Interstitial Cystitis (IC) & Chronic Pelvic Pain News

Thanks to everyone for their very generous donations to the ICA. We are so very grateful and privileged to work on behalf of such a tremendous community. Please keep them coming and we will continue marching on…

Top IC Stories:

Many Thanks to Our Generous Donors

We would like to recognize our supporters. Please click here to see the list of donors who give $100 or more.

Hot Topics from ICA’s Online Support Community

ICA’s Online Support Community is a place of peace, hope, and support and provides comfort for patients, family members, friends, and healthcare professionals in search of better understanding the impact of IC. Below is a list of some current hot topics. Join the growing ICA Online Support Community, where you can be connected to thousands of other people experiencing similar symptoms, situations, and emotions.

ICA Facebook Page “Post of the Week”

From an IC patient:

“I am 32 years old and really struggling with IC. My husband and I really want to get pregnant but every time I try I am in utter agony. Anybody have any suggestions? Sometimes it is easy to get down but I am trying to stay positive. I start PT the 19th and have high hopes that it will help me. Any advice is appreciated.” Read more about IC and intimacy at www.ichelp.org/icandintimacy

Read the responses to this post by joining ICA’s Facebook community. With over 30,000 followers currently using this Facebook community, support is just a click away.

ICA Healthcare Provider Registry

For many people with interstitial cystitis (IC), an effective treatment plan requires a team approach, including urologists and other physicians, nurse practitioners, physical therapists, dietitians, and counselors. The ICA Healthcare Provider Registry includes clinicians who have agreed to be a referral source for IC patients. Any registered user of www.ichelp.org has access to this tool. Do you know of other healthcare providers who treat IC patients? Are you a healthcare provider who treats patients with IC and wants to be included in the ICA’s Healthcare Provider Registry? Email your name, suffix, specialty, practice name, address, phone number, and website URL to ICAmail@ichelp.org with your request to be included in the ICA Healthcare Provider Registry.

Latest Updates:

  • Physical Therapist – Charlottesville, VA
  • Physical Therapist – Weston, FL
  • Physical Therapist – Santa Maria, CA
  • Registered Dietitian – Santa Maria, CA
  • Registered Dietitian Nutritionist – Smyrna, TN

IC Support Group Updates

ICA is pleased to provide you with a list of IC, painful bladder syndrome (PBS), and chronic pelvic pain support groups in the United States and around the world. Go to www.ichelp.org/us-support-groups to log in and search for a support group in your area.

  • IC Support Group – Rhode Island – Apr 29

Do you run an IC support group? If so, please share your information with us so we can post it on the ICA Support Group page. Want to publicize your next group meeting? Please email your information to icamail@ichelp.org 3-4 weeks prior to the meeting date.

ICA Quick Tip:

Spring is in the air! Your allergies could be causing your IC flares. Many people with IC notice that that the sneezing, itchy eyes, and runny nose brought on by seasonal allergies worsen IC symptoms. IC experts have noticed too, commenting in courses and meetings that they get more calls and more patients coming into the office with flares when the snow is gone and the trees and flowers bloom. Research also supports a higher prevalence of seasonal allergies in IC patients compared with the general public. Read more at: www.ichelp.org/allergies-and-sensitivities

Revised Friday, April 14th, 2017