ICA Reassures Me that I’m Not Alone

My IC story began in April 2014. After having painful periods for years and awful results from every other type of hormonal birth control, I tried the Skyla IUD with the hope that it would work and end the excruciating … Continued

Be Diligent & In Control

I am an IC patient and who went through about twenty years of problems, pain, and numerous cystoscopies before a doctor finally diagnosed IC. He had me try other unsuccessful medications prior to prescribing Elmiron. I’ve been on Elmiron nearly … Continued

Treatment is Different for Everyone

Hi, my name is Gina! I have been battling supposed UTIs since my late teens. The usual course of treatment was a regime of Bactrim (sulfamethoxazole/trimethoprim) until I developed an allergy to sulfa. This proved very inconvenient because I was … Continued

Please Seek Help Sooner

Hello! My name is Holly and I am from New Zealand and am 17 years of age. A gynecologist recently diagnosed me with IC, though I had been experiencing pain since late 2013. One morning I awoke and had to … Continued

Reach Out for Help

I’ve had interstitial cystitis for over 40 years. As with many of us, my symptoms started out with high frequency pain in both the bladder and stomach. In my particular situation things weren’t gradual – they went from normal to … Continued

IC Cannot Completely Control My Life

My name is Randy and I’m a 48-year-old male who was diagnosed with IC in 2007. For as far back as I can remember, every 3-4 weeks a doctor incorrectly identified my condition as prostatitis. The main problem all my … Continued

20 Years Post-IC

My name is Shirley and I suffered with what was diagnosed as IC for eight years and also endured through all the “new” treatments available in the early 1990s. I visited my urologist regularly in the hope something would work, … Continued

Everything Happens for a Reason

I am currently a 20-year-old male geology major at Radford University, nestled in the mountains of Southwest Virginia. Although I am a geology major, I do not plan on being a geologist or anything pertaining to geology. Rather, I plan … Continued

We Are All Pain Warriors

My battle with IC began when I was 20 and in college. I am now twenty-six years old and have been engaged in this fight for the past six years. IC often impeded my ability to do everything I wanted … Continued

So Many People with IC…So Little Awareness

My name is Sandra, and my IC journey has been a long one. I endured over ten years of doctor after doctor without any diagnosis. Eventually my physical condition got so dire I had to move away from my home … Continued