What is a Disabled Person Supposed to Look Like?

My name is Reeshemah Ford and I am an African American woman who suffers from interstitial cystitis. While trying to live and manage this disease alone, I care for my daughter and elderly father. Although some days are unmanageable, I … Continued

ICA at the AUA Patient Advocacy Hub

ICA will be heading to the AUA annual meeting next month to share the patient voice regarding interstitial cystitis at the Urology Care Foundation Advocacy Hub. Here’s the link to the schedule of all the advocacy orgs who will be … Continued

ICA 2016 Impact

Check out the impact that ICA made in 2016!! All made possible with your support! ICA relies entirely on donations from people like you! http://support.ichelp.org/donate

We Want to Hear from You!

ICA wants your feedback on the delivery of our programs and communications. This survey should only take about 5 – 10 minutes to complete. Your responses are confidential and will be evaluated as a whole. They will not be shared … Continued

ICA Calling for Applications for Board of Directors

ICA is calling for applications of knowledgeable, engaged, and inspired volunteers to fill positions to lead, advise, and support the activities of ICA by serving on its Board of Directors for a three-year term. The Board plays a leadership role … Continued

Ask an IC Expert!

Are there questions you haven’t been able to get answers to? ICA is compiling a list of questions to ask the IC experts. Please send your question to us at icamail@ichelp.org.

IC-Friendly Recipes

ICA Online Support Community member, grumpyoldlady has been busy collecting and sharing IC-friendly recipes! Join the conversation in ICA’s Online Support Community. “I have suffered with IC for quite a long time like many of our fellow members and one … Continued

12 Signs You Might Have Interstitial Cystitis

Interstitial cystitis and The Interstitial Cystitis Solution by ICA board member Nicole Cozean PT, DPT and Jesse Cozean were recently featured in Reader’s Digest. We’re raising IC awareness! “Experts have argued over the exact language and terminology for IC for … Continued

PBS Documentary Brings Chronic Pain Out of Shadows

“Many chronic pain sufferers are frustrated with how they are depicted in the media – often as lazy, whining, drug seeking addicts. A new documentary that’s begun airing on local PBS stations is trying to change that narrative.” Read the … Continued

Interstitial Cystitis Featured in U.S. News & World Report

U.S. News & World Report published an article in their health section entitled Living With Interstitial Cystitis: The chronic, invisible illness is a literal pain in the bladder. The article features an IC patient and her struggles of teaching with … Continued