ICA eNews April 28, 2017
Interstitial Cystitis (IC) & Chronic Pelvic Pain News
Thanks to everyone for their very generous donations to the ICA. We are so very grateful and privileged to work on behalf of such a tremendous community. Please keep them coming and we will continue marching on…
Top IC Stories:
- ICA at the AUA Patient Advocacy Hub
- ICA Calling for Applications for Board of Directors
- What is a Disabled Person Supposed to Look Like?
- Study Seeking Men and Women Who Suffer from Urologic Chronic Pelvic Pain
I See IC, do you?
Your donation to the ICA helps bring awareness, advocacy, research, and healthier lives for IC patients. Honor a loved one or patient today.
Hot Topics from ICA’s Online Support Community
ICA’s Online Support Community is a place of peace, hope, and support and provides comfort for patients, family members, friends, and healthcare professionals in search of better understanding the impact of IC. Below is a list of some current hot topics. Join the growing ICA Online Support Community, where you can be connected to thousands of other people experiencing similar symptoms, situations, and emotions.
- Medical marijuana
- MAJOR IC Flare and Controversy Over Hormone Treatment
- Is blood in urine typical in IC?
ICA Facebook Page “Post of the Week”
5 Tough Choices You Face When You’re Chronically Ill or in Pain – “Do we keep our health problems private or do we talk openly about them?” Talking openly about IC is a way to raise IC awareness!!
ICA Healthcare Provider Registry
For many people with interstitial cystitis (IC), an effective treatment plan requires a team approach, including urologists and other physicians, nurse practitioners, physical therapists, dietitians, and counselors. The ICA Healthcare Provider Registry includes clinicians who have agreed to be a referral source for IC patients. Any registered user of www.ichelp.org has access to this tool. Do you know of other healthcare providers who treat IC patients? Are you a healthcare provider who treats patients with IC and wants to be included in the ICA’s Healthcare Provider Registry? Email your name, suffix, specialty, practice name, address, phone number, and website URL to ICAmail@ichelp.org with your request to be included in the ICA Healthcare Provider Registry.
- Physical Therapist – Charlottesville, VA
- Physical Therapist – Weston, FL
- Physical Therapist – Santa Maria, CA
- Registered Dietitian – Santa Maria, CA
- Registered Dietitian Nutritionist – Smyrna, TN
ICA is pleased to provide you with a list of IC, painful bladder syndrome (PBS), and chronic pelvic pain support groups in the United States and around the world. Go to www.ichelp.org/us-support-groups to log in and search for a support group in your area.
- IC Support Group – Rhode Island – Apr 29
Do you run an IC support group? If so, please share your information with us so we can post it on the ICA Support Group page. Want to publicize your next group meeting? Please email your information to firstname.lastname@example.org 3-4 weeks prior to the meeting date.
Revised Friday, April 28th, 2017