ICA eNews March 18, 2016
Interstitial Cystitis (IC) & Chronic Pelvic Pain News
Thanks to everyone for their very generous donations to the ICA. We are so very grateful and privileged to work on behalf of such a tremendous community. Please keep them coming and we will continue marching on…
Top IC Stories:
- CDC Releases Opioid Prescribing Guidelines to Primary Care Physicians
- Study Seeking Women Who Suffer from IC/BPS
- Time to Spring into warmer weather!
- Seasonal Allergies and IC
- Constipation and IC: Why is it a concern?
- Did you know that we offer free online Webinars?
Hot Topics from ICA’s Online Support Community
ICA’s Online Support Community is a place of peace, hope, and advice providing comfort for patients, family members, friends, and healthcare professionals looking for ways to better understand the impact of IC. It provides strength in numbers for those living with IC. Below is a list of some current hot topics. Join us in the growing ICA Online Support Community, where you can be connected to hundreds of other people experiencing similar symptoms, situations, experiences, and emotions.
ICA Facebook Page “Question of the Week”
Does anyone else share Alison’s struggle with fatigue and body aches while in a flare? Any suggestions as to what she could do to feel better?
Help us keep the conversation going!
ICA Healthcare Provider Registry Additions
For many people with interstitial cystitis (IC), an effective treatment plan requires a team approach, including urologists and other physicians, nurse practitioners, physical therapists, dietitians, and counselors. The ICA Healthcare Provider Registry includes clinicians who have agreed to be a referral source for IC patients. Below is a list of recent additions to the registry.
The ICA Healthcare Provider Registry does not include every healthcare provider who treats people with IC. Do you know of other healthcare providers who treat IC patients? Are you a healthcare provider that treats patients with IC and want to be included in the ICA’s Healthcare Provider Registry? Email your name, specialty, practice name, address, phone number, and website URL to ICAmail@ichelp.org giving your permission to be included in the ICA Healthcare Provider Registry.
- Physical Therapist – Portland, OR
- Physical Therapist – Vancouver, WA
- Physical Therapist – Centennial, CO
- Urogynecologist – Moultrie, GA
- Gynecologist – Jensen Beach, FL
IC & Chronic Pain Events
- NPR Here and Now Series Focuses on Chronic Pain Patients
- Weekend Educational Retreat for Women and Men with Chronic Pelvic Pain
- PELVIC HEALTH 101
- IC Support Group Updates
- New IC Support Group – Monterey, CA
- New IC Support Group – Charlotte, NC
- New IC Support Group – Saint Louis, MO
ICA Quick Tip:
Don’t be afraid of fruit! While it is true that most IC patients need to stay away from citrus fruit and pineapple, many patients can still enjoy blueberries, sweet apples, pears, dates, watermelon, and apricots. If you have been avoiding fruit, introduce one fruit at a time in a small quantity, and see how you do for a few days before trying another. Remember, every patient is different in terms of triggers.
Helping You Thrive…Not Just Survive!
2016 is a leap year, which means IC patients will struggle with an additional day of bladder and pelvic pain, urinary frequency, and urgency sometimes up to 60 times or more a day in severe cases. Anxiety about finding a restroom, lack of sleep, and challenges on the job all impact IC patients’ quality of life. ICA wants to be here to help YOU!
Your donations support the work of our patient advocates, including Jennifer Zuzelski, an ICA Program Manager and Information Specialist. Jennifer is an IC patient herself, so she knows firsthand what it’s like to live with this difficult condition.
This personalized advocacy service would not be available without your generous support. As we leap into 2016, we hope we can count on your donations to continue ICA’s important work for those who suffer and struggle with IC every day.
Revised Thursday, March 17th, 2016