MAPP 


The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), one of the National Institutes of Health (NIH), is sponsoring a new and novel research study called the Multidisciplinary Approach to the Study of Chronic Pelvic Pain (MAPP) Research Network. The NIDDK MAPP Network is conducting research to help better understand the underlying causes of IC and chronic prostatitis/chronic pelvic pain syndrome (CP/CPPS). MAPP embraces a systemic—or whole-body—approach by investigating potential relationships between these two urological syndromes and other overlapping conditions commonly seen in IC and CP/CPPS patients, such as irritable bowel syndrome, fibromyalgia, vulvodynia, and chronic fatigue syndrome.

Learn more online at www.mappnetwork.org.


MAPP Updates


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Phase II of MAPP Research Network Coming Soon
6/14/2013

ICA Executive Director Lee Claassen and Program Manager Anita Roach recently attended the 11th Steering Committee Meeting of the Multidisciplinary Approach to the Study of Chronic Pelvic Pain (MAPP) Research Network, serving as the voice for the more than 12 million Americans with IC. MAPP is a multi-year, multi-center project sponsored by the National Institutes of Health (NIH).

The deeply committed MAPP group is wrapping up data analysis on the over 1,000 people who participated in MAPP biomarker, neurological, infectious etiology, epidemiology, and phenotyping studies, as well as animal studies performed by the researchers in Phase I, which launched five years ago. The researchers are currently in the planning stages of the second, five year phase of MAPP, which is set to begin next year.

We are happy to report that there are exciting findings from Phase I. To find out what MAPP researchers have discovered thus far and exactly what it means to IC patients, register for the 2013 ICA Patient Forum: Empowering IC Patients with Knowledge and Hope. New MAPP Chair and ICA Medical Advisory Board member Quentin Clemens, MD, and National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) Program Scientist Christopher Mullins, PhD, will discuss the findings at the Forum.

MAPP Researchers Continue Their Efforts
9/27/2012

The planning stages of the second phase of the Multidisciplinary Approach to the Study of Chronic Pelvic Pain (MAPP) Research network are in full swing. The MAPP Research Network, a multi-year project sponsored by the National Institutes of Health (NIH), will continue to investigate interstitial cystitis (IC), chronic prostatitis, and associated conditions oftentimes found to co-exist. At the two-day September MAPP meeting, MAPP researchers (including representatives from six discovery sites across the country, a technology and tissue center, and a data coordinating center) discussed how to move forward with the data they collected in phase I. The researchers also discussed how they will build on collaborative efforts during the phase II. It is exciting that the group is still deeply committed to finding new treatment approaches, identifying risk factors, and helping to predict which patients may respond to various interventions for IC and CP/CPPS.

An ICA representative attended the two-day meeting. Having a presence at this meeting allowed us the opportunity to serve as the voice for patients, offering suggestions from the viewpoint of the patient.

MAPP Research Network Sites Now Recruiting!!
3/23/2010

The Multidisciplinary Approach to the Study of Urologic Chronic Pelvic Pain (MAPP) Research Network has been established by the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) of the National Institutes of Health (NIH) to focus on a broader approach to the study of Interstitial Cystitis (IC)/Painful Bladder Syndrome (PBS) in men and women, and Chronic Prostatitis (CP)/Chronic Pelvic Pain Syndrome (CPPS) in men, than previously undertaken.

Patients with IC or CP are now being recruited for a new research study called the “MAPP Network Epidemiology and Phenotyping Study”!! By taking part in these studies, participants may help doctors gain a better understanding of how IC and CP affect individuals’ overall health and aid them in developing better treatments.
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NIH Launches MAPP Website
3/31/2009

Check out the new website for the Multidisciplinary Approach to Pelvic Pain (MAPP) Research Network, a $37.5 million per year multi-center and multidisciplinary study funded by the National Institutes of Health. The site offers information about research focus areas including epidemiological studies, phenotyping, neuroimaging and neurobiology, and biomarkers. The site will also provide updates on the investigation of the biologic and behavioral relationships between IC/PBS and CP/CPPS and other frequently related symptom-based conditions including fibromyalgia, irritable bowel syndrome (IBS), and chronic fatigue syndrome (CFS). Vulvodynia and migraine headache may also be studied. Visit the new MAPP site at www.mappnetwork.org.

NIH Announces MAPP Research Network Sites
9/30/2008

The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), one of the National Institutes of Health (NIH), recently awarded eight academic research centers to conduct collaborative studies of urologic chronic pelvic pain disorders by looking for clues outside the bladder and prostate. The Multidisciplinary Approach to the Study of Chronic Pelvic Pain (MAPP) Research Network includes six Discovery Sites that will conduct the studies and two Core Sites that will coordinate data collection, analyze tissue samples, and provide technical support.
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An Exciting New Chapter in Federally Funded Research on IC
9/5/2008

An exciting new chapter in federally funded research on interstitial cystitis (IC) was just launched by the National Institutes of Health (NIH). The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), one of the National Institutes of Health, announced today that $37.5 million new dollars will be dedicated to a 5-year initiative examining urologic chronic pelvic pain disorders, namely IC and chronic prostatitis in men.

The ICA and its team of patient advocates were instrumental in securing these research dollars. Over the course of many years, the ICA has bought the message to policy-makers both in the US Congress and at the NIH that collaborative, multi-disciplinary research on IC must be a priority. As a result, Congress specifically directed the NIDDK to examine these opportunities and encouraged them to work with the ICA.

Too many people with IC are suffering from a host of related conditions like irritable bowel syndrome (IBS), vulvodynia, chronic fatigue syndrome (CFS), and fibromyalgia, and we simply do not know why. Our hope at the ICA is that this effort known as "the Multidisciplinary Approach to the Study of Chronic Pelvic Pain (MAPP) Research Network" will begin to unlock the mystery of why so many of these conditions overlap and ultimately, identify treatments that will better relieve IC patients of their pain and suffering.

The ICA pledges to continue its work with Congress and the NIH to ensure that a robust research portfolio is set aside for IC and in particular, that the MAPP program is a success for all people with IC. For more information about the MAPP initiative, please visit the NIDDK's website.