ICA eNews April 1, 2016
Interstitial Cystitis (IC) & Chronic Pelvic Pain News
Thanks to everyone for their very generous donations to the ICA. We are so very grateful and privileged to work on behalf of such a tremendous community. Please keep them coming and we will continue marching on…
Latest in IC Research:
- Bladder Pain Linked to Changes in Brain Function
- JNK Pathway Could Be Implicated in Development of IC/BPS
- Quitting Smoking Can Help Reduce IC Symptoms
- Best Approach to Managing Bladder Pain: Patient Centered and Collaborative Approach
- Middle-Aged Women With IC May Be at Higher Risk of Hysterectomy
- Female Urologic Pain in Adulthood May Be Related to Stresses Early in Life
- Hormone Used to Treat Infertility May Be a Potential Treatment Option for IC/BPS
- Novel Drug AQX-1125 Shows Early Promise in Moderate to Severe IC/BPS
- Meditation May Have Unique and Synergistic Pain-Relieving Properties, Investigators Say
- Bladder Instillation of Liposomes Promising in Patients With IC/BPS
- Study Seeking Women Who Suffer from IC with Hunner’s Lesions
FDA Drug Safety Communication: FDA warns about several safety issues with opioid pain medicines; requires label changes
Hot Topics from ICA’s Online Support Community
ICA’s Online Support Community is a place of peace, hope, and advice providing comfort for patients, family members, friends, and healthcare professionals looking for ways to better understand the impact of IC. It provides strength in numbers for those living with IC. Below is a list of some current hot topics. Join us in the growing ICA Online Support Community, where you can be connected to hundreds of other people experiencing similar symptoms, situations, experiences, and emotions.
- Total Abdominal Hysterectomy -freaking out, need help
- I Feel Like The Walking Dead, How Bout You?
- I’m having the interstim. Would love to know how others trials went…..
ICA Facebook Page “Question of the Week”
Sarah suffers from gastroparesis. Any other IC patients that share the same condition with Sarah that may be able to give her some advice or insight on living with both conditions?
Help us keep the conversation going!
ICA Healthcare Provider Registry Additions
For many people with interstitial cystitis (IC), an effective treatment plan requires a team approach, including urologists and other physicians, nurse practitioners, physical therapists, dietitians, and counselors. The ICA Healthcare Provider Registry includes clinicians who have agreed to be a referral source for IC patients. Below is a list of recent additions to the registry.
The ICA Healthcare Provider Registry does not include every healthcare provider who treats people with IC. Do you know of other healthcare providers who treat IC patients? Are you a healthcare provider that treats patients with IC and want to be included in the ICA’s Healthcare Provider Registry? Email your name, specialty, practice name, address, phone number, and website URL to ICAmail@ichelp.org giving your permission to be included in the ICA Healthcare Provider Registry.
- Physical Therapist – Portland, OR
- Physical Therapist – Vancouver, WA
- Physical Therapist – Centennial, CO
- Urogynecologist – Moultrie, GA
- Gynecologist – Jensen Beach, FL
IC & Chronic Pain Events
- NPR Here and Now Series Focuses on Chronic Pain Patients
- Weekend Educational Retreat for Women and Men with Chronic Pelvic Pain
- PELVIC HEALTH 101
- IC Support Group Updates
- New IC Support Group – Monterey, CA
- New IC Support Group – Charlotte, NC
- New IC Support Group – Saint Louis, MO
Don’t Miss the Next Issue of the ICA Update
Here’s a sneak peek at the cover for the Spring 2016 issue of the ICA Update that will be mailing in the next few weeks. If you haven’t already done so, make a donation commitment of $50 or more by April 3, to receive your personal copy. If it’s easier for you to make your donation over time, be an angel and consider making a monthly gift now of $10, $20, or $30 or more and be guaranteed to receive the next award winning ICA Update.
By making a regular monthly donation, you’ll obtain your halo and join others in ICA’s Angel Society. Consider saving a few dollars by making your favorite specialty drink at home, renting a movie rather than going to see one, or fixing yourself a nice dinner at home rather than eating out and redirect those savings each month to ICA. Every gift matters and the convenience of monthly giving multiplies your impact for so many. Your credit card will be charged the amount you designate on the same date each month. Your once-a-month generosity will work every day to ensure early diagnosis and optimal care with dignity for people affected by IC.
ICA Quick Tip: Spring Detox Recipe
Happy Salad ~ adapted from gourmandelle.com
It is called Happy Salad because it will make your body happy.
- 3 carrots, peeled
- ¼ to ⅓ of a head of green cabbage
- 5 green onions, sliced, white and light green parts only (decrease or omit if you are sensitive to onions)
- 1 crown of broccoli (one big cluster of florets…not the big giant head)
- 3 tablespoons maple syrup
- 2 teaspoons fresh grated or minced ginger (decrease to ½ teaspoon depending on sensitivity)
- 1 garlic clove, minced
- 1 teaspoon lemon zest
- juice from ½ a lemon (omit, use less, or replace with an IC friendly oil)
- salt and pepper, to taste
- ¼ cup sunflower seed kernels, or to taste
- In the bowl of a food processor pulse the cabbage until it is a very fine chop. Remove the cabbage to a large bowl. Process the carrots until they are chopped very fine and remove them to the same bowl. Process the broccoli until it is chopped very fine and remove it to the bowl containing the cabbage and carrots. Add the sliced green onions.
- In a small bowl, combine the maple syrup, ginger, garlic, lemon zest, lemon juice, salt and pepper. Whisk the dressing thoroughly and add it to the bowl containing the vegetables. Toss to combine. Sprinkle the sunflower seeds on top.
Revised Thursday, March 31st, 2016