ICA eNews January 13, 2017
Interstitial Cystitis (IC) & Chronic Pelvic Pain News
Thanks to everyone for their very generous donations to the ICA. We are so very grateful and privileged to work on behalf of such a tremendous community. Please keep them coming and we will continue marching on…
Top IC Stories:
- 7 Ways to Help Control Interstitial Cystitis Symptoms
- Know There May Be Roadblocks
- A Husband’s Perspective
- Blogger Raising Awareness for IC
- Women Form Bladder Disease Support Group
- Study Seeking Men and Women Who Suffer from Urologic Chronic Pelvic Pain
Don’t Let Your Birthday Get Overlooked
Having a birthday when the holidays are over can be tough. How often has your birthday gotten lost in the shuffle or your gifts been “combined” into one? You are SPECIAL and deserve to be recognized. Send your loved ones a gentle reminder that not only is your birthday coming up, but that this year you want a gift that is as great as you are! Join ICA’s Birthday club and donate your birthday to help support IC awareness, education, and research. Joining is easy. Simply create a personalized fundraising webpage and send out some emails asking for donations to ICA in lieu of traditional gifts. We even take care of your thank you notes by sending your donors an email acknowledgement for their tax-deductible contribution. What are you waiting for? Blow out those candles and make your wish to blow out the flames of IC. #BlowOutIC
Hot Topics from ICA’s Online Support Community
ICA’s Online Support Community is a place of peace, hope, and support and provides comfort for patients, family members, friends, and healthcare professionals in search of better understanding the impact of IC. Below is a list of some current hot topics. Join the growing ICA Online Support Community, where you can be connected to thousands of other people experiencing similar symptoms, situations, experiences, and emotions.
ICA Facebook Page “Post of the Week”
10 Reminders for Facing the New Year with a Chronic Illness – Some great advice here! Make sure you’re taking care of you!! Read the responses to this post by joining ICA’s Facebook community. With over 30,000 followers currently using this Facebook community, support is just a click away.
ICA Healthcare Provider Registry
For many people with interstitial cystitis (IC), an effective treatment plan requires a team approach, including urologists and other physicians, nurse practitioners, physical therapists, dietitians, and counselors. The ICA Healthcare Provider Registry includes clinicians who have agreed to be a referral source for IC patients. Any registered user of www.ichelp.org has access to this tool. Do you know of other healthcare providers who treat IC patients? Are you a healthcare provider that treats patients with IC and want to be included in the ICA’s Healthcare Provider Registry? Email your name, suffix, specialty, practice name, address, phone number, and website URL to ICAmail@ichelp.org with your request to be included in the ICA Healthcare Provider Registry.
- Physical Therapist – Chicago, IL
- Physical Therapist – Portland, OR
- Urogynecologist – Boca Raton, FL
- MD – Pendleton, OR
- Urologist – Smyrna, TX
ICA is pleased to provide you with a list of IC, painful bladder syndrome (PBS), and chronic pelvic pain support groups in the United States and around the world. Go to www.ichelp.org/us-support-groups to log in and search for a support group in your area.
- South Jersey IC Support Group – Cherry Hill, NJ – January 14
- Phone Support Only – Dedham, MA
- Phone Support Only – Springfield, VA
Do you run an IC support group? If so, please share your information with us so we can post it on the ICA Support Group page. Want to publicize your next group meeting? Please email your information to firstname.lastname@example.org 3-4 weeks prior to the meeting date.
ICA Quick Tip:
A lot of people are trying to keep their New Year’s resolutions, whether it’s to eat healthier, exercise more often, save money, or manage stress. That can be hard to do when you have a chronic illness like IC. ICA is here to help! Read more about how you can better manage these lifestyle changes on ICA’s Living with IC page.
Revised Thursday, January 12th, 2017