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Interstitial Cystitis Association

Health AwardsThe Interstitial Cystitis Association (ICA) is the only nonprofit charitable organization dedicated solely to improving the quality of healthcare and lives of people living with interstitial cystitis (IC).

IC is recurring pelvic pain, pressure, or discomfort in the bladder and pelvic region, often associated with urinary frequency (needing to go often) and urgency (feeling a strong need to go).

IC can affect anyone. More than 12 million people in the US have IC:

  • Women: 3 to 8 million
  • Men: 1 to 4 million
  • Children: prevalence data are not known


Revised Wednesday, February 24th, 2016

Latest from ICA

ICA Attends Grünenthal Kick-off Meeting

16 March 2018

On February 14, 2018 in Cambridge, MA, ICA attended a kick-off meeting hosted by Grünenthal, to represent the diverse voices of patients living with pain. Here are a few highlights of what Grünenthal is working on: We’re participating in a … Continued

Your messages to me were so encouraging and took away the horrible loneliness and panic that I had been living with.

- Carolyn


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