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Interstitial Cystitis Association

Health AwardsThe Interstitial Cystitis Association (ICA) is the only nonprofit charitable organization dedicated solely to improving the quality of healthcare and lives of people living with interstitial cystitis (IC).

IC is recurring pelvic pain, pressure, or discomfort in the bladder and pelvic region, often associated with urinary frequency (needing to go often) and urgency (feeling a strong need to go).

IC can affect anyone. More than 12 million people in the US have IC:

  • Women: 3 to 8 million
  • Men: 1 to 4 million
  • Children: prevalence data are not known


Revised Wednesday, February 24th, 2016

Latest from ICA

Interstitial Cystitis in the News

7 March 2019

‘Incurable’ Bladder Pain Brings Women Together to Fight Back  “Where medicine has failed to find a cure, women are banding together using social media to find solutions to interstitial cystitis, a painful bladder condition.“ Read the full article at What … Continued

ICA Awareness Video

7 March 2019

ICA has created a video entitled “You Have IC, Now What?” that was developed as part of an #ICAwareness campaign. Watch the video at

Your messages to me were so encouraging and took away the horrible loneliness and panic that I had been living with.

- Carolyn


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