ICA eNews April 15, 2016
Interstitial Cystitis (IC) & Chronic Pelvic Pain News
Thanks to everyone for their very generous donations to the ICA. We are so very grateful and privileged to work on behalf of such a tremendous community. Please keep them coming and we will continue marching on…
Top IC Stories:
- Calling All IC Advocates for National Call-In Day!
- Long-Awaited National Pain Strategy Released
- Study Seeking Women Who Suffer from IC with IC/PBS
- Study Seeking to Evaluate the Effectiveness of Cimzia in Females with Interstitial Cystitis/Bladder Pain Syndrome
- 2015 Annual Report & Audited Financial Statements Now Available Online
- New Voices of Hope!
Hot Topics from ICA’s Online Support Community
ICA’s Online Support Community is a place of peace, hope, and advice providing comfort for patients, family members, friends, and healthcare professionals looking for ways to better understand the impact of IC. It provides strength in numbers for those living with IC. Below is a list of some current hot topics. Join us in the growing ICA Online Support Community, where you can be connected to hundreds of other people experiencing similar symptoms, situations, experiences, and emotions.
- Your Opinions on “Like” and Reaction Buttons, With Poll
- Feel like giving up
- I REALLY hate Doctors Too/Two (and three, and four, and more)
ICA Facebook Page “Question of the Week”
ICA Healthcare Provider Registry Additions
For many people with interstitial cystitis (IC), an effective treatment plan requires a team approach, including urologists and other physicians, nurse practitioners, physical therapists, dietitians, and counselors. The ICA Healthcare Provider Registry includes clinicians who have agreed to be a referral source for IC patients. Below is a list of recent additions to the registry.
The ICA Healthcare Provider Registry does not include every healthcare provider who treats people with IC. Do you know of other healthcare providers who treat IC patients? Are you a healthcare provider that treats patients with IC and want to be included in the ICA’s Healthcare Provider Registry? Email your name, specialty, practice name, address, phone number, and website URL to ICAmail@ichelp.org giving your permission to be included in the ICA Healthcare Provider Registry.
- Physical Therapist – Clearwater, FL
- Urogynecology / Gynecological Surgery – San Francisco, CA
- Urology NP – Coeur d Alene, ID
IC & Chronic Pain Events
- Weekend Educational Retreat for Women and Men with Chronic Pelvic Pain
- PELVIC HEALTH 101
- IC Support Group Updates
- Miami Support Group – May 14
- New IC Support Group – Monterey, CA
- New IC Support Group – Charlotte, NC
- New IC Support Group – Saint Louis, MO
Earn Your Halo
Join ICA’s Angel Society and help fight IC year-round by becoming a monthly donor. Monthly giving is easy, its automatic, it helps cut down on administrative costs, and – most importantly – it sustains critical IC research, education programs, and patient advocacy services that make a real difference in the lives of those with IC.
ICA Quick Tip:
Some doctors recommend drinking water with a tablespoon of sodium bicarbonate (baking soda) to help sooth an IC flare (check with your doctor before trying this). But did you know that baking soda has many other medicinal purposes?
Revised Thursday, April 14th, 2016