ICA eNews December 23, 2016
Interstitial Cystitis (IC) & Chronic Pelvic Pain News
Thanks to everyone for their very generous donations to the ICA. We are so very grateful and privileged to work on behalf of such a tremendous community. Please keep them coming and we will continue marching on…
- Interstitial Cystitis Featured in CosmopolitanUK
- Study Seeking Men and Women Who Suffer from Urologic Chronic Pelvic Pain
The Latest in IC Research:
- Spinal Nerve Cells May Play a Role in Pain Related to IC/BPS
- Pulsed Radiofrequency May Provide Relief When Other IC Treatments Fail
- Coordinated Care of Bladder, Gut, and Brain May Lead to Treatment Success
- Platelet-Rich Plasma Instillation Does Not Suppress IC-Related Findings in Rats
- Research Illustrates Multiple Underlying Factors Contributing to Development of IC/BPS
- Key IC/BPS Developments in 2016: Urinary Biomarkers, Botulinum Toxin, and More
- Microbiome May Be Implicated in Urinary Tract Diseases
I Choose ICA!
Hot Topics from ICA’s Online Support Community
ICA’s Online Support Community is a place of peace, hope, and support and provides comfort for patients, family members, friends, and healthcare professionals in search of better understanding the impact of IC. Below is a list of some current hot topics. Join the growing ICA Online Support Community, where you can be connected to thousands of other people experiencing similar symptoms, situations, experiences, and emotions.
- Burning pain
- Trying Interstim in a month, please advise, don’t know what to expect.
- IC and pregnancy
ICA Facebook Page “Post of the Week”
From an IC patient “I’m not really sure how long I’ve had IC. But was just diagnosed a month ago, can IC affect your hormones? I’m ok until it’s close to my period and I seem to have the flare up kick in and it’s rough I’m nauseated tired lethargic is a better word, emotional urgency kicks in big time and it’s like I have a bad UTI burning and just very uncomfortable. I also have a very heavy feeling in my lower abdomen. Learn more about what can cause IC flares. Read the responses to this post by joining ICA’s Facebook community. With over 30,000 followers currently using this Facebook community, support is just a click away.
ICA Healthcare Provider Registry
For many people with interstitial cystitis (IC), an effective treatment plan requires a team approach, including urologists and other physicians, nurse practitioners, physical therapists, dietitians, and counselors. The ICA Healthcare Provider Registry includes clinicians who have agreed to be a referral source for IC patients. Any registered user of www.ichelp.org has access to this tool. Do you know of other healthcare providers who treat IC patients? Are you a healthcare provider that treats patients with IC and want to be included in the ICA’s Healthcare Provider Registry? Email your name, suffix, specialty, practice name, address, phone number, and website URL to ICAmail@ichelp.org with your request to be included in the ICA Healthcare Provider Registry.
- Urogynecologist – Boca Raton, FL
- MD – Pendleton, OR
- Urologist – Smyrna, TX
- Urologist – Phillip Hanno, MD – Moved to Stanford, Palo Alto, CA
- Support Group – Rhode Island – January 11
- Phone Support Only – Dedham, MA
- Phone Support Only – Springfield, VA
Do you run an IC support group? If so, please share your information with us so we can post it on the ICA Support Group page. Want to publicize your next group meeting? Please email your information to firstname.lastname@example.org 3-4 weeks prior to the meeting date.
ICA Quick Tip:
It’s the most wonderful time of the year…which means lots of traveling, parties, and food! Here are some tips to alleviate worries and help you enjoy celebrating with family and friends:
- Try to keep your IC flares to a minimum by following the IC diet throughout the holiday season.
- Let the party host know about your dietary restrictions in advance. Don’t assume that they’ll remember.
- Eat your “safe” foods before leaving the house…and pack some to take with you.
- Ask the host about ingredients and to see food labels, if possible.
- Let the host know that you may have to skip the party or leave early if you have an IC flare.
- Read up on ICA’s travel tips.
- Find an escape or a quiet place to sit when things get overwhelming.
- Make sure you get lots of rest!
Revised Tuesday, December 20th, 2016