Urological Diseases Databases and Registries


Great resources for research on interstitial cystitis (IC), painful bladder syndrome, bladder pain syndrome, chronic pelvic pain and associated health conditions

Central NIDDK Repository for Biosamples and Data

Repositories for biosamples and data collected in clinical studies including IC studies.  For more information, contact Dr. Rebekah Rasooly, Deputy Director of the Division of Kidney, Urologic, and Hematologic Diseases.

Murine Atlas of Genitourinary Development (GUDMAP)

Consortium of labs providing tools to facilitate research including a molecular atlas of gene expression for the developing organs of the GenitoUrinary (GU) tract; a high resolution molecular anatomy that highlights development of the GU system; mouse strains to facilitate developmental and functional studies within the GU system; tutorials describing GU organogenesis; and rapid access to primary data via the GUDMAP database. For more information, contact Dr. Elizabeth Wilder, KUH, Director, Developmental Biology of the Kidney and Urogenital Tract Program.

National Gene Vector Laboratories (NGVL)

An interactive group of academic production and pharm/tox laboratories whose primary goal is to provide eligible investigators with clinical grade vectors for phase I/II gene therapy clinical trials and to provide support for relevant pharmacology/toxicology studies leading up to clinical gene transfer protocols. If the application is approved, clinical grade material will be produced at no cost to the investigator. For more information, contact Dr. Catherine McKeon, DEM, Senior Advisor for Genetic Research in Diabetes, Endocrinology and Metabolic Diseases.

Urologic Diseases in America Compendium (UDA)

The UDA compendium delineates the changes in the epidemiology, health economic impact, and practice patterns for the IC and other urologic diseases over a ten-year period. For more information, contact Dr. Paul Eggers, KUH, Director, Kidney and Urology Epidemiology Programs or Dr. Robert Star, KUH, Director, Urology Programs

 

Revised April 9, 2011