Laura Santurri
🎙️ Have you heard Amber’s story yet? Amber Carter-Frauenhofer, ICA Board Chair, has been using Botox to manage her IC/BPS for 19 years — and she’s sharing everything in Episode…
A huge thank you to ICA volunteer Dr. Tony Buffington and board member Ilka Ross for representing the Interstitial Cystitis Association at the American Urological Association (AUA) Patient Advocacy Connections…
The ICA Board of Directors and staff were on Capitol Hill on February 11, 2026, to represent the patient voice and advocate for much-needed federal research funding for interstitial cystitis/bladder…
Join the ICA for our next free webinar in our Monthly Webinar Series! Urinary frequency, pelvic pain, and feeling like you have a UTI…these are all symptoms of IC, but…
Looking for an opportunity to talk with others living with IC/BPS? The ICA is pleased to launch a new component of our monthly webinar series, IC Talk, a quarterly patient…
The ICA was pleased to host the IC Connection: Science, Strategies, & Support virtual conference on Saturday, September 27, 2025. Dr. Robert Moldwin, renowned IC expert and physician, was our keynote…
Imagine the power of a single document, a proclamation, that can shine a spotlight on IC/BPS. It’s not just a piece of paper, but recognition from government officials at various…
Advocacy in action! On July 8-9, 2025, ICA Executive Director, Laura Santurri, and Board Chair, Amber Carter-Frauenhofer, participated in the Chronic Disease Day Congressional Hearing and visited 15 Senate and…
April was a busy month for the ICA team! On April 23-24, 2025, ICA staff participated in the Global Consensus on IC/BPS meeting, hosted by the Wake Forest Institute for…
The ICA’s Advocacy Day on Tuesday, April 8, 2025, was a resounding success, with 10 ICA staff, board members, and volunteers teaming up for 18 visits with U.S. Senators and…