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Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Last week The Institute of Medicine released its much anticipated report, “Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome; Redefining an Illness.” In it, IOM makes four key recommendations:
- That the U.S. Department of Health and Human Services (HHS) develop a toolkit appropriate for screening and diagnosing patients with ME/CFS in a wide array of clinical settings in which these patients are encountered.
- Physicians should diagnose ME/CFS if diagnostic criteria are met, following an appropriate history, physical examination, and medical work-up. A new code should be assigned to this disorder in the International Classification of Diseases, Tenth Edition (ICD-10) that is not linked to “chronic fatigue” or “neurasthenia” (emotional disturbance).
- The disease be renamed “systemic exertion intolerance disease” (SEID), noting that the term “chronic fatigue syndrome” can result in stigmatization and trivialization and should no longer be used.
- Within 5 years, the diagnostic criteria set forth in this report should be re-examined when firm evidence supports modification to improve identification and care of patients.
The goal of IOM report is to make ME/CFS – or systemic exertion intolerance disease (SEID) – more readily diagnosable and for clinicians to consider it a serious condition.
For more details, and the full report, follow the links below.
- IOM Report Released – Recommends New Diagnostic Criteria, Calls for More Research, and Proposes New Disease Name
- Report Brief – Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness
- Full Report – Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness
- Proposed Diagnostic Criteria for ME/CFS