members, staff, patients, and advocates made their annual visits to Capitol Hill on April 24, 2018. ICA’s legislative priorities for FY 2019 include: CENTERS FOR DISEASE CONTROL AND PREVENTION (CDC) Provide $1,000,000 for the IC Education and Awareness … Continued