ICA eNews April 3, 2020
Interstitial Cystitis (IC) & Chronic Pelvic Pain News
Thanks to everyone for their very generous donations to the ICA. We are so very grateful and privileged to work on behalf of such a tremendous community. Please keep them coming and we will continue marching on…
Top IC Stories:
- ICA Advocacy Day is Going Virtual!
- IC and COVID-19 – A message from the ICA Medical Advisory Board
- Calling for Applications for ICA Board of Directors
- IC Awareness Walks Rescheduled
- ICA is Here to Support You!
- Sign the Petition!
- ICA Signs Letter to Protect Patient Community
- “Pain Connection Live” Call-in Support Groups
- Join the ICA Guardian Society
- Study Seeking Men and Women Who Suffer from Urologic Chronic Pelvic Pain
Join the Fight for People Living with IC!
In these uncertain times we know it’s not always easy to give, but if you’re in the position to donate today it will help ICA stay strong for those that need our support more than ever. ICA is the only non-profit IC association and is a 501 (c)(3) organization, EIN 13-3292137.
Hot Topics from ICA’s Online Support Community
ICA’s Online Support Community is a place of peace, hope, and support and provides comfort for patients, family members, friends, and healthcare professionals in search of better understanding the impact of IC. Below is a list of some current hot topics.
- New to Group and weaning off of Elmiron after 16 years
- Recently Diagnosed
- Anyone else had trouble with Miralax burning their bladder?
Join the growing ICA Online Support Community, where you can be connected to thousands of other people experiencing similar symptoms, situations, and emotions.
ICA Facebook Page “Post of the Week”
ICA Healthcare Provider Registry
For many people with interstitial cystitis (IC), an effective treatment plan requires a team approach, including urologists and other physicians, nurse practitioners, physical therapists, dietitians, and counselors. The ICA Healthcare Provider Registry includes clinicians who have agreed to be a referral source for IC patients. Any registered user of www.ichelp.org has access to this tool. Do you know of other healthcare providers who treat IC patients? Are you a healthcare provider who treats patients with IC and wants to be included in the ICA’s Healthcare Provider Registry? Email your name, suffix, specialty, practice name, address, phone number, and website URL to ICAmail@ichelp.org with your request to be included in the ICA Healthcare Provider Registry.
IC Support Groups
ICA is pleased to provide you with a list of IC, painful bladder syndrome (PBS), and chronic pelvic pain support groups in the United States. Go to www.ichelp.org/us-support-groups to log in and search for a support group in your area.
Do you run an IC support group? If so, please share your information with us so we can post it on the ICA Support Group page. Want to publicize your next group meeting? Please email your information to firstname.lastname@example.org 3-4 weeks prior to the meeting date.
Revised Thursday, April 2nd, 2020