Support Group Registry
The ICA is pleased to provide you with a list of interstitial cystitis/bladder pain syndrome-related support groups in the United States and online.
Find a Support Group Near You
The Interstitial Cystitis Association (ICA) provides this registry of support groups solely as a public service and informational resource. The listed groups are independently run and are not owned, controlled, managed, or formally affiliated with the ICA.
Inclusion of a support group in this registry does not constitute:
- An endorsement or recommendation by the ICA;
- A guarantee of the accuracy or quality of information shared; or
- A representation regarding the qualifications or conduct of any facilitator, leader, or participant.
Participation in any support group is voluntary and at your own risk. The ICA is not responsible or liable for any advice, information, services, or experiences that may arise from involvement with any listed group.
If you know of an existing IC/BPS support group that is not on this list, please email us at icamail@ichelp.org.
Additional Resources:
Don’t see a support group in your area? Check out the ICA’s Online Support Communities!
The US Pain Foundation’s support groups can also be an invaluable resource. Check out the US Pain Foundation’s Pain Connection program.
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To get started with discord, check out this link: https://support.discord.com/hc/en-us/articles/360033931551-Getting-Started
This group has discussions via text and meetings by request.
Phone Support Only
This support group is also on Instagram and Facebook as @sistersforpelvichealth