ICA eNews July 8, 2016
Interstitial Cystitis (IC) & Chronic Pelvic Pain News
Thanks to everyone for their very generous donations to the ICA. We are so very grateful and privileged to work on behalf of such a tremendous community. Please keep them coming and we will continue marching on…
Top IC Stories:
- ICA Puts the Fun Back Into Food
- ICA Raises IC Awareness
- CALL TO ACTION – Help ICA Raise Awareness of IC
The Latest in IC Research:
- Strong Rationale for Botulinum Toxin Use in IC/BPS, But More Research Needed to Prove Benefit
- Studying Effect of Urine on Cell Cultures Might Help Confirm IC Diagnosis
- Phenotyping Might Not Provide Additional Insights for Subtyping IC/BPS By Hunner’s Lesions
- Biomarker Found in Urine Could Help Diagnose IC/BPS
- Mast Cells, Associated With Inflammation and Allergies, May Be Implicated in IC/BPS
- IgE Antibodies Play a Role in Development of Ulcerative IC, Research Suggests
- Targeting PACAP Shows Promise in Study of Mice with Bladder Dysfunction
- Surgery Plus Neuromodulation Offers Impressive Benefit for IC Patient With Complex Pain Condition
Become on Angel and Catch up on ALL past ICA Updates
Make it easy and make your donation a little at a time. Be an angel and consider making a monthly gift now of $10, $20, or $30 or more. You will receive the latest issue, plus online access to ALL of the past issues. By making a regular monthly donation, you’ll obtain your halo and join others in ICA’s Angel Society. Monthly giving is convenient and easy way to make a huge impact on those affected by this painful condition. Your credit card will be charged the amount you designate on the same date each month. Your once-a-month generosity will work every day to ensure early diagnosis and optimal care with dignity for people affected by IC.
The ICA Update is an award-winning magazine with in-depth stories about interstitial cystitis (IC) research, treatment, and lifestyle issues. Our next issue will be published in late summer. You can also make a single donation commitment of $50 or more now to receive your copy of the next issue in the mail (US only), and get online access to the two most recent issues.
Hot Topics from ICA’s Online Support Community
ICA’s Online Support Community is a place of peace, hope, and advice providing comfort for patients, family members, friends, and healthcare professionals looking for ways to better understand the impact of IC. It provides strength in numbers for those living with IC. Below is a list of some current hot topics. Join us in the growing ICA Online Support Community, where you can be connected to hundreds of other people experiencing similar symptoms, situations, experiences, and emotions.
ICA Facebook Page “Post of the Week”
An IC patient asked, “Has anyone tried Desert Harvest Products?”
Desert Harvest is an ICA Patron Level Corporate Partner and their products, especially the freeze dried Aloe Vera capsules, are widely used in the ICA community. (Consult your healthcare provider before trying these or other products.) Click here to read more about supplements. To read the responses to her post join ICA’s Facebook community.
ICA Healthcare Provider Registry
For many people with interstitial cystitis (IC), an effective treatment plan requires a team approach, including urologists and other physicians, nurse practitioners, physical therapists, dietitians, and counselors. The ICA Healthcare Provider Registry includes clinicians who have agreed to be a referral source for IC patients. Any registered user of www.ichelp.org has access to this tool.
Do you know of other healthcare providers who treat IC patients? Are you a healthcare provider that treats patients with IC and want to be included in the ICA’s Healthcare Provider Registry? Email your name, suffix, specialty, practice name, address, phone number, and website URL to ICAmail@ichelp.org with your request to be included in the ICA Healthcare Provider Registry.
Nurse Practitioner- Dallas, TX
IC & Chronic Pain Events
- IC Support Group Updates
- Support Group – South Jersey – July 9
- Support Group – Miami, FL – July 9
- Support Group – Rhode Island – July 13
Do you run an IC support group? If so, please share your information with us so we can post it on the ICA Support Group page. Want to publicize your next group meeting? Please email your information to email@example.com 3-4 weeks prior to the meeting date.
ICA Quick Tip:
Do you keep a pain diary? Any IC patient understands that the pain they feel is very real. But do you know how to describe that pain to those around you? Describing interstitial cystitis (IC) pain can be difficult. Some people find it challenging to talk about IC pain, to find just the right words to describe what their pain feels like, to remember when IC pain was at its worst, or when they last felt their best. However, your healthcare provider needs detailed information about your IC pain to plot out its causes and triggers and build a treatment plan. Keeping an IC pain diary can help you keep track of your pain, enhance communication with your healthcare providers, and document progress. – See more at: www.ichelp.org/pain-diaries
Revised Thursday, July 7th, 2016