Interstitial Cystitis (IC) & Chronic Pelvic Pain News

Thanks to everyone for their very generous donations to the ICA. We are so very grateful and privileged to work on behalf of such a tremendous community. Please keep them coming and we will continue marching on…

Top IC Stories:

Make it a Life-changing Year

Row of colorful birthday cupcakes isolated on a white background

Make this year the best year ever by donating your birthday to help Conquer IC. The concept is simple. Join ICA’s Birthday Club and when someone asks you what you want for your birthday, tell them you want to CONQUER IC. All you need to do is create a personal fundraising page and ask your friends and family to donate to ICA’s awareness, education, and advocacy efforts. Allow your loved ones to make a huge impact on your life and the millions of others who struggle with IC every day. In addition, for every dollar you raise, you will get a soft credit that goes toward your donor resource level. The more your friends and family give, the more resources you’ll have access to. That is a gift that keeps on giving! What are you waiting for? Create your page, send out your emails, and make your birthday wish to change lives! Pledge your birthday to IC today! #BlowOutIC

pledge-your-birthday-button

Hot Topics from ICA’s Online Support Community

ICA’s Online Support Community is a place of peace, hope, and support and provides comfort for patients, family members, friends, and healthcare professionals in search of better understanding the impact of IC. Below is a list of some current hot topics. Join the growing ICA Online Support Community, where you can be connected to thousands of other people experiencing similar symptoms, situations, experiences, and emotions.

ICA Facebook Page “Post of the Week”

IC can be severely painful and incapacitating and may require aggressive pain management medicines when more conservative approaches fail. Learn more about IC and pain management. Read the responses to this post by joining ICA’s Facebook community. With over 30,000 followers currently using this Facebook community, support is just a click away.

ICA Healthcare Provider Registry

For many people with interstitial cystitis (IC), an effective treatment plan requires a team approach, including urologists and other physicians, nurse practitioners, physical therapists, dietitians, and counselors. The ICA Healthcare Provider Registry includes clinicians who have agreed to be a referral source for IC patients. Any registered user of www.ichelp.org has access to this tool. Do you know of other healthcare providers who treat IC patients? Are you a healthcare provider that treats patients with IC and want to be included in the ICA’s Healthcare Provider Registry? Email your name, suffix, specialty, practice name, address, phone number, and website URL to ICAmail@ichelp.org with your request to be included in the ICA Healthcare Provider Registry.

Latest Updates:

  • Urogynecologist – Boca Raton, FL
  • MD – Pendleton, OR
  • Urologist – Smyrna, TX
  • Urologist – Phillip Hanno, MD – Moved to Stanford, Palo Alto, CA

IC Support Group Updates

  • Support Group – Rhode Island, NY – January 11
  • Support Group – Monterey, CA – December 10
  • Phone Support Only – Dedham, MA
  • Phone Support Only – Springfield, VA

Do you run an IC support group? If so, please share your information with us so we can post it on the ICA Support Group page. Want to publicize your next group meeting? Please email your information to icamail@ichelp.org 3-4 weeks prior to the meeting date.

ICA Quick Tip:

giftHonor a Loved One This Holiday Season

Looking for a unique way to make a special gift? Consider making a donation to ICA as a tribute or in honor of someone important to you . . . a loved one, a friend, a caregiver, a family member, a favorite physician, nurse, physical therapist, etc.

When making your donation online, be sure to include, the name of the person you’re honoring and who we can notify of your thoughtfulness (the dollar amount of your gift is kept confidential).

 

Revised Thursday, December 8th, 2016