International Support Groups


Below is a list of patient support groups for people with interstitial cystitis, painful bladder syndrome, and chronic pelvic pain.

For additional international help, please also see the list of international IC organizations and ask these groups about support group meetings around the world. 

COUNTRY  

GROUP

MEETING SCHEDULE & LOCATION

CONTACT

Africa, Kenya

East Africa IC Support Group Nakuru Chapter

WHEN: Last Saturday of every month from 3:00 PM to 5:00 PM. Call to confirm meeting times and dates.

WHERE: Mereca Hotel Nakuru Kenyatta Avenue.

Also offer phone support for interested parties from patients to nurses, doctors, pharmaceutical companies and others.

James G. Mwangi
jgmwangi2003@yahoo.com

245720391104

Argentina

ARACI Asociación Rosarina Afectados Cistitis Intersticial

Contact for support group meeting details.

Liliana Bacchi
President
menadel_dan@hotmail.com

0341-4644164

Dorrego 3857-DTO.1
2000 Rosario, Argentina

Austria

ICA Österreich e.V

 www.ica-austria.at

 

 

elke.hufnagl@ica-austria.at
Christa Rammerstorfer, Chairwoman

ica.at-rammerstorfer@gmx.at

Phone / Fax :  0043-7246-8448

Belgium

Interstitiële Cystitis Patiëntenvereniging België (ICPB) 

www.icpb.be

Josée DE RAA, president
info@icpb.be

Canada

 

Available for phone support

Lara Lanaghan
778-292-1002

Canada, Alberta

 

Available for phone support.

Ms. Edna Gabrielle
780-572-2233

Canada, Ontario

Ottawa IC Support Group

Meetings for people with IC, as well as anyone interested in learning more about IC.

WHERE: Terrace Room at City View United Church, 6 Epworth Ave.

DIRECTIONS: Follow Merivale Rd. south from Baseline Rd. Turn right onto Rossland, opposite Emerald Plaza. There’s a gas station at that corner, proceed to Pender which is on the left, and becomes Epworth. Look for City View United Church. Go left into the parking lot. Use the central door to the church. Parking is free.

Sept. 9: Painful Bladder Syndrome/Interstitial Cystitis Support Group. Caroline Allen, physiotherapist, who specializes in pelvic pain will be our guest speaker. City View United Church, 6 Epworth Ave. Wednesday, 7 p.m. Public is welcome; free parking. Please contact Inga Legere at 613-839-6188 for further information.

Inga Legere
613-839-6188

Anne Raina
613-733-5891

Canada, Ontario

Kitchener-Waterloo Interstitial Cystitis Support 

WHEN/WHERE: meetings and their details are always advised by us to our email list of members

http://kwics.ca/

Ann
kwicsmail@gmail.com
 
519-896-1778


Kathy
calvert89@rogers.com
519-570-9045 

Canada, Victoria, British Columbia

Victoria IC Support Network

 

Meetings will take place in Cafeteria Room A, 2nd floor, Royal Jubilee Hospital, 1:30-3:30 pm on the third Saturday of each month.

Next meeting is September 18, 2010.

Contact information:
Colleen McGavin
Phone: 250-477-7855
Email: victoriaicsupport@live.com

 

Canada, Vancouver, British Columbia

Vancouver Interstitial Cystitis Support (IC) Group

 

What: An opportunity to connect with other people living with IC in a positive, supportive and informal group environment

When: 3rd Sunday of every month

Time: 4 – 6 pm

Where: Room 4007, Providence Building, St. Paul’s Hospital, 1081 Burrard Street, Vancouver

Room directions: Make your way to the 4th floor cafeteria; look for room 4007

Blog: http://vancouvericgroup.blogspot.ca/

For questions and/or to be added to the contact list, please email Jeanette/Lisa/Amanda/Debbie at: info.icvancouver@gmail.com

 

Czech Republic

 

www.uroklinika.cz

Libor Zamecnik, MD, PhD
libor.zamecnik@lf1.cuni.cz

Urologicka klinika  VFN a 1. LF UK
Ke Karlovu 6
128 08 Praha 2
Czech Republic

Denmark

 

 

Steinunn Joergensen
Project Nurse
Department of Urology

stjr@herlevhosp.kbhamt.dk

Herlev Hospital , University of Copenhagen
DK-2730 Herlev, Denmark

England

IC Information Specialist

Provides phone and email support, IC information, and healthcare provider referrals. Call for London Pelvic Pain Support Group dates and information.

Iliana C. Brockman
icrelief@me.com  
Phone: 07545 096962

France,Paris

Association française de la cystite interstitelle

For information, please email

http://orphanet.infobiogen.fr/associations/AFCI  

 

Françoise Watel
ci_france@hotmail.com  

 AFCI
82 rue Albert
75013 Paris
France

Germany

ICA Deutschland e.V.

 

http://www.ica-ev.de/

Mexico

Asociacion de Cistitis Intersticial Mexico

 

 

www.aci-mexico.com

Florentina Ferreyra Lopez
flore@aci-mexico.com

52(55)54-04-89-16

Cerezos 87 casa 41
Col. Jardines de Atizapan
Atizapan de Zaragoza, Edo. De Mex.
Mexico
CP 5297

Netherlands

IC-Today

http://www.ic-today.com/  

Contact: Moenier Oulad ic2day@gmail.com

New Zealand

N.Z.P.B.S.G.
(NZ Painful Bladder Support Group)

P.O.Box ; 33-264
Christchurch 8244
New Zealand

weedot@xtra.co.nz

South Africa

Melrose

Alison Smith

robinsmith@iafrica.com



Revised October 1, 2013