Having a strong support network can be extremely important when managing a chronic illness like interstitial cystitis (IC). This support can come in a variety of forms:
When you have IC, finding the right healthcare provider is key to the successful management of your condition. The free ICA Healthcare Provider Registry, now online, is a great way to begin your search. Containing over 1000 healthcare providers, including physicians, nurse practitioners, physical therapists, dietitians, and counselors, the Registry will provide you with the information you need to build your IC healthcare team—in just a few clicks!
Do you have a question about IC? Fill out the online form to receive an answer from our patient advocate.
Find a support group in your area, resources for starting your own support group, as well as information about online IC support resources.
ICHope Self Management Module
A Staged Approach to Managing IC Pain
Interstitial Cystitis Association (ICA) is proud to announce ICHope, a personalized online program designed to help people diagnosed with interstitial cystitis (IC) manage their pain. In partnership with Pro-Change Behavior Systems, Inc., ICA has developed this complimentary, interactive program based on the science of behavior change, which asserts that people go through a series of stages in the process of changing their behavior. IC patients use ICHope to assess which stage of change they are in and then receive stage-matched strategies to help them adopt positive behaviors to prevent or minimize pain and to cope with pain that does occur.
We understand that living with constant pain makes it very hard to focus on anything else. But we also know there are many strategies you can use to manage your pain. We’ll show you how you can try these strategies—at your own pace, when you are ready—to help you manage pain from IC.
Resources for ICA patients, supporters, and healthcare providers, these educational materials cover a variety of topics that the IC community has indicated are important and sometimes difficult to understand.
IC patients can get support and discuss the challenges of living with bladder pain, urgency and frequency online on the ICA’s Facebook Community support forum.
Follow us on Twitter to keep up to date with real time IC news updates.
Subscribe to our YouTube channel and view video shorts with IC experts.
Anyone Can Get IC
IC can affect anyone. Women, men, and children of any age or race can develop IC. Read stories of hope, encouragement, and success from the IC community.
When first diagnosed with interstitial cystitis (IC) you may feel alone. Don’t — 4 to 12 Million May Have IC. At the ICA, we offer the most need-to-know information for IC patients and the best information to help you live with IC.
The Support Group LeaderKit is rich with resources for both the veteran IC support group leader and someone who is just thinking of starting a support group.
Revised October 3, 2013