ICA eNews March 4, 2016
Interstitial Cystitis (IC) & Chronic Pelvic Pain News
Thanks to everyone for their very generous donations to the ICA. We are so very grateful and privileged to work on behalf of such a tremendous community. Please keep them coming and we will continue marching on…
Latest in IC Research
- Is Acupuncture Better than Standard Pelvic Pain Treatment? Research Suggests Potential Edge
- Complementary and Alternative Medicine May Provide IC/BPS Relief, But More Studies are Needed
- New Alternatives to Morphine May Reduce Pain Sensitivity, With Limited Side Effects
- Gender Differences in Stress Response May Explain Preponderance of IC in Women
- Men with IC/BPS Present a Particular Challenge for Effective Treatment
- IC/BPS Often Misdiagnosed Despite Early Symptoms of Frequency, Urgency, and Pain
- The Best Approach to IC Treatment in 2016 is to Follow the AUA Guidelines, Experts Say
- Innovative Research Initiatives Provide Fresh Insights in IC/BPS
- Glycosaminoglycans Replacement Therapy Promising for IC/BPS in Multiple Studies to Date
ICA Founder Recently Published
Study Seeking Women Who Suffer from IC with Hunner’s Lesions
Hot Topics from ICA’s Online Support Community
ICA’s Online Support Community is a place of peace, hope, and advice providing comfort for patients, family members, friends, and healthcare professionals looking for ways to better understand the impact of IC. It provides strength in numbers for those living with IC. Below is a list of some current hot topics. Join us in the ICA Online Support Community, where you can be connected to hundreds of other people experiencing similar symptoms, situations, experiences, and emotions.
ICA Facebook Page “Question of the Week”
Any other men here with ic? I only have flares about once every couple months but they last a couple days. Help us keep the conversation going!
ICA Healthcare Provider Registry Additions
For many people with interstitial cystitis (IC), an effective treatment plan requires a team approach, including urologists and other physicians, nurse practitioners, physical therapists, dietitians, and counselors. The ICA Healthcare Provider Registry includes clinicians who have agreed to be a referral source for IC patients. Below is a list of recent additions to the registry.
The ICA Healthcare Provider Registry does not include every healthcare provider who treats people with IC. Do you know of other healthcare providers who treat IC patients? Are you a healthcare provider that treats patients with IC and want to be included in the ICA’s Healthcare Provider Registry? Email your name, specialty, practice name, address, phone number, and website URL to ICAmail@ichelp.org giving your permission to be included in the ICA Healthcare Provider Registry.
- Physical Therapist – Portland, OR
- Physical Therapist – Vancouver, WA
- Physical Therapist – Centennial, CO
- Urogynecologist – Moultrie, GA
- Gynecologist – Jensen Beach, FL
IC & Chronic Pain Events
- NPR Here and Now Series Focuses on Chronic Pain Patients
- Weekend Educational Retreat for Women and Men with Chronic Pelvic Pain
- PELVIC HEALTH 101
- IC Support Group Updates
- Muskegon IC Support Group, Muskegon, MI – March 7
- Miami Support Group, South Miami FL – March 12
- New IC Support Group – Monterey, CA
- New IC Support Group – Charlotte, NC
- New IC Support Group – Saint Louis, MO
ICA Quick Tip:
Having an IC flare? If possible drink some additional water to dilute the concentration of your urine. This can be especially helpful if you are experiencing a diet-related flare. Learn more at: www.ichelp.org/about-ic/symptoms-of-ic/icflares/
Helping You Thrive…Not Just Survive!
2016 is a leap year, which means IC patients will struggle with an additional day of bladder and pelvic pain, urinary frequency, and urgency sometimes up to 60 times or more a day in severe cases. Anxiety about finding a restroom, lack of sleep, and challenges on the job all impact IC patients’ quality of life. ICA wants to be here to help YOU!
Your donations support the work of our patient advocates, including Jennifer Zuzelski, an ICA Program Manager and Information Specialist. Jennifer is an IC patient herself, so she knows firsthand what it’s like to live with this difficult condition.
This personalized advocacy service would not be available without your generous support. As we leap into 2016, we hope we can count on your donations to continue ICA’s important work for those who suffer and struggle with IC every day.
Revised Friday, March 4th, 2016