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Letters to Congress and the Administration Regarding COVID-19 Pandemic

During this time when the healthcare field and people living with chronic illness are in great need, the Interstitial Cystitis Association (ICA) has been asked to sign onto letters to Congress and the Administration, along with other patient organizations. We are asking them to provide much needed supplies and safety measures to continue to help those on the front lines fighting the COVID-19 pandemic; to bolster research and support education, and awareness activities for the chronic illness communities; and to support non-profit charitable assistance programs.

In the month of April, ICA has signed onto 6 letters:

  • A patient community organizational sign on letter to Congress requesting additional funding for CDC and NIH to address challenges posed by COVID-19. The organizations urged them to provide funding for public health and medical research activities. Specifically, we asked them to support targeted education and awareness activities on the coronavirus for chronic illness communities, and to bolster medical research that will go unfunded by nonprofits and other nongovernmental organizations due to the economic recession.
  • The American Lung Association and American Heart Association invited other organizations to sign onto a letter to the Administration regarding the urgent need for action to be taken to ensure adequate supply and distribution of personal protective equipment and ventilators. They ended up with over 200 groups on the letter. The letter is posted on the American Lung Association’s website.
  • Representatives Diana DeGette (D-CO) and Fred Upton (R-MI) are circulating a “Dear Colleague” letter among their fellow Members of Congress requesting that they sign onto a letter in support of $26 billion in COVID-19 relief to help sustain our nation’s federally funded research enterprise. Here is the draft Dear Colleague and the letter members of Congress will be asked to join.
  • A patient community sign on letter encouraging incorporation of the provisions of the Safe Step Act (H.R. 2279/S/ 2546) into any subsequent COVID-19 response legislation. This request would reign-in step therapy and fail first protocols during the pandemic.
  • A letter to Congress highlighting the importance of access to charitable assistance programs on behalf of tens of millions of Americans who are living with and managing illnesses – including chronic, rare, and life-threatening diseases, which help patients and their families afford health care. Access to charitable assistance is more important than ever during these unprecedented and challenging times.

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