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  • Understanding IC/BPS
    • Left Column
      • Learn About IC/BPS
        • What is Interstitial Cystitis/Bladder Pain Syndrome (IC/BPS)?
        • Who Gets IC?
        • Causes
        • Symptoms
        • Frequently Asked Questions
        • IC/BPS in Women
        • IC/BPS in Men
        • IC/BPS in Children
        • IC/BPS Flares
        • Associated Conditions
        • Navigating IC/BPS: Conversations with Experts
        • Videos & Webinars
        • Glossary of Terminology
        • Information in Other Languages
        • ICA Store
      • Diagnosis
        • Initial Evaluation for IC/BPS
          • Cystoscopy with Hydrodistention
          • Urodynamics
        • Diagnosing Complicated IC/BPS Cases
        • Wrong Diagnosis
      • IC/BPS Treatment Guideline
      • Medical Treatments
        • Bladder Instillations
        • Surgical Procedures
        • Neuromodulation
        • Botox
      • Medications
        • Antidepressants
        • Antihistamines
        • Pentosan Polysulfate Sodium
        • Immunosuppresants
      • Complementary Treatments
        • Self Management
        • Physical Therapy
        • Complementary & Alternative Therapies
      • Diet
        • How Diet Can Trigger IC Flares
        • Elimination Diet
        • What to Eat
        • Foods to Avoid
        • The IC/BPS Plate
        • Kicking the Caffeine Habit
        • Food Allergies and Intolerances
        • Supplements
        • IC/BPS Diet FAQs
        • Snapshot of Research on IC/BPS and Diet
      • Newly Diagnosed Toolkit
      • Ask an IC/BPS Question
    • Right Column
      • Walk For An IC Cure Carousel Image 2

        Interstitial cystitis (in-ter-stish-uhl sĭ-stī’tĭs), or as we call it, IC, is a condition that consists of recurring pelvic pain, pressure, or discomfort in the bladder and pelvic region.

  • Living With IC/BPS
    • Left Column
      • Healthcare Resources
        • Finding the Right Doctor
        • Healthcare Provider Registry
        • Pain Diaries
        • Patient Assistance Programs
        • Helpful Links & Organizations
      • Insurance & Disability
        • Health Insurance
        • Disability Insurance
        • Social Security Disability Insurance
        • Talking With Your Employer About IC/BPS
        • Handicapped Parking Permits
      • Support & Community
        • US Support Groups
        • Online Support Groups
        • Voices of Hope Blog
        • Caregiver Support
        • Support Group Leader Kit
      • General Health & Lifestyle Advice
        • Exercise
        • Managing Stress
        • Sleep & IC/BPS
        • Public Restroom & Travel Tips
        • IC/BPS on Budget
        • Intimacy and IC/BPS
        • Quitting Smoking
      • Urological Diseases Databases and Registries
    • Right Column
      • Black family cooking in kitchen

        Tips and tools to help interstitial cystitis (IC) patients manage IC symptoms, including lifestyle changes to over-the-counter IC products. The Interstitial Cystitis Association (ICA) is your comprehensive source of living with IC!

  • News
    • Left Column
      • News Updates
      • ICA Update Magazine
      • ICA eNews
      • ICA Research Digest
    • Right Column
      • IMG 8343

        Representing the Patient Voice

        May 6, 2025
  • Get Involved
    • Left Column
      • Ways to Give
        • Donate Online
        • Set Up Monthly Giving
        • Planned Gifts and Estate Planning
        • Donor Advised Funds
        • Donor Stock Transfer Instructions
        • IC/BPS Charity in Combined Federal Campaign
        • Corporate Payment Form
        • Donor Benefits and How Donations are Used
        • Advertising Options
      • Connect with the ICA – Interest Form
      • Fundraise
        • Create a Community Fundraiser
        • Create a Facebook Fundraiser
        • IC Awareness Walks
      • Advocate
        • IC Awareness Month Proclamation Requests
        • Participate in IC/BPS Advocacy
        • Meet Locally with Your Legislators
      • Find IC/BPS Support
        • Online Support Community
        • Local Support Groups
      • Participate in Research
      • For Researchers
      • For Healthcare Providers
        • Healthcare Provider Toolkit
        • Purchase Brochures
        • Host an Event
      • For Corporate Partners
        • Corporate Partner Prospectus
        • Sponsor an ICA Event
    • Right Column
      • Walk For An IC Cure Carousel Image 2

        We need your help to help us achieve our mission of improving the quality of healthcare and lives of people living with interstitial cystitis (IC). Explore the ways you can help!

  • About
    • Left Column
      • Mission, Vision, & Our Promise to You
      • Board of Directors
      • ICA Team
      • ICA Medical Advisory Council
      • Annual Reports
      • 990 and Audited Financials
      • About Our Founder
      • Contact Us
    • Right Column
      • Board Cropped

        ICA advocates for interstitial cystitis (IC) research dedicated to discovery of a cure and better treatments, raises awareness, and serves as a central hub for the healthcare providers, researchers and millions of patients who suffer with IC.

Support & Community

Find your IC/BPS community.

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  2. Living With IC/BPS
  3. Support & Community
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IC/BPS Communities

Are you looking for a community of support? ICA offers several options for people living with IC/BPS.

Local Support Groups

Online Support Communities

Support Group Leader Kit

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  • Visit our Facebook page
  • Visit our Twitter page
  • Visit our Instagram page
  • Visit our YouTube page

Connect With Us:

Interstitial Cystitis Association (ICA)

388 S. Main Street, Suite 440-#157, Akron, OH 44311

E-mail: ICAmail@ichelp.org

Phone: (720) 515-1411 (please note that our response times to voicemails are based on volunteer availability; for a quicker response, please email us)

Donations can be mailed to: PO Box 17522, Baltimore, MD 21297-1522

Phone and email are not monitored 24/7. If you are experiencing a medical emergency, please call 911. If you are currently in distress, please consider contacting the Suicide & Crisis Lifeline by dialing 988.

About the ICA

The ICA advocates for research dedicated to discovery of a cure and better treatments, raises awareness, and serves as a central hub for the healthcare providers, researchers and millions of patients who have interstitial cystitis.

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© 2025 Interstitial Cystitis Association. All rights reserved.
A charitable organization with 501(c)(3) tax-exempt status. Federal ID #13-3292137.

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