ICA eNews June 1, 2018
Interstitial Cystitis (IC) & Chronic Pelvic Pain News
Thanks to everyone for their very generous donations to the ICA. We are so very grateful and privileged to work on behalf of such a tremendous community. Please keep them coming and we will continue marching on…
Top IC Stories:
- ICA at the 2018 American Urological Association (AUA) Annual Meeting
- Calling Patients with CRPS and/or Vulvodynia Pain
- ICA Marketing Survey
- What Does IC Actually Feel Like
- Study Seeking Men and Women Who Suffer from Urologic Chronic Pelvic Pain
ICA advocacy efforts are more than just one day of visits on Capitol Hill. We have advocates meeting with representatives all year long. Want to help keep the momentum going? Please make a donation to support our ongoing advocacy efforts so IC Voices are represented and heard! #ICAwareness
Donate online at support.ichelp.org/donate
ICA is the only non-profit IC association and is a 501 (c)(3) organization, EIN 13-3292137
Hot Topics from ICA’s Online Support Community
ICA’s Online Support Community is a place of peace, hope, and support and provides comfort for patients, family members, friends, and healthcare professionals in search of better understanding the impact of IC. Below is a list of some current hot topics. Join the growing ICA Online Support Community, where you can be connected to thousands of other people experiencing similar symptoms, situations, and emotions.
- Elimination Diet – How long does it take
- Hunner Lesions: Laser Surgery option
- Will Hydrodistention make my ic worse?
ICA Facebook Page “Post of the Week”
ICA Healthcare Provider Registry
For many people with interstitial cystitis (IC), an effective treatment plan requires a team approach, including urologists and other physicians, nurse practitioners, physical therapists, dietitians, and counselors. The ICA Healthcare Provider Registry includes clinicians who have agreed to be a referral source for IC patients. Any registered user of www.ichelp.org has access to this tool. Do you know of other healthcare providers who treat IC patients? Are you a healthcare provider who treats patients with IC and wants to be included in the ICA’s Healthcare Provider Registry? Email your name, suffix, specialty, practice name, address, phone number, and website URL to ICAmail@ichelp.org with your request to be included in the ICA Healthcare Provider Registry.
IC Support Groups
ICA is pleased to provide you with a list of IC, painful bladder syndrome (PBS), and chronic pelvic pain support groups in the United States. Go to www.ichelp.org/us-support-groups to log in and search for a support group in your area.
Do you run an IC support group? If so, please share your information with us so we can post it on the ICA Support Group page. Want to publicize your next group meeting? Please email your information to firstname.lastname@example.org 3-4 weeks prior to the meeting date.
Revised Friday, June 1st, 2018