Board of Directors
The ICA Board dedicates their time, expertise, and enthusiasm to ensuring ICA mission fulfillment.
Meet the Members of the ICA Board of Directors
Interstitial Cystitis Association (ICA) Board of Directors include people with interstitial cystitis/bladder pain syndrome (IC/BPS), family members, physicians, and professionals. The ICA Board guides strategic planning and organizational direction. Board members offer support for and spur interest in programs and services, and provide fiduciary oversight of organizational activities. This group of volunteers dedicates their time, expertise, and enthusiasm to ensuring ICA mission fulfillment.
Amber Carter-Frauenhofer
Amber has served on the ICA’s Board of Directors since 2022. In addition to her work on the board, she also serves as the Liaison to the Medical Advisory Council, represents the ICA at the Global IC/BPS Patient Advocate Group, participates in Peer Reviews, and runs an IC Support Group in the Central Florida area.
Amber was diagnosed with IC/BPS in 2005, and as a long time IC patient, Amber has found solace and motivation through engaging with and offering support to other IC patients. She credits the ICA for always providing valuable evidence-based information and resources to navigate the complicated disease.
In her spare time, Amber enjoys traveling, reading, property renovation and interior design, cooking, and spending time with her family. She currently resides in Orlando, FL, with her husband (Jesse), dog (Dolce), and two cats (Bella & Esprit).
Amber has a Bachelor of Science in Legal Studies from the University of Central Florida and has extensive experience working as Paralegal in civil litigation, municipal law, contracts, and real property.
Callie Krajcir, RD
Janelle Faba
Janelle Faba is a technology professional who has worked in the Financial Technology (FinTech) industry for 20 years. She has held various senior management roles within the industry and is currently a VP in Information Security for a Fortune 500 FinTech organization. She holds many professional certifications including the Project Management Professional (PMP) and Certified in Risk and Information Systems Control (CRISC) and has a Masters of Science in Information Systems Management (MS-ISM) from ASU. She resides in Arizona with her husband. Together they have six children; two adult children and four living at home.
Janelle was diagnosed with IC in 2001 and through her work with the board Janelle hopes to promote awareness of the condition in the medical and general community and to help all patients to find hope and relief.
Natasha Boswell
Natasha is a Partner in KPMG’s Banking and Finance Services practice based in New York and also a long-time IC patient. As a career professional and mother of three daughters, Natasha has struggled with symptoms of the disease for years. Through her work with the Board, Natasha hopes the ICA will continue to promote research and treatments that will help millions of women and men achieve the quality of life they deserve.
Sarah Cojocaru
With over 20 years of experience in the corporate and small business space, Sarah Cojocaru is an Executive Leader, serving as the Vice President of Automotive Operations for Carzato LLC, an innovative digital commerce provider in the automotive technology sector. While focusing on growing her company's operational excellence, Sarah is supported by her loving husband who works in the medical field and their twin children, a son and daughter. Sarah has pushed for patient awareness for many years leading the SouthEast Michigan Interstitial Cystitis chapter from 2012 – 2015. With her desire to help others, Sarah promoted awareness of the group and provided support to over 60+ members in the SouthEast Michigan area.
Holly Goodwin
Holly earned her Master’s in Library and Information Science in 2018 and has since dedicated her career to academic librarianship. Residing with her partner in a small, rural southern town, she is also a passionate advocate for women with chronic pelvic pain, drawing from over 15 years of personal experience with Interstitial Cystitis and the challenges of finding effective treatment. Through her work with the ICA, she aims to empower others with the disease to find effective treatment with greater ease and speed.
Shelley Kardon
Shelley was diagnosed with IC more than 20 years ago and likes to say that she is an "IC Survivor," since she is pain free today. She researched and educated herself about IC and worked with physicians, physical therapists, compounding pharmacies, and a pharmaceutical company to resolve her IC pain. Throughout this journey, she learned how to navigate a complex health issue. Shelley works in the fundraising office of a Philadelphia private university. She holds a BS in Human Behavior and Development and Education from Drexel University, an MA in Liberal Arts from the University of Pennsylvania, and an MS in Library Science from Drexel University. She is an avid reader and enjoys sewing and making quilts.
She lives in Philadelphia, PA and Brigantine, NJ with her husband Sean.
David Klumpp, PhD
Chris Meenan
Mr. Meenan has over 30 years of experience in the biopharmaceutical industry. Mr. Meenan has worked as a senior scientist, leading research and product development focused on peptide based therapeutics for Unigene Laboratories as well as process development and manufacturing technology transfer. Mr. Meenan ultimately took on the role of Director of Business Development, leading licensing initiatives for Unigene. After leaving Unigene, Mr. Meenan consulted for several small and start-up companies in the areas of translational research, CMC and business and corporate development, and continues to function on advisory boards. Mr. Meenan joined Urigen Pharmaceuticals (now Vaneltix Pharma) in 2014 as Vice President of Corporate and Product Development. Vaneltix Pharma specializes in diseases of the lower urinary tract and is currently running clinical trials on its Alenura product for the treatment of painful flares of IC/BPS. Mr. Meenan earned his BS in Recombinant Gene Technology from SUNY Fredonia, MS in Molecular Genetics from Drexel University and an MBA in Marketing from Montclair State University.
Ilka Ross
After receiving an interstitial cystitis diagnosis 6 years ago; I developed a strong desire to promote wide spread education on IC in an effort to streamline diagnostic procedures and extend support to my fellow IC patients in the form of advocacy.
My expertise is in Operational Management of mental health facilities, with a current focus on the implementation of applied behavioral analysis as treatment for adolescent children with ASD, as well as Chief Operating Officer of New Beginnings Ptg.
Avery Singer
Avery Singer is an artist living and working in New York, NY. She has been honored with solo museum presentations at Museum Ludwig, Cologne (2019); Kölnischer Kunstverein, Cologne (2017); Secession, Vienna (2016); Stedelijk Museum Amsterdam (2016); Hammer Museum, Los Angeles (2015–16); Fondazione Sandretto Re Rebaudengo, Turin (2015); and Kunsthalle Zurich (2014–15). Singer’s work is represented in the permanent collections of the Museum of Modern Art, New York; Art Institute of Chicago; Hammer Museum; Whitney Museum of American Art, New York; the Tate, London; and Stedelijk Museum Amsterdam, among numerous others.
Singer is a passionate advocate in the field of women's health, having been a chronic pain patient nearly all of her life. In addition to the Interstitial Cystitis Association, Avery Singer serves on the board of her alma mater, the Cooper Union of the Advancement of Science and Art, and philanthropically supports the work of the Endometriosis Foundation of America.
Photo: Grant Delin
Eric Zarnikow
Eric Zarnikow is Executive Director of the Illinois Student Assistance Commission (ISAC), a state agency focused on helping to make postsecondary education more accessible and affordable for Illinois families. ISAC provides comprehensive, objective, and timely information on education and financial aid for students and their families—giving them access to the tools they need to make the educational choices that are right for them. Then, through the state scholarship and grant programs ISAC administers, including the state’s flagship Monetary Award Program, ISAC can help students make those choices a reality. Eric is a former Associate Administrator at the U.S. Small Business Administration, where he led the Office of Capital Access, responsible for all the agency’s programs and operations concerning financial assistance to small businesses, 800 employees and a $90 billion loan and investment portfolio. Prior to his work with the SBA, Eric spent over 25 years in the private sector, including serving as Senior Vice President, Chief Risk Officer and Treasurer at ServiceMaster. Eric serves on several commissions and Boards and is currently a trustee of The College Board, serving on its Executive, Finance and Investment Committees and as chair of its Audit Committee. A certified public accountant, Eric received his bachelor’s degree from Iowa State University and MBA from Drake University.