ICA eNews March 17, 2017
Interstitial Cystitis (IC) & Chronic Pelvic Pain News
Thanks to everyone for their very generous donations to the ICA. We are so very grateful and privileged to work on behalf of such a tremendous community. Please keep them coming and we will continue marching on…
Top IC Stories:
- Action Alert: Contact Your Senator
- Interstitial Cystitis Featured in U.S. News & World Report
- Recent Trial Fails to Effectively Compare DMSO and Chondroitin Sulphate 2% Bladder Instillations for IC/PBS
- PBS Documentary Brings Chronic Pain Out of Shadows
- Study Seeking Men and Women Who Suffer from Urologic Chronic Pelvic Pain
Join ICA’s Angel Society and help fight IC year-round by becoming a monthly donor. Monthly giving is easy, its automatic, it helps cut down on administrative costs, and – most importantly – it sustains critical IC research, education programs, and patient advocacy services that make a real difference in the lives of those with IC.
Hot Topics from ICA’s Online Support Community
ICA’s Online Support Community is a place of peace, hope, and support and provides comfort for patients, family members, friends, and healthcare professionals in search of better understanding the impact of IC. Below is a list of some current hot topics. Join the growing ICA Online Support Community, where you can be connected to thousands of other people experiencing similar symptoms, situations, and emotions.
ICA Facebook Page “Post of the Week”
5 Confessions Every Chronically Ill Person Wants You to Know: http://buff.ly/2fxhpkb
ICA Healthcare Provider Registry
For many people with interstitial cystitis (IC), an effective treatment plan requires a team approach, including urologists and other physicians, nurse practitioners, physical therapists, dietitians, and counselors. The ICA Healthcare Provider Registry includes clinicians who have agreed to be a referral source for IC patients. Any registered user of www.ichelp.org has access to this tool. Do you know of other healthcare providers who treat IC patients? Are you a healthcare provider who treats patients with IC and wants to be included in the ICA’s Healthcare Provider Registry? Email your name, suffix, specialty, practice name, address, phone number, and website URL to ICAmail@ichelp.org with your request to be included in the ICA Healthcare Provider Registry.
- Physical Therapist – Charlottesville, VA
- Physical Therapist – Weston, FL
- Physical Therapist – Santa Maria, CA
- Registered Dietitian – Santa Maria, CA
- Registered Dietitian Nutritionist – Smyrna, TN
ICA is pleased to provide you with a list of IC, painful bladder syndrome (PBS), and chronic pelvic pain support groups in the United States and around the world. Go to www.ichelp.org/us-support-groups to log in and search for a support group in your area.
- IC Support Group – Miami, FL – Mar 11
- IC Support Group – Rhode Island – Apr 1
Do you run an IC support group? If so, please share your information with us so we can post it on the ICA Support Group page. Want to publicize your next group meeting? Please email your information to email@example.com 3-4 weeks prior to the meeting date.
ICA Quick Tip:
Spring is in the air! Your allergies could be causing your IC flares. Many people with IC notice that that the sneezing, itchy eyes, and runny nose brought on by seasonal allergies worsen IC symptoms. IC experts have noticed too, commenting in courses and meetings that they get more calls and more patients coming into the office with flares when the snow is gone and the trees and flowers bloom. Research also supports a higher prevalence of seasonal allergies in IC patients compared with the general public. Read more at: www.ichelp.org/allergies-and-sensitivities
Revised Friday, March 17th, 2017