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Interstitial Cystitis Association

Health AwardsThe Interstitial Cystitis Association (ICA) is the only nonprofit charitable organization dedicated solely to improving the quality of healthcare and lives of people living with interstitial cystitis (IC).

IC is recurring pelvic pain, pressure, or discomfort in the bladder and pelvic region, often associated with urinary frequency (needing to go often) and urgency (feeling a strong need to go).

IC can affect anyone. More than 12 million people in the US have IC:

  • Women: 3 to 8 million
  • Men: 1 to 4 million
  • Children: prevalence data are not known

Revised Wednesday, February 24th, 2016

Latest from ICA

Call for Stories of Hope

20 July 2017

Do you have an IC story you want to share with the IC community? Stories are being accepted from patients and healthcare providers, as well as family and friends of IC patients who have been affected by IC. Check out … Continued

A Message from ICA Board Member, Barb Zarnikow

20 July 2017

My journey with interstitial cystitis (IC) has been very long and at times lonely. Although I was diagnosed as an adult, I remember the life altering and painful symptoms long before I had any answers. Since the beginning of my … Continued

Your messages to me were so encouraging and took away the horrible loneliness and panic that I had been living with.

- Carolyn

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