Interstitial Cystitis (IC) & Chronic Pelvic Pain News

Thanks to everyone for their very generous donations to the ICA. We are so very grateful and privileged to work on behalf of such a tremendous community. Please keep them coming and we will continue marching on…

Top IC Stories:

Hot Topics from ICA’s Online Support Community

ICA’s Online Support Community is a place of peace, hope, and advice providing comfort for patients, family members, friends, and healthcare professionals looking for ways to better understand the impact of IC. It provides strength in numbers for those living with IC. Below is a list of some current hot topics. Join us in the growing ICA Online Support Community, where you can be connected to hundreds of other people experiencing similar symptoms, situations, experiences, and emotions.

ICA Facebook Page “Post of the Week”

An IC patient asked, “Do you usually hurt after sex?”

IC and intimacy is one of the most difficult challenges for an IC patient. To read the response to her post, join ICA’s Facebook community and help us keep the conversation going! Go to “IC and Intimacy” for additional information and watch our webinar entitled “A Time for Two: Intimacy, Sexuality and IC.”

ICA Healthcare Provider Registry Additions

For many people with interstitial cystitis (IC), an effective treatment plan requires a team approach, including urologists and other physicians, nurse practitioners, physical therapists, dietitians, and counselors. The ICA Healthcare Provider Registry includes clinicians who have agreed to be a referral source for IC patients. Below is a list of recent additions to the registry.

The ICA Healthcare Provider Registry does not include every healthcare provider who treats people with IC. Do you know of other healthcare providers who treat IC patients? Are you a healthcare provider that treats patients with IC and want to be included in the ICA’s Healthcare Provider Registry? Email your name, specialty, practice name, address, phone number, and website URL to ICAmail@ichelp.org with your request to be included in the ICA Healthcare Provider Registry.

  • Physical Therapist – Berkeley, CA
  • Physical Therapist – LA, CA
  • Physical Therapist – Roswell, GA
  • Physical Therapist – Burlington, WA
  • Nurse Practitioner – Hershey, PA
  • Acupuncturist – East Lansing, MI
  • Acupuncturist – Fresh Meadows, NY
  • Urogynecology / Gynecological Surgery, Urology – San Francisco, CA

IC & Chronic Pain Events

Do you run an IC support group? If so, please share your information with us so we can post it on the ICA Support Group page. Please email your information to icamail@ichelp.org.

Earn Your Halo

ICA Angel SocietyJoin ICA’s Angel Society and help fight IC year-round by becoming a monthly donor. Monthly giving is easy, its automatic, it helps cut down on administrative costs, and – most importantly – it sustains critical IC research, education programs, and patient advocacy services that make a real difference in the lives of those with IC.

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ICA Quick Tip:

Summer is almost here!  For many that means lots of trips to the pool.  Swimming is a great low impact exercise, however for some IC patients the chemicals in pools can cause problems, so try out the pool in small doses before you try a longer exercise session to see how your body reacts, or try to find a pool that uses alternative methods of disinfection, such as salt water pools. Click here for more information on IC and Exercise.

 

Revised Thursday, May 26th, 2016