Things Can Get Better!

My name is Jann and I am 72. About 25 years ago I began having increased frequency of urination, sometimes as often as every 15 minutes. At this same time, I began having pain reminiscent of a urinary tract infection. … Continued

IC Doesn’t Have Control Over My Life

My name is Amanda and I have had interstitial cystitis since I was 16 years old. I remember having a lot of pain in my hips and upper legs which was initially believed to be caused by practicing something I … Continued

You Are Not Alone

During my honeymoon in Mexico, the resort town where we were staying was slammed by a massive hurricane. The hotel was badly damaged and completely cut off – no power, no communications and no way out. I was stranded without … Continued

Don’t Give Up!

First of all, let me acknowledge that I have not been officially diagnosed with IC. That said, I am sure I have had IC for the last four years. The first specialist I consulted booked me for a cystoscopy, but … Continued

There is Hope!

My name is Sarah Sorbel. I’m 31 and I live in Orange County, CA. In January 2008 I was diagnosed with IC, followed by endometriosis in April. I have lived with pelvic pain since the age of 15, and bladder … Continued

On The Trail to Recovery

My name is Erica Welu and I live in Hill City, South Dakota. I was diagnosed with interstitial cystitis in 2006 while living in Sioux Falls, SD. Bladder infections began to plague me starting in high school. They would recur … Continued

I Know My Limitations

Twenty five years of IC has caused a lot of life changes. The most important lesson I’ve learned is that IC isn’t the most important thing in my life. When I was first told I had IC, like everyone else, … Continued

There’s No Better Advocate Than Yourself

My name is Marta and I suffered with interstitial cystitis and fibromyalgia and was on bed rest for years. After so much time spent in misery, I decided to do a little research about pain relief. The decision to be … Continued

My Nine Year Old Daughter is Living IC Symptom Free

My eight-year-old daughter developed symptoms of IC last year within a month after having dental sealants placed on her teeth to help prevent cavities. I knew the symptoms could only be IC, but the treatment she received at her pediatric … Continued

We Never Know What Tomorrow Brings

My name is Sharon Hicks. I am a 54-year-old female who was diagnosed with IC about five years ago, but I’ve had it for about ten years. In those ten years, I have been seen by eight different urologists and … Continued