Empowering IC Patients with Knowledge & Hope

ICA Philadelphia Forum

Interstitial Cystitis Association (ICA) invites you to attend the 2013 Patient Forum: Empowering IC Patients with Knowledge and Hope. Located in the heart of historic Philadelphia, this complimentary ICA Forum will empower patients and caregivers with the need-to-know tools for successful management and treatment of IC. Experts in IC will present the latest information on physical therapy, research, intimacy, opioids, diet, and integrative medicine. The Forum will close with the ground-breaking session, When Treatment Options Fail—a must see for anyone frustrated with standard IC treatments.

ICA will also be unveiling their newest online program, ICHope Self-Management Module. The program is designed to help IC patients use a range of healthy strategies to manage or minimize pain and to cope with pain that does occur.

Don’t miss this event, register to participate in person or virtually today! Not only will you learn how to better live with IC, you will also have a chance to connect with IC patients, caregivers, and healthcare providers who know and understand exactly what it’s like to live with IC.

Who Should Attend

Click here to watch the on-demand webcasts

  • Patients
  • Caregivers
  • Family members
  • Healthcare providers
  • IC researchers
  • Pharmaceutical representatives
  • Anyone who has an interest in IC
Download the Program!


Breakfast and lunch will be served. There will be ample time for breaks throughout the day.

  • 7:00 – Breakfast

  • 7:50 – Welcome/Opening Remarks

  • 8:00 – Stretch and Strengthen for a Healthier Pelvic Floor
    Presenter/Instructor: Amy Stein, MPT, Author of Heal Pelvic Pain – A Proven Stretching, Strengthening, and Nutrition Program for Relieving Pain, Incontinence, IBS, and Other Symptoms Without Surgery

  • 8:50 – Break
    All breaks have been sponsored by our generous supporter, Innovation Compounding.

  • 9:00 – Latest in IC Research: A MAPP Update
    Presenters: Christopher Mullins PhD, Director of Basic Cell Biology Programs Division of Kidney, Urologic and Hematologic Diseases, NIDDK, National Institutes of Health and Quentin Clemens, MD, FACS, MSCI, Associate Professor of Urology and Director of the Division of Neurourology and Pelvic Reconstructive Surgery at the University of Michigan Medical Center

  • 9:50 – Break

  • 10:00 – ICHope Self Management Module – A Staged Approach to Managing IC Pain
    Presenter: Deborah A. Levesque, PhD, Senior Vice President for Research and Product Development, Pro-Change Behavior Systems, Inc.

  • 10:50 – Break

  • 11:00 – A Time for Two: Intimacy, Sexuality, and IC
    Presenter: Jennifer Fariello, MSN, CRNP, Female & Male Pelvic & Sexual Medicine, The Pelvic & Sexual Health Institute, Philadelphia, PA and Sabitha Pillai-Friedman, PhD, LCSW, CST, Assistant Professor, Center for Human Sexuality Studies at the Widener University, AASECT Certified Sex Therapist, and Chair of the AASECT Outreach Committee

  • 11:50 – Break

  • 12:00 – Lunch

  • 12:30 – Safe & Effective Pain Management: The Pros and Cons of Opioids
    Presenters: Daniel B. Carr, MD, Professor of Public Health and Community Medicine, Anesthesiology, Medicine and Molecular Physiology and Pharmacology at Tufts University School of Medicine and
    Barry Jarnagin, MD, Physician at The Center for Pelvic Health, Franklin, TN

    This session is supported by the Dan Brookoff Memorial Pain Management Fund.

  • 1:20 – Break

  • 1:30 – IC Diet: Friendly Fats
    Presenter: Barbara Shorter, EdD, RD, CDN, Associate Professor of Nutrition and Director of the Undergraduate Nutrition Program at Long Island University

  • 2:20 – Break

  • 2:30 – Integral Approaches to Treating IC
    Presenter: Anna Kelly, MD, Clinical Director, Staff Physician, and Acupuncturist at Metro Pain Center, Atlanta, GA

  • 3:20 – Break

  • 3:30 – When Standard Treatments Fail
    Presenters: Kristene E. Whitmore, MD, Founder and Director of the Pelvic and Sexual Health Institute, Philadelphia, PA and Rob Moldwin MD, Physician in Charge of Urologic Infectious/Inflammatory Diseases, Smith Institute for Urology, Director of the Interstitial Cystitis Center at North Shore-LIJ Health System, New York, NY

  • 4:30 – Closing Remarks

A closing reception will be held at 4:30 PM after the last session.

Learn more about the ICA 2013 Patient Forum speakers.


Saturday, June 29, 2013
7:00AM - 5:30PM (ET)


Loews Philadelphia Hotel
1200 Market Street
Philadelphia, Pennsylvania 19107

Or you can watch the live event from the comfort of your own home. We will be broadcasting live!


Valet parking: $38 Overnight (plus tax) Pricing subject to change. Another option is Girard Parking across the street from from the Loews Philadelphia Hotel on 12th Street.


In Person Event

Registration is complimentary. Click here to fill out the registration form to attend the in person event in Philadelphia. Please complete the form for each person attending. Registration is limited. Online registration for the in person event is closed. You can still register on-site at the Loews Philadelphia hotel at the registration desk.

ICA is a public charity — tax-deductible donations are always appreciated.

Live video streaming registration

Watch the live event from the comfort of your own home. We will be broadcasting live and it will also be available to view at a later date. Click here to register for the live video or on-demand streaming. The on-demand videos will be available on Saturday, June 29, 2013.


The ICA has secured a block of rooms at the Loews Philadelphia Hotel at a reduced rate $159/night. Be sure to book your room by May 31, 2013 to receive this rate. (limited availability The room block has been filled. Please check out the nearby hotels listed below for availability). To make your room reservation, please click here to be taken to the ICA room block reservation site or call 1-888-575-6397 and ask for the ICA Patient Forum room block rate.

Loews Philadelphia Hotel
1200 Market Street
Philadelphia, Pennsylvania 19107

Nearby Hotels

Please note: ICA does not have a room block at the following hotels. We are providing the additional recommendations since there is limited availability at the Loews.

Residence Inn Philadelphia Center City
11 N Juniper St, Philadelphia, PA
(215) 557-0005
0.1 mi

Philadelphia Marriott Downtown
1201 Market St, Philadelphia, PA
(215) 625-2900 ‎
0.1 mi

DoubleTree by Hilton HotelPhiladelphia Center City
237 S Broad St, Philadelphia, PA
(215) 893-1600 ‎
0.3 mi

Holiday Inn Express Philadelphia-Midtown
1305 Walnut St, Philadelphia, PA
(215) 735-9300 ‎
0.2 mi

The Windsor Suites
1700 Benjamin Franklin Pkwy, Philadelphia, PA
(215) 981-5678 ‎
0.5 mi

The Ritz-Carlton Philadelphia
10 Avenue Of The Arts, Philadelphia, PA
(215) 523-8000 ‎
0.2 mi

Club Quarters Philadelphia
1628 Chestnut St, Philadelphia, PA
(215) 282-5000
0.4 mi

Hotel Palomar Philadelphia
117 S 17th St, Philadelphia, PA
(215) 563-5006 ‎
0.4 mi

Courtyard Philadelphia Downtown
21 N Juniper St, Philadelphia, PA
(215) 496-3200 ‎
0.1 mi


Want to become a sponsor? Email us for more information.

The ICA does not engage in the practice of medicine. It is not a medical authority nor does it claim to have medical knowledge. In all cases, the ICA recommends that you consult your own physician regarding any course of treatment or medication. Comments presented are based on professional advice, published experience, and expert opinion, but do not represent therapeutic recommendation or prescription. For specific information and advice, please consult your personal healthcare provider.

And products or medications referred to by brand name in Forum presentations are for recognition purposes only and do not imply or constitute an endorsement by the Interstitial Cystitis Association.

This Forum is supported by the Cooperative Agreement Number 5U58DP002936-02 from The Centers for Disease Control and Prevention. Its contents are solely the responsibility of the authors and do not necessarily represent the official views of The Centers for Disease Control and Prevention.

Revised July 2, 2013