Not able to make it to Washington to meet with your Congressional leaders? Rally other interstitial cystitis (IC) patients, caregivers, family members, friends and healthcare professionals to reach out to lawmakers in your home state. Members of Congress pay close attention to the concerns of their constituents, and sharing your IC experiences with your members of Congress is the most effective form of advocacy.

And, you can also meet with congressional staff in your House member and Senators’ offices year-round. Even when your member of Congress is working out of their Washington office, you can meet with a locally-based staffer like the district director and discuss the importance of dedicated federal support for IC. After your meeting, the staffer you meet with will provide a summary to the healthcare staffer in the Washington, DC office. Let us know how it goes and the ICA can also follow up with the Congressional health aids in your member’s Capitol Hill office.

Here’s How to Tell Your IC Story to Your Congressional L eaders Locally

  1. Find your members of Congress by going to and entering you zip code on the right side of the page. Choose the state (Senate) and district (House) office most convenient for you.
  2. Call the state and district office and ask to schedule a meeting. Let them know that you are a constituent and would like a meeting to discuss interstitial cystitis, a health issue.
  3. Let the ICA know whose office you are meeting with, and we will provide you with leave-behind materials and talking points, as well as any other briefing information or support you might need.
  4. After your meeting, make sure to follow up with the staffer and thank them for meeting with you. This is a great opportunity to provide any additional materials or information requested during your meeting.
  5. Let us know how it went. Email and we’ll also follow up for you with the Washington DC-based health staffers.

Revised Monday, March 30th, 2015