Interstitial Cystitis (IC) & Chronic Pelvic Pain News

Thanks to everyone for their very generous donations to the ICA. We are so very grateful and privileged to work on behalf of such a tremendous community. Please keep them coming and we will continue marching on…

Top IC Stories:

A Message from ICA Leadership

On behalf of the ICA Board of Directors, staff, and volunteers, I wish to extend holiday greetings to you, your family, and friends. We are a community brought together, beyond our control, because of Interstitial Cystitis (IC). We are a community that needs to manage issues within our control in order to improve the lives of people living with IC.

I am privileged and honored to be the new Chairperson of the ICA Board of Directors. It’s an opportunity for me to give back to the organization that provided me the knowledge and tools to take control of my life, following my IC diagnosis 18 years ago.

ICA is very grateful for donations enabling ICA to reach millions of people with IC who have benefited from the information, research and services that contributions help to fund. I know I personally benefited once I found the ICA website, participated in forums, tried the IC diet, and found a community that understood my journey, and advocated on behalf of IC patients.

ICA is determined to improve the lives of everyone living with bladder pain, urinary urgency, and/or urinary frequency, and is committed to eventually conquer IC. See the infographic to the right highlighting how ICA used donations in 2017 to support IC research, educate the IC community and public about IC, advocate on behalf of IC patients, support IC patients and their caregivers, and increase awareness about IC.

We ask you to support our shared efforts in 2018 through a year-end, tax-deductible donation to ICA. In appreciation of your donation, the ICA Board of Directors will match all year-end donations up to $50,000.

Your gift helps provide comfort, research, support, and awareness and allows us to build upon the results that we have successfully accomplished.

Warm wishes,
Irma Rodriguez
ICA Board Chair

P.S. Donations made by year end will be matched up to $50,000, thanks to the generosity of the ICA Board of Directors. Donate today online at http://support.ichelp.org/ICimpact.

ICA is a non-profit, 501 (c)(3) organization, EIN 13-3292137

Hot Topics from ICA’s Online Support Community

ICA’s Online Support Community is a place of peace, hope, and support and provides comfort for patients, family members, friends, and healthcare professionals in search of better understanding the impact of IC. Below is a list of some current hot topics. Join the growing ICA Online Support Community, where you can be connected to thousands of other people experiencing similar symptoms, situations, and emotions.

ICA Facebook Page “Post of the Week”

15 Memes That Perfectly Describe Living With a Chronic Illness During the Holidays

Any more to share with the IC community?

Read the responses to this post by joining ICA’s Facebook community. With over 30,000 followers currently using this Facebook community, support is just a click away.

ICA Healthcare Provider Registry

For many people with interstitial cystitis (IC), an effective treatment plan requires a team approach, including urologists and other physicians, nurse practitioners, physical therapists, dietitians, and counselors. The ICA Healthcare Provider Registry includes clinicians who have agreed to be a referral source for IC patients. Any registered user of www.ichelp.org has access to this tool. Do you know of other healthcare providers who treat IC patients? Are you a healthcare provider who treats patients with IC and wants to be included in the ICA’s Healthcare Provider Registry? Email your name, suffix, specialty, practice name, address, phone number, and website URL to ICAmail@ichelp.org with your request to be included in the ICA Healthcare Provider Registry.

Latest Updates:

  • Clinical Psychologist – Cincinnati, OH
  • Obstetrics, Gynecology – LaGrange, GA
  • Psychotherapist – Santa Fe, NM
  • Physical Therapist/Therapeutic Pain Specialist – Burnsville, MN
  • Physician Assistant – Worthington, OH

IC Support Group Updates

ICA is pleased to provide you with a list of IC, painful bladder syndrome (PBS), and chronic pelvic pain support groups in the United States and around the world. Go to www.ichelp.org/us-support-groups to log in and search for a support group in your area.

  • Phone and Email Support – Rhode Island

Do you run an IC support group? If so, please share your information with us so we can post it on the ICA Support Group page. Want to publicize your next group meeting? Please email your information to icamail@ichelp.org 3-4 weeks prior to the meeting date.

Revised Wednesday, December 13th, 2017