Interstitial Cystitis/Bladder Pain Syndrome (IC/BPS) News

Thanks to everyone for their very generous donations to the ICA. We are so very grateful and privileged to work on behalf of such a tremendous community. Donations provide the resources for the ICA to continue on its mission.

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Give Hope. Change lives. Donate today to help the ICA continue to provide awareness, research, and educational events for those affected by IC/BPS. ICA is the only non-profit IC/BPS association and is a 501(c)(3) organization, EIN 13-3292137.

ICA Offers Many Places of Support for Your IC/BPS Journey:

ICA’s IC/BPS Facebook Support Group

Have you joined ICA’s “private” Facebook support group for the interstitial cystitis/bladder pain syndrome (IC/BPS) community? We are building an engaged group for Facebook users who are looking for a place to connect with others who are living with IC/BPS and their loved ones.

This group, established in April of last year, is moderated by the Interstitial Cystitis Association and currently has over 2,100 members. We will be adding resources that will help you on your IC/BPS journey.

We hope that you will join us! Go to https://www.facebook.com/groups/ICBPSGroup/ or search Facebook for Interstitial Cystitis Association IC/BPS Support Group.

Let’s support one another!

ICA’s Online Support Community

ICA’s Online Support Community is a place of peace, hope, and support and provides comfort for patients, family members, friends, and healthcare professionals in search of better understanding the impact of IC.

This group, established in 2016, is moderated by Inspire and currently has over 25,000 members. Don’t miss out on the latest discussions from the ICA community. Below is a list of some current topics:

Join the growing ICA Online Support Community, where you can be connected to thousands of other people experiencing similar symptoms, situations, and emotions.

ICA Facebook Page

Click here to view this post on ICA’s Facebook page. With over 40,000 followers currently using this Facebook community, support is just a click away.

IC/BPS Support Groups

ICA is pleased to provide you with a list of IC, bladder pain syndrome (BPS), and chronic pelvic pain support groups in the United States. Go to www.ichelp.org/us-support-groups to search for a support group in your area.

Do you run an IC/BPS support group? If so, please share your information with us so we can post it on the ICA Support Group page. Want to publicize your next group meeting? Please email your information to icamail@ichelp.org 3-4 weeks prior to the meeting date.

ICA Healthcare Provider Registry

For many people with interstitial cystitis/bladder pain syndrome (IC/BPS), an effective treatment plan requires a team approach, including urologists and other physicians, nurse practitioners, physical therapists, dietitians, and counselors. The ICA Healthcare Provider Registry includes clinicians who have agreed to be a referral source for IC/BPS patients. Do you know of other healthcare providers who treat IC/BPS patients? Are you a healthcare provider who treats patients with IC/BPS and wants to be included in the ICA’s Healthcare Provider Registry? Email your name, suffix, specialty, practice name, address, phone number, and website URL to ICAmail@ichelp.org with your request to be included in the ICA Healthcare Provider Registry.

Revised Thursday, August 5th, 2021