ICA eNews June 24, 2016
Interstitial Cystitis (IC) & Chronic Pelvic Pain News
Thanks to everyone for their very generous donations to the ICA. We are so very grateful and privileged to work on behalf of such a tremendous community. Please keep them coming and we will continue marching on…
Top IC Stories:
- ICA Represents Chronic Pain Patients in Senate Briefing
- Call to Action – Photos and Quotes
- Thank You for Participating in the Disability Survey
- June is Men’s Health Month!
- New Sites Added – Study Seeking Women Who Suffer Hunner’s Lesions
Don’t Miss Another Issue of the ICA Update
The ICA Update is an award-winning magazine with in-depth stories about interstitial cystitis (IC) research, treatment, and lifestyle issues. Our next issue will be published in late summer. If you haven’t already done so, make a donation commitment of $50 or more now to receive your copy of the next issue in the mail, and get online access to the two most recent issues.
If it’s easier for you to make your donation over time, be an angel and consider making a monthly gift now of $10, $20, or $30 or more. You will receive the latest issue, plus online access to ALL of the past issues. By making a regular monthly donation, you’ll obtain your halo and join others in ICA’s Angel Society. Consider saving a few dollars by making your favorite specialty drink at home, renting a movie rather than going to see one, or fixing yourself a nice dinner at home rather than eating out and redirect those savings each month to ICA. Every gift matters and the convenience of monthly giving multiplies your impact for so many. Your credit card will be charged the amount you designate on the same date each month. Your once-a-month generosity will work every day to ensure early diagnosis and optimal care with dignity for people affected by IC.
Hot Topics from ICA’s Online Support Community
ICA’s Online Support Community is a place of peace, hope, and advice providing comfort for patients, family members, friends, and healthcare professionals looking for ways to better understand the impact of IC. It provides strength in numbers for those living with IC. Below is a list of some current hot topics. Join us in the growing ICA Online Support Community, where you can be connected to hundreds of other people experiencing similar symptoms, situations, experiences, and emotions.
- Rather embarrassed but need to know something
- Advice please: Elmiron and Bladder Calm and Desert Harvest Aloe
- FYI – Get evaluated for Pelvic Floor Dysfunction!! PT cured me
ICA Facebook Page “Post of the Week”
An IC patient asked, “Any luck with serrapeptase or d mannose?”
Patients often look to supplements and alternative therapies to use in conjunction with standard treatments. While supplements can be helpful in the journey to healing, it is important to consult your doctor before starting any new product. Click here to read about complementary therapies. To read the responses to her post join ICA’s Facebook community and help us keep the conversation going!
ICA Healthcare Provider Registry
For many people with interstitial cystitis (IC), an effective treatment plan requires a team approach, including urologists and other physicians, nurse practitioners, physical therapists, dietitians, and counselors. The ICA Healthcare Provider Registry includes clinicians who have agreed to be a referral source for IC patients. Any registered user of www.ichelp.org has access to this tool. Do you know of other healthcare providers who treat IC patients? Are you a healthcare provider that treats patients with IC and want to be included in the ICA’s Healthcare Provider Registry? Email your name, suffix, specialty, practice name, address, phone number, and website URL to ICAmail@ichelp.org with your request to be included in the ICA Healthcare Provider Registry.
IC & Chronic Pain Events
- Bridge for Pelvic Pain Announces: 1st Annual Pelvic Pain Seminar
- IC Support Group Updates
- Support Group – Miami, FL – July 9th
- Support Group – Rhode Island – July 13th
Do you run an IC support group? If so, please share your information with us so we can post it on the ICA Support Group page. Want to publicize your next group meeting? Please email your information to email@example.com 3-4 weeks prior to the meeting date.
ICA Quick Tip:
Caring for someone with a chronic illness is challenging emotionally, mentally and physically. Whether you have IC and are taking care of someone else, or someone is taking care of you, finding the time and resources to recharge is key to managing the stress of being a caregiver. Our caregiver support resources gives you tips and advice on how to keep healthy and sane so you can best care for the ones you love.
Revised Monday, June 20th, 2016