News & Blog
Be on the Lookout – Support Group Survey
Attention support group and former support group participants! In the coming months, the Interstitial Cystitis Association (ICA), working with ICF International, will be conducting a national evaluation of interstitial cystitis (IC) support groups. The goal of this survey is to gather information from IC patients (and their family and friends) about whether they attend IC support groups, why they do or do not attend, any ways that the support groups help IC patients manage their condition, and any ways that the support groups could be improved. We hope to use the feedback we receive to improve the support group experience for both leaders and participants and determine how ICA can provide these groups with enhanced support. So be on the lookout for notices about the survey in the ICA eNews. We value your feedback and can’t wait to hear from you!