ICA eNews March 31, 2017
Interstitial Cystitis (IC) & Chronic Pelvic Pain News
Thanks to everyone for their very generous donations to the ICA. We are so very grateful and privileged to work on behalf of such a tremendous community. Please keep them coming and we will continue marching on…
Top IC Stories:
- 12 Signs You Might Have Interstitial Cystitis
- IC-Friendly Recipes
- Fulranumab vs. Placebo for the Treatment of IC/PBS
- Study Seeking Men and Women Who Suffer from Urologic Chronic Pelvic Pain
Join ICA’s Angel Society and help fight IC year-round by becoming a monthly donor. Monthly giving is easy, it’s automatic, it helps cut down on administrative costs, and – most importantly – it sustains critical IC research, education programs, and patient advocacy services that make a real difference in the lives of those with IC.
Hot Topics from ICA’s Online Support Community
ICA’s Online Support Community is a place of peace, hope, and support and provides comfort for patients, family members, friends, and healthcare professionals in search of better understanding the impact of IC. Below is a list of some current hot topics. Join the growing ICA Online Support Community, where you can be connected to thousands of other people experiencing similar symptoms, situations, and emotions.
- Role call for IC sister and brothers!
- Treatments for IC
- Any helpful ideas for panic attacks and anxiety???
ICA Facebook Page “Post of the Week”
Pelvic Sanity posted “This week, we tackle the 7 biggest myths about #InterstitialCystitis. First up, we debunk the persistent myth that IC is rare, which makes it harder for IC patients to be diagnosed and to receive research funding for the condition. That’s a big reason that the Interstitial Cystitis Association works so hard to raise awareness and educate both the medical community and patients about IC.”
ICA Healthcare Provider Registry
For many people with interstitial cystitis (IC), an effective treatment plan requires a team approach, including urologists and other physicians, nurse practitioners, physical therapists, dietitians, and counselors. The ICA Healthcare Provider Registry includes clinicians who have agreed to be a referral source for IC patients. Any registered user of www.ichelp.org has access to this tool. Do you know of other healthcare providers who treat IC patients? Are you a healthcare provider who treats patients with IC and wants to be included in the ICA’s Healthcare Provider Registry? Email your name, suffix, specialty, practice name, address, phone number, and website URL to ICAmail@ichelp.org with your request to be included in the ICA Healthcare Provider Registry.
- Physical Therapist – Charlottesville, VA
- Physical Therapist – Weston, FL
- Physical Therapist – Santa Maria, CA
- Registered Dietitian – Santa Maria, CA
- Registered Dietitian Nutritionist – Smyrna, TN
ICA is pleased to provide you with a list of IC, painful bladder syndrome (PBS), and chronic pelvic pain support groups in the United States and around the world. Go to www.ichelp.org/us-support-groups to log in and search for a support group in your area.
- IC Support Group – Rhode Island – Apr 1
- IC Support Group – Metro Atlanta – May 18
- IC Support Group – Bowling Green, KY – April 20
Do you run an IC support group? If so, please share your information with us so we can post it on the ICA Support Group page. Want to publicize your next group meeting? Please email your information to firstname.lastname@example.org 3-4 weeks prior to the meeting date.
ICA Quick Tip:
So you (or a friend/family member) have IC, now what? When first diagnosed with IC you may feel alone. Don’t — 4 to 12 million people may have IC. At the ICA, we offer the most need-to-know information for IC patients and the best information to help you live with IC. Read more in the ICA’s Newly Diagnosed Toolkit at www.ichelp.org/newlydiagnosedtoolkit.
Revised Friday, March 31st, 2017