ICA eNews November 18, 2016
Interstitial Cystitis (IC) & Chronic Pelvic Pain News
Thanks to everyone for their very generous donations to the ICA. We are so very grateful and privileged to work on behalf of such a tremendous community. Please keep them coming and we will continue marching on…
Top IC Stories:
- November is Bladder Health Month
- Make it a Life-changing Year
- Federal Employees – IC Charity in Combined Federal Campaign
- Heavy Periods with Fibroids? Uterine Fibroids Study Seeks Participants
Latest in IC Research:
- Drugs That Block mTOR Might Reduce Pain and Bladder Hyperactivity
- Targeting ICAM-1 May Reduce Bladder Inflammation in IC/BPS, Rat Study Shows
- Does Early Symptom Regression Influence the Results of Pelvic Pain Studies?
- Canadian Urologists Release Comprehensive Guideline for Care of IC/BPS
- Chondroitin Sulfate Treatment is Feasible, With Fewer Side Effects Than DMSO, in Women With IC/BPS
Giving Tuesday is November 29th
#GivingTuesday proves that the holidays are the time to give back to those organizations or charities that are most important to you. It celebrates how we can do more with our money than just shop – we can make an actual difference in the community.
Please give to the ICA! Your donation will help ICA support the nearly 4 million people affected by IC. Donate to ICA for #GivingTuesday and all the days in between.
Hot Topics from ICA’s Online Support Community
ICA’s Online Support Community is a place of peace, hope, and support and provides comfort for patients, family members, friends, and healthcare professionals in search of better understanding the impact of IC. Below is a list of some current hot topics. Join the growing ICA Online Support Community, where you can be connected to thousands of other people experiencing similar symptoms, situations, experiences, and emotions.
- New here have pudendal neuralgia for 15 years now
- 2 years and still no answers, looking for hope/advice
- Newly diagnosed
ICA Facebook Page “Post of the Week”
A patient wrote, “I am new to this IC community, and I am wondering if anyone has any suggestions for an AM beverage besides water? I used to have a diet green tea or diet Powerade/Gatorade.” If you are having trouble kicking your coffee habit in the morning, click here for ideas. Read the responses to her post by joining ICA’s Facebook community. With over 30,000 followers currently using this Facebook community, support is just a click away.
ICA Healthcare Provider Registry
For many people with interstitial cystitis (IC), an effective treatment plan requires a team approach, including urologists and other physicians, nurse practitioners, physical therapists, dietitians, and counselors. The ICA Healthcare Provider Registry includes clinicians who have agreed to be a referral source for IC patients. Any registered user of www.ichelp.org has access to this tool. Do you know of other healthcare providers who treat IC patients? Are you a healthcare provider that treats patients with IC and want to be included in the ICA’s Healthcare Provider Registry? Email your name, suffix, specialty, practice name, address, phone number, and website URL to ICAmail@ichelp.org with your request to be included in the ICA Healthcare Provider Registry.
- Urogynecologist – Boca Raton, FL
- MD – Pendleton, OR
- Urologist – Ontario, Canada
- Urologist – Smyrna, TX
- Urologist – Phillip Hanno, MD – Moved to Stanford, Palo Alto, CA
- Support Group – Williamsport, PA – November 28
- Support Group – Dewitt, NY – November 28
- Support Group – Rhode Island, NY – January 11
- Support Group – Monterey, CA – December 10
- Phone Support Only – Dedham, MA
- Phone Support Only – Springfield, VA
Do you run an IC support group? If so, please share your information with us so we can post it on the ICA Support Group page. Want to publicize your next group meeting? Please email your information to firstname.lastname@example.org 3-4 weeks prior to the meeting date.
ICA Quick Tip:
Did you know you can shop on Amazon and help ICA at the same time? Make any purchase from Amazon by clicking here and selecting Interstitial Cystitis Association as your chosen charity. Amazon Smile will donate a portion of your sale directly to ICA. You only need to select ICA once, and every time you log in to your account a percentage of your purchase will go directly to ICA’s mission!
Please note: Amazon app is not compatible with Amazon Smile.
Revised Wednesday, November 16th, 2016