Interstitial Cystitis (IC) & Chronic Pelvic Pain News

Thanks to everyone for their very generous donations to the ICA. We are so very grateful and privileged to work on behalf of such a tremendous community. Please keep them coming and we will continue marching on…

Top IC Stories:

Become on Angel and Catch up on ALL past ICA Updates

2016 SpringMake it easy and make your donation a little at a time. Be an angel and consider making a monthly gift now of $10, $20, or $30 or more. You will receive the latest issue, plus online access to ALL of the past issues. By making a regular monthly donation, you’ll obtain your halo and join others in ICA’s Angel Society. Monthly giving is convenient and easy way to make a huge impact on those affected by this painful condition. Your credit card will be charged the amount you designate on the same date each month. Your once-a-month generosity will work every day to ensure early diagnosis and optimal care with dignity for people affected by IC.

The ICA Update is an award-winning magazine with in-depth stories about interstitial cystitis (IC) research, treatment, and lifestyle issues. Our next issue will be published in late summer. You can also make a single donation commitment of $50 or more now to receive your copy of the next issue in the mail (US only), and get online access to the two most recent issues.

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Hot Topics from ICA’s Online Support Community

ICA’s Online Support Community is a place of peace, hope, and advice providing comfort for patients, family members, friends, and healthcare professionals looking for ways to better understand the impact of IC. It provides strength in numbers for those living with IC. Below is a list of some current hot topics. Join us in the growing ICA Online Support Community, where you can be connected to hundreds of other people experiencing similar symptoms, situations, experiences, and emotions.

ICA Facebook Page “Post of the Week”

An IC patient asked, “Anyone have any advice on what to take for flares when you are pregnant and can’t take medication?” Being pregnant while having IC can be challenging, but there are things you can do to both prepare for, and get through your pregnancy.  (Consult your healthcare provider before trying anything new, especially when pregnant.) Click here to read more about IC & Pregnancy. In addition, Advocate Level donors can access the Winter 2011 issue of the ICA Update devoted to IC and Pregnancy.

To read the responses to her post join ICA’s Facebook community.

ICA Healthcare Provider Registry

For many people with interstitial cystitis (IC), an effective treatment plan requires a team approach, including urologists and other physicians, nurse practitioners, physical therapists, dietitians, and counselors. The ICA Healthcare Provider Registry includes clinicians who have agreed to be a referral source for IC patients. Any registered user of https://www.ichelp.org/ has access to this tool. Do you know of other healthcare providers who treat IC patients? Are you a healthcare provider that treats patients with IC and want to be included in the ICA’s Healthcare Provider Registry? Email your name, suffix, specialty, practice name, address, phone number, and website URL to ICAmail@ichelp.org with your request to be included in the ICA Healthcare Provider Registry.

Newest Additions:

  • Physical Therapist – Royal Oak, MI
  • Physical Therapist – West Bloomfield, MI
  • Nurse Practitioner – Dallas, TX

IC Support Group Updates

    • Support Group – Syracuse, NY – July 25
    • Support Group – Rhode Island – August 10
    • Support Group – South Jersey – September 10
    • Support Group – South Miami, FL – September 10
    • Support Group – Miami, FL – September 11
    • Phone Support Only – Cincinnati, OH

Do you run an IC support group? If so, please share your information with us so we can post it on the ICA Support Group page. Want to publicize your next group meeting? Please email your information to icamail@ichelp.org 3-4 weeks prior to the meeting date.

ICA Quick Tip:

Did you know that ICA is now on INSTAGRAM? Follow us @icahelp. You can also follow us on Facebook, Twitter and Pinterest.  We make it easy to stay informed and find the support you need to THRIVE not just survive your journey with IC.

Revised Friday, July 22nd, 2016