News & Blog

Year: 2019

RX Drug Abuse and Heroin Summit

This week at the 2019 RX Drug Abuse and Heroin Summit, Dr. Francis Collins, NIH Director, presented the Institute’s strategy to address pain management in the midst of a national…


Winston-Salem Walk for an IC Cure – Tomorrow!

Tomorrow is the big day!! The Interstitial Cystitis Association (ICA) is hosting our 2nd IC awareness charity walk, ICA: Walk for an IC Cure in Winston-Salem, NC. The event gathers…

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IC Advocates on Capitol Hill

On April 9, 2019, ICA board members, staff, and volunteers went to Capitol Hill to advocate on behalf of all IC patients. We had 22 advocates meet with staff at…

Pain Advocacy Groups Tell HHS Secretary Revise CDC Guidelines

A coalition of pain advocacy organizations (including ICA) have written a letter to HHS Secretary Alex M. Azar that analyzes the draft report of the HHS. The public comment period…


Register for the Walk by April 6th to Get Your Walk Giveaways

Remember to register for the Winston-Salem, NC Walk for an IC Cure before April 6th to ensure you receive the item giveaways at the walk, including a Walk for an…


Interstitial Cystitis in the News

‘Incurable’ Bladder Pain Brings Women Together to Fight Back  “Where medicine has failed to find a cure, women are banding together using social media to find solutions to interstitial cystitis, a…


ICA Awareness Video

ICA has created a video entitled “You Have IC, Now What?” that was developed as part of an #ICAwareness campaign. Watch the video at

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IC & Diet Webinar – Save the Date!

  ICA is excited to announce that we will be hosting a webinar on IC & Diet on Wednesday, March 20, 2019. Speakers will include Dr. Barbara Shorter, RDN, CDN,…


When the Cure Is Worse Than the Disease

New York Times posted an article on their website entitled “When the Cure Is Worse Than the Disease” that discusses the struggle that many interstitial cystitis patients are facing with…


Have You Considered Fundraising on Facebook?

Facebook has made birthdays, anniversaries, holidays, and special events a time where friends and family members can recognize you and your IC/BPS journey! Facebook has created a fundraising tool that…