Helpful Links & Organizations
More helpful resources for the IC/BPS community.Â
Related IC/BPS and Other Health Organizations
- Allergy and Asthma Foundation of America
- Alliance for Pelvic Pain
- American Academy of Family Physicians
- American Academy of Pain Management
- American Autoimmune Related Diseases Association
- American Chronic Pain Association
- American Urogynecological Association
- American Urological Association
- APTA Section on Women’s Health
- Association of Reproductive Health Professionals
- Awake in America
- Bladder and Bowel Foundation
- Brigham & Women’s Hospital
- Celiac Disease Foundation
- Centers for Disease Control and Prevention
- ClinicalTrials.gov
- Congress MegaVote
- Contact Your Congressperson
- Endometriosis Association
- FamilyDoctor.org
- Food Allergy Research and Education (FARE)
- Healthline
- Healthy Women
- International Adhesions Society (IAS)
- International Association for the Study of Pain
- International Foundation for Functional Gastrointestinal Disorders
- International Painful Bladder Association
- International Pelvic Pain Society
- International Society for the Study of BPS
- Kaiser
- Lupus Foundation of America
- Mayo Clinic
- MedicineNet
- Medline Plus
- Multidisciplinary Approach to the Study of Chronic Pelvic Pain (MAPP)
- My Invisible IC
- National Fibromyalgia & Chronic Pain Association
- National Fibromyalgia Partnership
- National Foundation for the Treatment of Pain
- National Headache Foundation
- National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
- National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
- National Institutes of Health
- National Kidney and Urologic Diseases Information Clearinghouse
- National Kidney Foundation
- National Library of Medicine
- National Organization for Rare Disorders
- National Pain Foundation
- National Vulvodynia Association
- Nurse Practitioners in Women’s Health
- Pain Connection
- Pain Treatment Topics
- PainWeek (CME/CE courses)
- Passeport Sante
- Pelvic Floor Disorders Network
- Pelvic Physiotherapy
- People’s Pharmacy
- Prostatitis Foundation
- PubMed
- P.U.R.E. H.O.P.E.
- Research America
- Research Portfolio Online Reporting Tool (RePORT)
- ResearchMatch
- Rx List: The Internet Drug Index
- Secret Suffering
- Sjogren’s Syndrome Foundation
- S.L.E. Lupus Foundation
- Society for Pudendal Neuralgia (SPuN)
- Society for Women’s Health Research
- Society of Urologic Nurses and Associates (SUNA)
- Solve ME/CFS Initiative (SMCI)
- Synapse
- The Cystitis & Overactive Bladder Foundation
- United Ostomy
- Urologic Chronic Pelvic Pain Syndrome Society (UCPPS)
- Urology Care Foundation
- UroToday
- UroToday – Urology Tube Video Channels
- WebMD
- WEBNET
- WomensHealth.gov
Related IC/BPS and Painful Bladder Syndrome Organizations Outside the US
- Africa: IC East Africa Naukuru Chapter jgmwangi2003@yahoo.com
- Argentina:ARACI (AsociaciĂłn Rosarina de Afectados de CI)
- Australia: Urological Society of Australia and New Zealand (USANZ)
- Austria: ICA Ă–sterreich e. V.
- Belgium: Interstitiële Cystitis Patiëntenvereniging België (ICPB)
- Canada: Association de la cystite interstitielle (CI) du Québec
- Czech Republic: Urologicka klinika VFN a 1. LF UK
- Denmark: IC foreningen
- France: Association Française de la Cystite Interstitielle (ci_france@hotmail.com)
- Germany: ICA Deutschland e.V.
- Italy: Associazione Italiana Cistite Interstiziale
- Japan: Comfortable Urology Network
- Mexico: Asociacion de Cistitis Intersticial Mexico
- Poland: Project Vulvodynia
- Netherlands: Interstitiele Cystitis Patientenvereniging (ICP)
- Spain: A.B.A.T.Y.C.I.
- Spain: AsociaciĂłn Catalana de Afectados de Cistitis Intersticial (ACACI)
- United Kingdom: COB Foundation
- Worldwide:International Painful Bladder Foundation