Interstitial Cystitis (IC) & Chronic Pelvic Pain News

Thanks to everyone for their very generous donations to the ICA. We are so very grateful and privileged to work on behalf of such a tremendous community. Please keep them coming and we will continue marching on…

Top IC Stories:

Navigating Disability – A Must Have ICA Update

2016 Summer2Want to increase your chances of having a successful disability claim? Here’s the cover for the Summer 2016 issue of the ICA Update that you DON’T want to miss! If you have ever contemplated applying for disability, you NEED a copy of this issue. Luckily, if you make a donation commitment of $50 or more you will have immediate online access to this issue.

If it’s easier for you to make your donation over time, consider joining ICA’s Angel Society and make a monthly gift today of $10, $20, $30, or more. By making a regular monthly donation, you’ll obtain your halo and join others in ICA’s Angel Society. Consider saving a few dollars by making your favorite specialty drink at home, renting a movie rather than going to see one, or fixing yourself a nice dinner at home rather than eating out and redirect those savings each month to ICA. Every gift matters and the convenience of monthly giving multiplies your impact for so many. Your credit card will be charged the amount you designate on the same date each month. Your once-a-month generosity will work every day to ensure early diagnosis and optimal care with dignity for people affected by IC.

In this issue:

  • ICA News
  • Navigating Disability
  • Doctors, IC & Disability
  • Working with IC
  • Doctors Forum: PT as Part of the IC Solution
  • Disability, Not Identity

Hot Topics from ICA’s Online Support Community

ICA’s Online Support Community is a place of peace, hope, and support and provides comfort for patients, family members, friends, and healthcare professionals in search of better understanding the impact of IC. Below is a list of some current hot topics. Join the growing ICA Online Support Community, where you can be connected to thousands of other people experiencing similar symptoms, situations, experiences, and emotions.

ICA Facebook Page “Post of the Week”

An IC patient posted, “Have any of you tried taking freeze dried Aloe Vera capsules?” Patients have been taking Desert Harvest Aloe Vera capsules for years to deal with bladder pain and improve their overall bladder health. Although more research needs to be done, anecdotal evidence seems to support the use of this product by the IC community. Please speak to your doctor before trying this, or any other supplement. Click here for more information on IC-friendly supplements. Read the responses to her post by joining the ICA’s Facebook community. With over 30,000 followers currently using this Facebook community, support is just a click away.

ICA Healthcare Provider Registry

For many people with interstitial cystitis (IC), an effective treatment plan requires a team approach, including urologists and other physicians, nurse practitioners, physical therapists, dietitians, and counselors. The ICA Healthcare Provider Registry includes clinicians who have agreed to be a referral source for IC patients. Any registered user of www.ichelp.org has access to this tool. Do you know of other healthcare providers who treat IC patients? Are you a healthcare provider that treats patients with IC and want to be included in the ICA’s Healthcare Provider Registry? Email your name, suffix, specialty, practice name, address, phone number, and website URL to ICAmail@ichelp.org with your request to be included in the ICA Healthcare Provider Registry.

Newest Additions:

  • Physical Therapy – Crested Butte, CO
  • Physical Therapy – Nashua, NH
  • MD – Pendleton, OR

IC & Chronic Pain Events

IC Support Group Updates

  • Support Group – Monterey, CA – October 15
  • Support Group – Williamsport, PA – October 24
  • Support Group – Syracuse, NY – October 24
  • Support Group – Rhode Island – November 2
  • Support Group – Miami, FL – November 12
  • Phone Support Only – Dedham, MA
  • Phone Support Only – Springfield, VA

Do you run an IC support group? If so, please share your information with us so we can post it on the ICA Support Group page. Want to publicize your next group meeting? Please email your information to icamail@ichelp.org 3-4 weeks prior to the meeting date.

ICA Quick Tip:

How do you know when you have found a good IC doctor? Most doctors will follow the American Urological Association (AUA) IC treatments guideline when developing a treatment plan for patients. There is no “magic bullet” when it comes to treating IC, so avoid “doctor shopping.” There are a limited amount of treatment options available for IC patients, and many of them take time to work. So if your current doctor can provide you with a variety of options, and is compassionate, it is often better to give your doctor a chance. Educate your doctor by sharing ICA’s Healthcare Provider Toolkit.

Revised Monday, October 3rd, 2016