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RELATED DISEASES

American Autoimmune Related Diseases Association
Phone: 506.776.3900
E-Mail: aarda@aol.com
Website:
http://www.aarda.org/

Crohn's and Colitis Foundation of America, The
Phone: 800.932.2423
E-Mail: info@ccfa.org
Website: http://www.ccfa.org/ 

CFIDS Association of America, The
PO Box 220398
Charlotte, NC 28222-0398
Phone: 704.365.2343
Website: http://www.cfids.org/ 

Endometriosis Association, The
Phone: 414.355.2200
Fax: 414.355.6065
E-Mail: endo@endometriosisassn.org
Website: http://www.endometriosisassn.org/ 

International Foundation for Functional Gastrointestinal Disorders (IFFGD), The
PO Box 170864
Milwaukee, WI 53217-8076
Phone: 414.964.1799
Fax: 414.964.7176
E-Mail: mailto:iffgd@iffgd.org
Website: http://www.iffgd.org/
We can also be reached by calling toll free at: 888.964.2001 during the hours of 8:30AM to 5:00PM CST.

International Pelvic Pain Society, The
100 E. Woodfield Rd #520
Schaumburg, IL 60173
Phone: 847.517.8712
Fax: 847.517.7229
Website: http://www.pelvicpain.org/ 

Lupus Foundation of America, The
Phone: 202.349.1155
Website: http://www.lupus.org/ 

National Association for Continence, The
Phone: 864.377.0900
Toll Free: 800.252.3337
Fax: 864.579.7902
E-Mail: memberservice@nafc.org
Website:http://www.nafc.org/ 

National Fibromyalgia Partnership (NFP), The
POB 160
Linden, VA 22642

Phone: 866.725.4404
Fax: 540.622.2988
Website: http://www.fmpartnership.org/ 

National Headache Foundation, The
Phone: 888.NHF.5552
Fax: 773.525.7357
Website: http://www.headaches.org/ 

National Organization for Rare Disorders
P.O. Box 8923, New Fairfield, CT 06812
Phone: 203.744.0100
Toll Free: 800.999.6673
Fax: 203.789.2291
Website: http://www.rarediseases.org/orphan@rarediseases.org 

National Vulvodynia Association, The
P. O. Box 4491, Silver Spring, MD 20914-4491
Phone: 301.299.0775
Fax: 301.299.3999
Website: http://www.nva.org/ 

Prostatitis Foundation
Phone: 888.891.4200
Fax: 309.325.7184
Website: http://www.prostatitis.org/ 

Sjogren's Syndrome Foundation
6707 Democracy Blvd #325
Bethesda, MD 20817
Phone: 800.475.6473
Fax: 301.718.0322
Website: http://www.sjogrens.org/ 

S.L.E. Lupus Foundation
330 Seventh Avenue, Suite 1701, New York, NY 10001
Phone: 212.685.4118
E-Mail: lupus@lupusny.org
Website: http://www.lupusny.org/ 

TMJ Association, Ltd., The
(for temporomandibular joint diseases/disorders)
P.O. Box 26770
Milwaukee, WI 53226-0770
Phone: 262.432.0350
Fax: 262.432.0375
E-Mail: info@tmj.org
Website: http://www.tmj.org/ 

PAIN

American Pain Foundation
Toll Free: 888.615.PAIN (7246)
E-Mail: info@painfoundation.org
Website: http://www.painfoundation.org/ 

American Chronic Pain Association
Phone: 800.533.3231
E-Mail: ACPA@pacbell.net
Website: http://www.theacpa.org/ 

National Pain Foundation
Phone: 866.590.PAIN (7256)
Toll Free: 303.783.8899
E-Mail:npf@nationalpainfoundation.org
Website: http://www.nationalpainfoundation.org/

National Foundation for the Treatment of  Pain, The
Phone: 713.862.9332
Fax: 713.862.9346
Website: http://www.paincare.org/

 

NATIONAL INSTITUTES OF HEALTH IC SITES

NIDDK IC Booklet
Website: http://www.niddk.nih.gov/health/urolog/pubs/cystitis/cystitis.htm 

National Kidney & Urologic Diseases Clearinghouse
Website: http://kidney.niddk.nih.gov/kudiseases/pubs/interstitialcystitis/index.htm

 

IC RELATED ASSOCIATIONS OUTSIDE THE USA

Multinational Interstitial Cystitis Association (MICA)
E-Mail:
info@multinationalica.org
Website: http://www.multinationalica.org/

ARGENTINA
ARACI (Asociación Rosarina de Afectados de CI)
Domicilio-adress: Dorrego 3857-DTO.1-2000 Rosario
Liliana Bacchi
Telèfono: 0341-4644164
Celular: 0341-156490984 (lunes a viernes de 10 a 18hs) 

AUSTRIA
ICA Österreich e. V.
Attn: Elke Hufnagl
Irisweg 4
A-4623 Gunskirchen
Austria
Phone: 43.7246.8448
Fax: 43.7246.8448
E-Mail: elke.hufnagl@ica-austria.at
Website: http://www.ica-austria.at/ 

CANADA
Association de la cystite interstitielle (CI) du Québec
Françoise Robert - Présidente
E-Mail: frobert@videotron.ca
Website: http://www.cystiteinterstitielle.org/

Ottawa, Ontario, Canada IC support group
Contacts:
Inga Legere
613-839-6188
Anne Raina
613-733-5891

GERMANY
ICA Deutschland e.V.
Attn: Barbara Muendner-Hensen -- Chair
Untere Burg 21
D-53881 Euskirchen
Germany
Phone: 49.2251.76729
Fax: 49.2251.76729
Website: http://www.ica-ev.de/

ITALY
Associazione Italiana Cistite Interstiziale

Attn: Loredana Nasta
Viale Glorioso 13
000153 Roma
Italy
E-Mail: AICI@mclink.it
Website: http://aici-onlus.it/

JAPAN
Mrs. Masako Katsurada
1459-56, Funaki-cho Oumihachiman
Shiga 523-0084
Japan
Phone: 81.748.338222
Fax: 81.748.338222
E-Mail: perro@mx.biwa.ne.mx.biwa.ne.jp
Website: http://www.biwa.ne.jp/~perro/

Comfortable Urology NetworkPhone: 81.75.3140143
Fax: 81.75.3254221
E-Mail: info@hainyo-net.org
Website: http://www.hainyo-net.org/ 
 
THE NETHERLANDS
Interstitiele Cystitis Patientenvereniging (ICP)
Attn: Joke Scholten and Lynne van Poelgeest-Pomfret -- Chairs
Postbus 4
3980 CA Bunnik
The Netherlands
Phone: 31.30.2962965
Fax: 31.30.2948503
E-Mail: info@icpatienten.nl
Website: http://www.icpatienten.nl/
 
SPAIN
A.B.A.T.Y.C.I.
Attn: Maria del Rosario Fernandez Garcia
President
Sineu 2 (Adosado c)
07220 Pina
Mallorca, Spain
Phone: 34.971.665322
E-Mail: abatycipina@hotmail.com
Website: http://usuarios.tripod.es/abatyci
 
Asociación Catalana de Afectados de Cistitis Intersticial (ACACI)
Monica Hernandez
President
E-Mail: asociacionacaci@hotmail.com
Web: http://cistintersticial.webcindario.com/
         http://www.cistitisintersticial.tk/

UNITED KINGDOM
COB Foundation
76 High Street
Stony Stratford, Bucks MK11 1AH
United Kingdom
tel/fax: 44-1908-569169
http://www.cobfoundation.org/

info@cobfoundation.org

WOMEN'S HEALTH

Canadian Women's Health Network
Web: http://www.cwhn.ca/ 

Centres of Excellence for Women's Health
Website: http://www.centres.ca 

Society for Women's Health Research
Web: http://www.womenshealthresearch.org/

 

MISCELLANEOUS

ICA website receives OBGYN.net "Hotfind" Award
Website: http://www.obgyn.net/ 

ICA website chosen for inclusion in MEDLINEplus, the consumer health Web site created by the National Library of Medicine, National Institutes of Health.
Website: http://www.nlm.nih.gov/medlineplus/ 

The ICA website is included in the ISI® (Institute for Scientific Information®) Current Web Contents
Website: http://www.isinet.com/products/

Interstitial Cystitis Association phone: 1-800-HELP ICA email: icamail@ichelp.org 2007 ICA. All Rights Reserved. Admin