Interstitial Cystitis (IC) & Chronic Pelvic Pain News

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The Latest in IC Research:

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Hot Topics from ICA’s Online Support Community

ICA’s Online Support Community is a place of peace, hope, and support and provides comfort for patients, family members, friends, and healthcare professionals in search of better understanding the impact of IC. Below is a list of some current hot topics. Join the growing ICA Online Support Community, where you can be connected to thousands of other people experiencing similar symptoms, situations, experiences, and emotions.

ICA Facebook Page “Post of the Week”

From an IC patient “I’m not really sure how long I’ve had IC. But was just diagnosed a month ago, can IC affect your hormones? I’m ok until it’s close to my period and I seem to have the flare up kick in and it’s rough I’m nauseated tired lethargic is a better word, emotional urgency kicks in big time and it’s like I have a bad UTI burning and just very uncomfortable. I also have a very heavy feeling in my lower abdomen. Learn more about what can cause IC flares. Read the responses to this post by joining ICA’s Facebook community. With over 30,000 followers currently using this Facebook community, support is just a click away.

ICA Healthcare Provider Registry

For many people with interstitial cystitis (IC), an effective treatment plan requires a team approach, including urologists and other physicians, nurse practitioners, physical therapists, dietitians, and counselors. The ICA Healthcare Provider Registry includes clinicians who have agreed to be a referral source for IC patients. Any registered user of www.ichelp.org has access to this tool. Do you know of other healthcare providers who treat IC patients? Are you a healthcare provider that treats patients with IC and want to be included in the ICA’s Healthcare Provider Registry? Email your name, suffix, specialty, practice name, address, phone number, and website URL to ICAmail@ichelp.org with your request to be included in the ICA Healthcare Provider Registry.

Latest Updates:

  • Urogynecologist – Boca Raton, FL
  • MD – Pendleton, OR
  • Urologist – Smyrna, TX
  • Urologist – Phillip Hanno, MD – Moved to Stanford, Palo Alto, CA

IC Support Group Updates

  • Support Group – Rhode Island – January 11
  • Phone Support Only – Dedham, MA
  • Phone Support Only – Springfield, VA

Do you run an IC support group? If so, please share your information with us so we can post it on the ICA Support Group page. Want to publicize your next group meeting? Please email your information to icamail@ichelp.org 3-4 weeks prior to the meeting date.

ICA Quick Tip:

It’s the most wonderful time of the year…which means lots of traveling, parties, and food! Here are some tips to alleviate worries and help you enjoy celebrating with family and friends:

  1. Try to keep your IC flares to a minimum by following the IC diet throughout the holiday season.
  2. Let the party host know about your dietary restrictions in advance. Don’t assume that they’ll remember.
  3. Eat your “safe” foods before leaving the house…and pack some to take with you.
  4. Ask the host about ingredients and to see food labels, if possible.
  5. Let the host know that you may have to skip the party or leave early if you have an IC flare.
  6. Read up on ICA’s travel tips.
  7. Find an escape or a quiet place to sit when things get overwhelming.
  8. Make sure you get lots of rest!

 

Revised Tuesday, December 20th, 2016