When the Cure Is Worse Than the Disease

New York Times posted an article on their website entitled “When the Cure Is Worse Than the Disease” that discusses the struggle that many interstitial cystitis patients are facing with the opioid crisis. “Katie Tulley suffers from an incurable bladder … Continued

Have You Considered Fundraising on Facebook?

Facebook has made birthdays a time to do something positive! Most of us don’t like getting older, but Facebook has created a birthday fundraiser that makes it easy, with no fees, to fundraise for the ICA. Go to https://www.facebook.com/fund/InterstitialCystitisAssociation/ and follow … Continued

Lindsay Chandler’s Facebook Fundraiser

Why did Lindsay Sarah Chandler choose ICA for her Facebook Fundraiser? “I chose ICA as a fundraiser since I’ve had IC about two years now, and my IC becoming much worse last year causing me to lose my job and … Continued

IC Hope Research Study

Dr. Laura Santurri and colleagues at the University of Indianapolis are conducting the IC Hope Research Study. This study has been approved by the University of Indianapolis Human Research Protections Program (HRPP)/Institutional Review Board (UIndy Study #1012, approved January 15, … Continued

IC Awareness Walk Coming to North Carolina!

On April 20, 2019, the Interstitial Cystitis Association (ICA) is excited to host our 2nd IC awareness charity walk, ICA: Walk for an IC Cure. The event gathers IC patients, caregivers, healthcare providers, therapists, friends, and families to create awareness, … Continued

Take the First Step!

It’s time for New Year’s resolutions! We know that exercise isn’t always easy for IC patients. Read this article from the summer 2018 issue of the ICA Update to learn tips on how to get moving. “Whether you’re an experienced … Continued

Join the ICA Guardian Society

Join the members of the Interstitial Cystitis Association (ICA) Guardian Society, a group committed to supporting the ICA through a very special and important form of financial support. These donors named the ICA as the ultimate beneficiary of a planned … Continued

Facebook Fundraiser – Chloe Rose Enriquez

Why did Chloe Rose Enriquez choose ICA for her Facebook Birthday Fundraiser? “I decided to do a fundraiser for IC because my mother was diagnosed with IC over 20 years ago. She has one of the worst cases her doctors … Continued

Made Visible Podcast

“Made Visible is a podcast that gives a voice to people with invisible illnesses. This podcast aims to change the conversation around invisible illnesses, helping those who experience them —whether as patients, caregivers, or friends or family members — feel … Continued

Love Your Food

From the Fall 2009 issue of the ICA Update. Check out this article that will help you put the fun back in food…includes IC-friendly holiday recipes! “Food is one of life’s great pleasures and the center of social life, but … Continued