ICA eNews August 19, 2016
Interstitial Cystitis (IC) & Chronic Pelvic Pain News
Thanks to everyone for their very generous donations to the ICA. We are so very grateful and privileged to work on behalf of such a tremendous community. Please keep them coming and we will continue marching on…
Top IC Stories:
- Discussing IC – Short Survey
- Now is the Time to Meet Locally with Your Legislators
- ICA Update Article Index
- Coming Soon – The Interstitial Cystitis Solution
- Supporting ICA: Medical History – Reimagined
Navigating Disability – A Must Have ICA Update
Want to increase your chances of having a successful disability claim? Here’s the cover for the Summer 2016 issue of the ICA Update that you DON’T want to miss! If you have ever contemplated applying for disability, you NEED a copy of this issue. Luckily, if you make a donation commitment of $50 or more you will have online access to this issue as soon as it is published.
If it’s easier for you to make your donation over time, consider joining ICA’s Angel Society and make a monthly gift today of $10, $20, or $30 or more. By making a regular monthly donation, you’ll obtain your halo and join others in ICA’s Angel Society. Consider saving a few dollars by making your favorite specialty drink at home, renting a movie rather than going to see one, or fixing yourself a nice dinner at home rather than eating out and redirect those savings each month to ICA. Every gift matters and the convenience of monthly giving multiplies your impact for so many. Your credit card will be charged the amount you designate on the same date each month. Your once-a-month generosity will work every day to ensure early diagnosis and optimal care with dignity for people affected by IC.
In this issue:
- ICA News
- Navigating Disability
- Doctors, IC & Disability
- Working with IC
- Doctors Forum: PT as Part of the IC Solution
- Disability, Not Identity
Hot Topics from ICA’s Online Support Community
ICA’s Online Support Community is a place of peace, hope, and advice providing comfort for patients, family members, friends, and healthcare professionals looking for ways to better understand the impact of IC. It provides strength in numbers for those living with IC. Below is a list of some current hot topics. Join us in the growing ICA Online Support Community, where you can be connected to hundreds of other people experiencing similar symptoms, situations, experiences, and emotions.
- Post distention surgery
- So does anyone ever wish they could just escape to a magical place??
- What Type of Water and Why
ICA Facebook Page “Post of the Week”
An IC patient posted, “Does anyone have moderate to severe right side pain that radiates from front to back?” Although the hallmarks of IC include frequency, urgency and pelvic pain/pressure, many patients also experience less common symptoms. Read the responses to her post by joining the ICA’s Facebook community. With over 30,000 members currently using this Facebook community, it is possible that you will find that your symptoms are not so uncommon after all!
ICA Healthcare Provider Registry
For many people with interstitial cystitis (IC), an effective treatment plan requires a team approach, including urologists and other physicians, nurse practitioners, physical therapists, dietitians, and counselors. The ICA Healthcare Provider Registry includes clinicians who have agreed to be a referral source for IC patients. Any registered user of https://www.ichelp.org/ has access to this tool. Do you know of other healthcare providers who treat IC patients? Are you a healthcare provider that treats patients with IC and want to be included in the ICA’s Healthcare Provider Registry? Email your name, suffix, specialty, practice name, address, phone number, and website URL to ICAmail@ichelp.org with your request to be included in the ICA Healthcare Provider Registry.
- Physical Therapy – Crested Butte, CO
- Gynecology – Lovington, NM
IC & Chronic Pain Events
- For Grace’s 9th Annual Women In Pain Conference – September 23
- Support Group – Rhode Island – September 21
- Support Group – South Jersey – September 10
- Support Group – South Miami, FL – September 10
- Support Group – Miami, FL – September 11
- Phone Support Only – Dedham, MA
Do you run an IC support group? If so, please share your information with us so we can post it on the ICA Support Group page. Want to publicize your next group meeting? Please email your information to email@example.com 3-4 weeks prior to the meeting date.
ICA Quick Tip:
It’s almost BACK TO SCHOOL time! To the delight of parents and the horror of children, school is right around the corner. Make the transition into this busy time of year easier by becoming an ICA donor at the Supporter Level of $50 or more and get access to 21 easy IC Plate™ meals and nutrition information the whole family will enjoy.
Put the fun back into food and take the worry out of those three dreaded words, “What’s for dinner?” For more diet related information check out ICA’s new diet section and start taking back control of your life today!
Revised Thursday, August 18th, 2016