Board of Directors

Interstitial Cystitis Association (ICA) Board of Directors include people with interstitial cystitis (IC), family members, physicians, and professionals. The ICA Board guides strategic planning and organizational direction. Board members offer support for and spur interest in programs and services, and provide fiduciary oversight of organizational activities. This group of volunteers dedicates their time, expertise, and enthusiasm to ensuring ICA mission fulfillment.

  Barbara Zarnikow, Co-Chair

An IC patient, public spokesperson and active advocate, Barb is an IC support group leader for the Chicago area. To help others with IC, she also has shared her story in the local and national media. An active advocate and Capitol Hill walker, at a birthday celebration for Jesse Jackson, Jr., Barb discussed the special needs of IC patients directly with the Senator. A recently retired special education teacher/learning specialist, Barb received her degree from Eastern Illinois University.

  Eric Zarnikow, MBA, Co-Chair

Eric Zarnkow is a financial executive who brings an appreciation for how the ICA helps families of IC patients. As the husband of an IC patient he became active in the association to help the ICA help other patients and family members. With more than 25 years experience in senior management positions, Eric, has an undergraduate degree from Iowa State University and a master's of business administration from Drake University.

  F. Neal Thompson, Treasurer

Long-time Board Member and IC patient, F. Neal Thompson, is an insurance industry executive and certified financial planner. Founder and President of Financial Services Consultants in Richmond, VA, Neal received his bachelor’s degree from Lynchburg College and a Master’s degree in economics from the University of Richmond. He offers extensive experience with nonprofit boards. Neal and his wife Sharon are dedicated ICA members and regular participants in ICA Capitol Hill walks.

 Jann Keenan, EdS

 Jann Keenan Jann Keenan, EdS, is a health literacy specialist and active community volunteer. Since 1995, she has served as president of the Keenan Group, Inc., a social marketing and multi-media design firm. Jann is also a strategic partner with the Institute for Healthcare Advancement. To promote health equity, Jann develops culturally relevant educational materials and curricula. She helps agencies adopt policies to create system-wide change as they work toward becoming health literate organizations. She received her EdS degree in instructional design from Indiana University, Bloomington, IN. An IC patient, Jann and her family call Maryland home.

 Rick Lufkin

 Rick Lufkin Rick Lufkin is a serial entrepreneur in the life sciences specializing in early stage pharmaceutical, biotechnology, and medical device companies. He currently serves as CFO and director of a firm exploring and advancing real-time protein identification. As president of a specialty pharmaceutical company, he was involved with the early drug approval process for Elmiron® working closely with IC patients, physicians, and regulatory authorities. Rick is an MIT graduate with an MBA from the Wharton School, University of Pennsylvania. He and his wife live in New Jersey.

 Robert M. Moldwin, MD, FACS

Robert M. Moldwin, MD, is physician in charge of urologic infectious/inflammatory diseases at the Smith Institute of Urology and director of the Interstitial Cystitis Center at North Shore-LIJ Health System. He is associate professor at Albert Einstein College of Medicine in New York. Dr. Moldwin often serves as an IC advocate and expert consultant, lecturing to audiences of colleagues, patients, and the media.

  Irma Rodriguez

Irma Rodriguez, a patient and longtime supporter of the ICA. After a 25-year career in higher education, she has transitioned to a focus on furthering diversity in government and industry. Irma has also been a leader in professional, community, and national organizations dedicated to these issues and has been honored as a Kellogg Foundation Fellow and a Hispanic Leadership Fellow. A resident of Georgia, she is currently the manager of Diversity and Workplace Fairness with The Coca-Cola Company’s Corporate Global Office of Diversity and Workplace Fairness.

 Joy H. Selak, PhD

 Joy Selak Joy H. Selak, PhD, became too ill to work after being diagnosed with interstitial cystitis and other autoimmune and neurological conditions at 40. She found effective, supportive care and asked her physician to co-author a book with her about their shared experience. You Don’t LOOK Sick!: Living Well with Invisible Chronic Illness is now in its second edition. In 2010, Joy underwent a successful surgery and began to regain her health. After 20 years of illness, she is now working for an arts education non-profit and is committed to helping others build meaningful lives with long term illness.

  Tony Tyler

Tony Tyler was born and raised in Oklahoma City. After earning a bachelor’s degree in history, Tony began his career at Tyler Media—a media company consisting of five radio stations, three TV stations, and an outdoor advertising company. The Tyler family has been in the media business for nearly 50 years. Tony works alongside his brother Ty and his father Ralph, who has IC. He is active in community service and married to his high school sweetheart, Shelley. They have four children and live in Norman, OK.



Revised March 19, 2014