ICA eNews November 4, 2016
Interstitial Cystitis (IC) & Chronic Pelvic Pain News
Thanks to everyone for their very generous donations to the ICA. We are so very grateful and privileged to work on behalf of such a tremendous community. Please keep them coming and we will continue marching on…
Top IC Stories:
- November is Bladder Health Month
- ICA Discusses IC at National Institutes of Health
- Join the Party
- Holiday Survival Guide
- 12 Miles for 12 Million with IC
- Federal Employees – IC Charity in Combined Federal Campaign
- Heavy Periods with Fibroids? Uterine Fibroids Study Seeks Participants
Join ICA’s Birthday Club
Birthdays come once a year, but you can change a life FOREVER by pledging your birthday to ICA!
Consider “donating” your birthday this year to continue ICA’s life-changing work on your behalf. Instead of receiving the typical cards and flowers, you can create a personal webpage that invites your loved ones to support IC awareness, advocacy, and research. No wrapping gifts, no finding a stamp to mail a card, plus your friends and family will know their gift is going directly to something that has the power to change your life and millions of others who suffer with IC. In addition, for every dollar you raise, you will get a soft credit that goes toward your annual donor benefits. The more your friends and family give, the more resources you’ll have access to. That is a gift that keeps on giving! ICA even takes care of the thank you note by sending an immediate email acknowledgement for their tax-deductible donation. So this year when you blow out your candles, you know that you are doing your part to help blow out the flames of IC. Pledge your birthday TODAY! #BlowOutIC
Hot Topics from ICA’s Online Support Community
ICA’s Online Support Community is a place of peace, hope, and support and provides comfort for patients, family members, friends, and healthcare professionals in search of better understanding the impact of IC. Below is a list of some current hot topics. Join the growing ICA Online Support Community, where you can be connected to thousands of other people experiencing similar symptoms, situations, experiences, and emotions.
ICA Facebook Page “Post of the Week”
A patient wrote, “I need to get an ultrasound done, but it is really painful to drink sooo much fluid and hold it prior to the procedure. Does anyone have any tips or tricks they use to make this whole experience more comfortable?” Check out ICA’s tips on surviving pelvic exams. Read the responses to her post by joining ICA’s Facebook community. With over 30,000 followers currently using this Facebook community, support is just a click away.
ICA Healthcare Provider Registry
For many people with interstitial cystitis (IC), an effective treatment plan requires a team approach, including urologists and other physicians, nurse practitioners, physical therapists, dietitians, and counselors. The ICA Healthcare Provider Registry includes clinicians who have agreed to be a referral source for IC patients. Any registered user of www.ichelp.org has access to this tool. Do you know of other healthcare providers who treat IC patients? Are you a healthcare provider that treats patients with IC and want to be included in the ICA’s Healthcare Provider Registry? Email your name, suffix, specialty, practice name, address, phone number, and website URL to ICAmail@ichelp.org with your request to be included in the ICA Healthcare Provider Registry.
- Female Pelvic Medicine – Boca Raton, FL
- Urogynecologist – Boca Raton, FL
- MD – Pendleton, OR
- Urologist – Ontario, Canada
- Urologist – Smyrna, TX
- Urologist – Phillip Hanno, MD – Moved to Stanford, Palo Alto, CA
IC & Chronic Pain Events
- Support Group – Rhode Island – November 9
- Support Group – Monterey, CA – November 12
- Support Group – Miami, FL – November 12
- Support Group – Lincoln, NE – November 15
- Phone Support Only – Dedham, MA
- Phone Support Only – Springfield, VA
Do you run an IC support group? If so, please share your information with us so we can post it on the ICA Support Group page. Want to publicize your next group meeting? Please email your information to firstname.lastname@example.org 3-4 weeks prior to the meeting date.
ICA Quick Tip:
Have you checked out the ICA Voices of Hope Blog lately? There are so many reasons to feel hopeful. Everyone has a story. November is Bladder Health Month, which makes it the perfect time to share yours with others. You never know who you might help. Stories are being accepted from patients and healthcare providers, as well as family and friends of IC patients who have been affected by their IC. Click here for Voices of Hope blog guidelines. Don’t forget to send your photo with your blog submission. We’re excited to read and share all the stories!
Revised Wednesday, November 2nd, 2016