|
STATE, CITY
|
SUPPORT GROUP
|
MEETING SCHEDULE & LOCATION
|
CONTACT
|
|
Arizona, Tucson
|
Tucson IC Support Group
|
WHEN: Every other month on the fourth Sunday at 2 PM.
WHERE: University Medical Center, 1501 North Campbell Avenue, Tucson.
Please email or call for additional information.
|
Marsha Crawford
tuazmom@gmail.com
520-751-9928
|
|
Arizona, Phoenix
|
Phoenix IC Support Group
|
Next meeting: Sunday, September 12th at 2 pm in the North Conference Room at the John C. Lincoln Hospital at North Mountain. The hospital is located at 250 E. Dunlap Avenue, Phoenix, AZ.
For our September 12th meeting, we are pleased to
announce that Dr. Robert S. Lipson
is speaking on how he diagnoses and treats IC. He is currently on staff with
Scottsdale Urologic Surgeons, Ltd. in Scottsdale, AZ.
WHEN: Second Sunday of each month at 2 PM (except in May)
E-mail or telephone for additional information about the support group meetings.
|
Barbara DiGilio
azic_help@cox.net
602-441-3644
|
|
Arizona, Sierra Vista
|
IC Support Group
|
Contact Carol for information on location, date, and time.
|
Carol
520-458-1883
|
|
Arkansas,
West Plains, MO
|
MoArk IC
Networking IC/chronic bladder pain patients and medical professionals throughout Missouri and Arkansas.
|
Contact Shelly Matthewson for more information.
See http://www.moarkic.com/ for more information.
|
Shelly Matthewson
Romans828@mozarks.com
417-255-1903
P.O. Box 1672
West Plains, MO 65775
|
|
California, Fresno
|
Urology Associates of
Central California (UACC) IC Education and
Support Group
|
Group meets once a month. Please call the RSVP
line, 559-321-2860 for date and location.
|
First contact: Kathryn
Villarreal, PA-C, 559-321-2881, email: kvillarreal@urologyassociates.net
Secondary contact:
Debra Saxton, 559-321-2921, email: debras@urologyassociates.net
|
|
California, Glendora
|
Citrus Valley IC Support Group
|
WHEN: Fourth Tuesday of every month, 6:30 PM.
Next meeting Tuesday, January 26, 6:30PM to 8:30PM
WHERE: Foothill Presbyterian Hospital in Glendora.
See www.icaction.com for more information.
|
Dr. Edward Davis
La38ft@aol.com
626-914-3921
|
|
California,
Los Angeles
|
Interstitial Cystitis Alternative Medical Association
|
Group meets once a month. Call for details.
|
Jeanne Townsend
patient-outreach@icama.org
310-231-3300
2001 S. Barrington Ave #115,
Los Angeles, CA
|
|
California,
Laguna Hills
|
Central Orange County IC Group
|
WHEN: Third Sunday of the month (except June and holidays) about 2:00 PM to 4:00 PM.
Please contact Jean Gardner for more information.
|
Jean Gardner
jncgardner@aol.com
(714) 544-2050 (evenings)
Lisa Kanouse
(562) 694-4601 (evenings)
|
|
California, Monterey
|
Pelvic Pain & Resource Sharing Group
For women with pelvic pain and dysfunction (IC, endometriosis, vulvodynia, etc.)
|
WHEN: First Saturday of each month from 10 AM to noon.
WHERE: 157 Sargent Ct., Monterey, CA 93940.
Call or email to check meeting dates.
|
Julie Tanaka, PT
therapyforlife@comcast.net
831-238-2357
|
|
California, San Diego
|
San Diego IC Support Group
Group Sponsor: Lowell Parsons, MD
|
WHEN: Group meetings are held from 1:30 to 3:00 pm on the first Sunday of February, April, June, October & December.
WHERE: Thornton Hospital (part of UCSD Medical Center) in the Coral Conference Room (located on the first floor near the cafeteria).
DIRECTIONS: Thornton Hospital is at 9300 Campus Point Drive, La Jolla, CA 92037. The hospital phone number is 858-657-7000 and the phone number of the Coral Conference Room is 858-657-6644.
Please check out our group website at:
http://health.groups.yahoo.com/group/ICSanDiego
|
Cathy Salazar-Martiarena
(858) 672-2249
Terry Ward
(619) 266-2701
|
|
California, San Luis Obispo
|
Central Coast California Support Group
|
WHEN: Quarterly.
WHERE: Conference room (main floor) at French Hospital located at, 1911 Johnson Avenue, San Luis Obispo.
|
Ann LaRose
thewildwildwest@yahoo.com
805-464-0564
|
California, Vacaville
|
Solano IC Support Group
|
Aug 10th 630pm
@ Vacaville Community Television Studio
100 McClellen
Vacaville, CA
Building G/F
|
Kristine Jo Langdon
707-365-6565
SolanoIC@live.com
|
|
Colorado, Denver
|
|
WHEN: Second Wednesday of each month at 6PM
WHERE: The Urology Center of Colorado, 2777 Mile High Stadium Circle, third floor conference room
Please call 303-825-8822 to confirm
http://www.tucc.com/index.cfm/0/0/67-Interstitial-Cystitis-Support-Group.html
|
Urology Center of Colorado
2777 Mile High Stadium
303-825-8822
|
|
Connecticut, New London
|
New London Area IC Support Group
Patients, family members and friends are welcome to attend.
|
WHEN: Third Wednesday of the month from 7:00 to 8:30 PM
WHERE: Lawrence Memorial Hospital, 365 Montauk Avenue, New London, CT.
DIRECTIONS: When you arrive, go to the main entrance & ask for the room assignment at the information desk (room assignments change according to hospital needs, sometimes at the last minute, so check each time). New members may call the hospital for directions at 860-442-0711.
|
Alyce Hemstreet
alycehemstreet@cs.com
860-442-0711, ext. 5071
(M-F, 8:00 AM to 5:00 PM)
860-739-7504 (after 7:00 PM)
|
|
Connecticut, New Haven
|
Yale Medical Group
|
WHEN: Second Tuesday of every month.
Please call for information.
|
Cherrilyn Richmond, RN
203-785-6927
|
|
Florida,
West/Central England
|
Patient Advocate
|
Provides phone and email support, IC information, and healthcare provider referrals. |
Iliana C. Brockman
Iliana@icrelief.com
|
|
Florida, Jacksonville
|
|
Call or email for support. |
Patricia Jones
PMsings2@bellsouth.net
904-269-8030
|
|
Florida, Saint Augustine
|
Old City IC Support
|
WHERE: 740 Charmwood Drive, Saint Augustine.
DIRECTIONS: Call for directions.
|
Marla Ray
mmartoglio@aol.com
501-2959
|
|
Florida, Fort Lauderdale
|
South Florida
|
WHERE: Center for Independent Living of Broward, 4800 North State Road 7, Building F, Suite 102, Fort Lauderdale, FL 33319.
|
Marcia Gordon
MGordon751@aol.com
954-752-4746
|
|
Florida, Vero Beach
|
The Vero Beach Interstitial Cystitis Support Group
|
WHEN: Meetings temporarily on hold.
WHERE: First Church of God, 1105 58th Avenue, Vero Beach, FL 32966
Email or phone Michelle and make sure you reference 'IC.'
|
Michelle Lindsey
linzeyfive@yahoo.com
772-321-2505
|
|
Georgia, Cartersville
|
Metro Atlanta Interstitial Cystitis Support Group
|
Our next meeting will be
on Thursday, September 16, 2010 at 6:30pm. The meeting will be
held at the Cartersville Medical Center (Cartersville Hospital), Cartersville
GA. North Tower classroom #1 across from the Cafeteria.
WHEN: Third Thursday of every other month at 6:30PM
WHERE: Classroom of the Emory Cartersville Medical Center in Cartersville.
|
Jeffrey Proctor, M.D.
770-607-1893
|
|
Georgia, Savannah
|
|
WHEN: Quarterly, call for dates and times.
WHERE: Chandler Hospital.
|
Jolene Seese
912-352-8632
|
|
Hawaii, Maui
|
Maui Support Group
|
Contact Suzzana.
|
Suzzana Goodwin
suzzana@hawaiiantel.net
808-572-7157
|
|
Idaho, Coeurd'alene
|
North Idaho Interstitial Cystitis Support Group
|
WHEN: Second Saturday of every month scheduled from 1:00 P.M. to 3:00 P.M. Email to confirm meeting dates.
WHERE: Event Room # KMC2 at the Kootenia Medical Center, 2003 Lincoln Way, Coeurd'alene.
DIRECTIONS: 208-666-2000 |
Katrina Brodwater
Katrina_brodwater@yahoo.com
Phone number available by request through e-mail
115 E. Anton #30
Coeurd'alene, Idaho 83815
|
|
Illinois, Dupage
|
Dupage Interstitial Cystitis Support Group
|
Contact Jean for more meeting information
|
Jean
jboak@sbcglobal.net
630-668-9800
|
|
Illinois, Mount Vernon
|
South Central Illinois IC Support Group
|
WHERE: St Mary's Hospital, Classroom #2, 605 N. 12th Street, Mt Vernon.
Refreshments served.
|
Angie
sci_ic_group@yahoo.com
618-925-4017
|
|
Illinois, Park Ridge
|
Northwest Suburban Interstitial Cystitis Support Group of Illinois
|
WHEN: Contact Barb for meeting dates.
WHERE: Lutheran General Hospital, 10th Floor of Main Hospital - Room 1064, 1775 Dempster Street, Park Ridge.
|
Barb Zarnikow
Bzarnikow@aol.com
847-478-9614
|
|
Indiana, Evansville
|
IC Support Group of Evansville
|
Contact group coordinators for information on location, date, and time.
|
Gerald Roach and
Angela Roach R.N.
ICSupportofIN@aol.com
812-205-6798 (days)
812-464-0068 (after 6:00 PM)
|
|
Indiana, Fort Wayne
|
Fort Wayne IC Group
|
WHEN:
1st Tuesday of month, 5:30pm-7pm
WHERE:
Women’s Health Center
Parkview Hospital North
11123 Parkview Plaza Dr,
Ste 200
Fort Wayne, IN 46845
1st meeting
3/2/10 - email or phone for information
|
CONTACT:
Deb Farrell
EMAIL:
FWICGroup@yahoo.com
PHONE:
260.482.8681 x3327 |
|
Iowa, Iowa City
|
I-SEE |
WHEN: Last Monday of every month.
WHERE: Iowa City Public Library, 123 Linn Street, Iowa City.
|
Beth Krayenhagen
beth-krayenhagen@uiowa.edu
319-471-1745
|
|
Kansas, Kansas City
|
Greater Kansas City IC Support Group
|
WHEN: Second Thursday of every other month, 7:00 PM to 9:00 PM. Refreshments at 6:30 PM.
WHERE: Rieke Auditorium, Kansas University Medical Center, 39th and Rainbow, Kansas City, Kansas.
DIRECTIONS: Free parking across from the bookstore on 39th street (north side of 39th street). The entrance to the meeting is at the bookstore. Call Gerri Rathbun 816-252-2566 or KUMC Health Resource Center 913-588-1227.
|
Gerri Rathbun
glr626@aol.com
816-252-2566
|
|
Louisiana, Lake Charles
|
|
Call or e-mail for schedule of meeting dates, times and general information.
|
Jacqueline Daigle
kirth@centurytel.net
337-588-4586 (after 6:00 PM)
|
|
Louisiana, Shreveport
|
IC Support Group
Group sponsor: Regional Urology LLC
Family and friends welcome.
|
WHEN: Third Thursday of the month (this date may fluctuate slightly according to speaker availability) on an every 3 month basis. IC friendly meal served.
WHERE: Office lobby at 255 Bert Kouns, Shreveport.
|
Malinda Whitfield, APRN, FNP-BC
mwhitfield@regionalurology.com
318-683-0411 ext 175
|
|
Maine, Bangor
|
Bangor Maine Area IC Support Group
|
WHEN: Second Monday of every month from 6:00 PM to 8:00 PM.
WHERE: Eastern Maine Medica Center, second floor cafeteria area.
|
Brenda Hanson
bmozartktty@aol.com
207-825-4457
|
|
Maryland, DC metro area
|
Baltimore/DC IC Support Group
|
WHEN: Sunday, March 7, 2010
Sunday, June 6, 2010
Sunday, September 12, 2010
Sunday, November 14, 2010
WHERE: Laurel, Maryland
For more information, visit the group web site at www.baltodcicsupport.com.
|
Tina Nachodsky
mailto:Tina@BaltoDCicSupport.com
|
|
Maryland, Baltimore
|
Baltimore Area IC Patient Support Group
|
WHERE: Chesapeake Urology, Suite 450, Owings Mills, MD
|
Sonya Hull
treasurepeace2@msn.com
240-280-2456
|
|
Michigan, Canton
|
Southeast Michigan IC Support Group
C0-sponsors: Henry Ford and University of Michigan Hospitals
|
WHEN:
Last
Thursday of every other month, 6:30-7:45 PM
Next meeting February 5, 2009 @ 7PM, guest speaker: Julie Beyer, MS, RD.
WHERE: Henry Ford Medical Center, 6100 Haggerty Road, Canton.
|
Laura Squires
248-714-9455
squireslaura@yahoo.com
|
|
Michigan,
Grand Rapids
|
Female Pelvic Medicine IC Support Group
|
WHEN: April 23, July 23, October 22 2009
6:00 pm
WHERE: Female Pelvic Medicine & Urogynecology
(@ Women’s Health Center of West MI)
555 Mid Towne St. NE Suite 450
Grand Rapids, MI 49503
|
Suzette
dietitian@grwh.org
or 616-588-1800
Anna
arogers@grwh.org
or 616-588-1139
|
|
Michigan, Port Huron
|
Blue Water IC Support Group
|
WHEN: First Wednesday of every other month from 7:00 PM to 9:00 PM.
WHERE: Meeting room at Mercy Hospital.
|
Sherry Campbell
anitakure@comcast.net
810-320-0224
|
|
Michigan, Royal Oak
|
ICMICH
|
WHEN: Third Thursday of the month, except July and December.
WHERE: First floor dining room of the Administration Building (on the campus of Beaumont Hospital), Royal Oak.
|
Jane Page
janepage@sbcglobal.net
248-549-8445
|
|
Michigan, Sagninaw
|
Midwest Support Group for Interstitial Cystitis/ Chronic Pelvic Pain
|
WHEN: Quarterly.
WHERE: Saginaw Center for Female Urology and Incontinence, 1740 Midland Road, Sagninaw.
Our next meeting will be on April 8th at 6:30 pm. Jennifer Knight a Physical Therapist will talk about therapy for IC patients and also share some simple exercises you can do at home.
|
Laura Hintz, Nurse Practitioner
989-799-4840
Angie Powers 810-694-3813 (home)
248-321-5692 (cell)
|
|
Michigan, Muskegon
|
Muskegon IC Support Group
|
WHEN: Twice yearly in the spring and fall.
WHERE: Mercy Health Partners-Lakes Campus
6401 Prairie, Suite 2300, Muskegon, MI.
|
Leslie S. Wooldridge, GNP-BC
lwooldri@hackley-health.org
231-727-7944
|
|
Michigan, St. Joseph
|
St. Joseph
|
WHEN: Third Thursday of the month at 7:00 PM, September through May.
WHERE: Room #1, Upton Center in Lakeland Hospital in St. Joseph, Michigan.
|
Marcia Koehler
ewkoe@peoplepc.com
269-429-8860
Chris Volk
chester468@hotmail.com
269-849-2165
|
|
Michigan,
Traverse City
|
Traverse City IC Support Group
|
Please call for phone support and information.
|
Jeri Hansen
231-932-7300
|
|
Minnesota, St. Louis Park
|
Park Nicollet IC Support
Group |
When: Quarterly- Our
first being March 25, 2010
Where: Frauenshuh Caner Center/attached
to Methodist Hospital.
All are welcome! Please call for more information
and to RSVP.
|
Contact: Diane Spindler 952-993-0377 |
|
Mississippi,
Southern region
|
IC Support Group of South MS
|
Feel free to contact Bridget for support.
|
Bridget Pigeon
southms_ic@yahoo.com
601-796-9933 (M-F after 5pm, or leave a message)
|
|
Missouri,
Kansas City, KS
|
Greater Kansas City IC Support Group
|
WHEN: Second Thursday of every other month, 7:00 PM to 9:00 PM. Refreshments at 6:30 PM.
WHERE: Rieke Auditorium, Kansas University Medical Center, 39th and Rainbow, Kansas City, Kansas.
DIRECTIONS: Free parking across from the bookstore on 39th street (north side of 39th street). The entrance to the meeting is at the bookstore. Call Gerri Rathbun 816-252-2566 or KUMC Health Resource Center 913-588-1227.
|
Gerri Rathbun
glr626@aol.com
816-252-2566
|
|
Missouri, St. Louis
|
W. I. S. H.
Washington University Interstitial Cystitis Support and Health Education Group
|
WHEN: Third Thursday of every other month. Refreshments served at 6:30 PM; presentations start at 7:00 PM.
Upcoming meetings:
Please note that the next meeting is Thursday, March 18, 2010. The
speakers are
Rebecca Bristol, RN and Vivien Gardner, RN, Washington University School of
Medicine, Division
of Urology. Their topic is called "Help us Understand Interstitial
Cystitis and More information about the IC Study".
WHERE: Barnes-Jewish Hospital West (Cafeteria Private Dining Room), 12634 Olive Boulevard, Saint Louis.
|
Bonnie Hana
314-394-0040
|
|
Missouri, West Plains
|
MoArk IC
Networking IC and chronic bladder pain patients and medical professionals throughout Missouri and Arkansas!
|
Contact Shelly Matthewson for more information.
See http://www.moarkic.com/ for more information.
|
Shelly Matthewson
Romans828@mozarks.com
417-255-1900
P.O. Box 1672
West Plains, MO 65775
|
|
Montana, Kalispell
|
Flathead Valley Support Group
|
Contact Alyson for meeting location and times.
|
Alyson Gregory
alysongreg@yahoo.com
406-212-2488 (anytime)
|
|
Montana, Statewide
|
|
Please phone or email for support or information.
|
Dianne Armstrong, RN
montanapets@earthlink.net
406-443-6488
|
|
Nebraska, Lincoln
|
IC support group of Nebraska |
When:
August 17th, 2010 from
6:30-7:30
Where: Urology PC 5500 Pine Lake Road Lincoln, NE
Our theme for this meeting is an "IC picnic"
We are planning on having a dietician speak on how our diet
affects our IC. Then we will be exchanging samplings and recipes of our
favorite foods for all those wishing to participate. All you need to do
is prepare a small amount of something you enjoy making and bring it
along to share with the group along with a copy of the recipe, otherwise just
show up for the information and fun.
|
Jodi Wills or Doris Minchew/ JodiRW2@aol.com
or DMinchow@NebRR.com or contact Urology PC @
402-489-8888 and ask to speak to a nurse
|
|
Nevada, Las Vegas
|
|
WHEN: Second Wednesday of January, March, June and September at 7:30 PM to 8:30 PM.
WHERE: Barbara Greenspun Women’s Care Center, 100 N. Green Valley Parkway, Ste. 330, Henderson.
|
Janelle
Lv_icsuppgrp@yahoo.com
(Lv underscore icsuppgrp)
702-616-6944
* Prefer email, thanks.
|
|
New Jersey, Barnegat
|
Hope for Healing
For anyone struggling with loss due to chronic pain syndromes and illnesses
|
WHEN: Every other Wednesday from 7:00 PM to 10:00 PM. Call or email Kimberlee for meeting place and dates.
|
Kimberlee Armengol
Hope4cure@comcast.net
609-978-1026
|
|
New Jersey,
New Brunswick
|
IC Support Group of Central New Jersey
|
WHERE: Health Center for Women: 3rd Floor Conference Room. CARES Building at St. Peter's University Hospital, 254 Easton Avenue, New Brunswick, NJ
DIRECTIONS: Park in the CARES building lot. Fee is $3.00. Take elevator to 3rd floor.
|
Michelle Brill, Group Director
Brillo4@aol.com
732-390-0422
|
|
New Jersey, Voorhees
|
South Jersey IC Support Group
|
WHEN: Saturday afternoons, 1:00 PM to 3:00 PM. Meetings in 2010: January 9, March 13, May 8, July 11, September 11, and November 13.
WHERE: Virtua West Jersey Hospital, Voorhees
DIRECTIONS: Evesham Road at Carnie Boulevard. John Young room (downstairs, next to the cafeteria).
Additionally, feel free to call Linda Benecke with any questions.
|
Linda Benecke
856-667-5842
|
|
New Mexico,
Albuquerque
|
New Mexico IC Patient Support Group
|
WHEN: Quarterly.
Next meeting:
Saturday, August 7, 2010
1 PM to 2:30 PM
Sandia/Taos Room at
Presbyterian Kaseman Hospital
WHERE: Presbyterian Kaseman Hospital, 8300 Constitution Ave NE, Albuquerque, NM. Conference Room B.
DIRECTIONS: Hospital phone number 505-291-2000.
For more information or IC support, please contact Teresa McCoy.
|
Teresa McCoy
icnewmex@aol.com
505-463-2918
|
|
New York, Lowville
|
Northern New York
|
WHEN: Contact Beth for meeting details.
WHERE: Lewis County General Hospital in Lowville.
|
Beth Monnat
jmonnat1@twcny.rr.com
315-346-6405
|
|
New York,
New Hyde Park
|
Interstitial Cystitis Support Group
|
WHEN:
Sunday, February
28, 2010
9AM-12PM
WHERE: The Arthur Smith Institute for Urology, conference room
450 Lakeville Road Suite M-41, New Hyde Park, NY 11040
|
Please RSVP at either DMcKay@lij.edu or MRuzimov@nshs.edu or
(516)734-8565 (leave message)
|
|
New York, Rochester
|
IC Support Group of Rochester
|
WHEN: Meets monthly. See website for dates, times, locations and contact info.
|
www.freewebs.com/icsgr
|
|
New York, Saratoga Springs
|
|
|
Support group forming in Saratoga Springs, NY, for IC bladder patients. For more information, please call 518-587-0326 and leave a message with your name and number. |
|
North Carolina, Asheville
|
Western North Carolina IC Support Group
|
WHEN: Third Saturday of each month at 3:00 pm
The group will not meet in November or December or in snowy weather.
WHERE: The Atlanta Bread Company on Merrimon Avenue in Asheville. We will meet in the far right hand corner as you enter. Our location may change at a later date.
|
Nancy Williams
captivaorbust@charter.net
828-252-5045
|
|
North Carolina, Pinehurst and
surrounding area
|
|
First mtg September 2010, 7 pm at Conference Center of First Health, Moore Regional Hospital. Pinehurst, NC. Conf room C. |
Diane Evans
910-673-3992
Jeanne Schrier
910-295-3744 |
|
Ohio, Cleveland
|
IC We Can Help Each Other
|
WHEN: Saturday, 1:00 PM to 3:00 PM.
2009 meeting schedule: January 17, February 21 (Valentine's Day Party, Guest Speaker: Author of IC books, Catherine M. Simone), March 21, April 18, May 16, June 20, July 18, August 15, September 19, October 17, November 21, and December 19.
2010 meeting: January 16
WHERE: Panera Bread (Small Meeting Room) 5090 Tiedeman Rd, Brooklyn
DIRECTIONS: 216-362-8130
|
Heather M. Schwarz
IC_HeatherSchwarz@yahoo.com
216-351-4579 (Home)
216-218-4606 (Cell)
|
|
Ohio, West Chester
|
IC Support Group of Cincinnati
|
Meeting dates for 2010:
January 26
March 23
May 25
July 27
September 28
November 9
WHERE: Christ the King Lutheran Church, 7393 Dimmick Rd. West Chester.
DIRECTIONS: Call for directions.
|
Jean Verbarg
jacjeaver@aol.com
513-874-3573
Nancy Hicks
nanwood4@aol.com
513-459-1769
|
|
Ohio, Columbus
|
IC Support Group of Columbus
|
WHEN: Second Wednesday of the month from 7:00 PM to 8:30 PM. Please contact Tina prior to each meeting date to confirm the event.
WHERE: Meadow Park Church of God, 2425 Bethel Road, Columbus, OH, Room 149 C&F.
For more information, visit http://www.iccolumbus.org/.
|
Tina Evans
ic1cols2004@yahoo.com
614-846-1209
|
|
Ohio, Lima
|
Interstitial cystitis support group
|
Contact Jackie, Cheryl or Jaime at Dr. Chung's office, 419-228-1000 or 800- 27CHUNG.
|
Jackie, Cheryl, or Jaime
419-228-1000
http://www.obgynphy.com/
|
|
Ohio, Marion
|
IC support group
|
WHEN: Fourth Monday of every month from 6:30 PM to 8:00 PM.
WHERE: Marion-Smith Clinic in Marion.
|
Vickie
740-383-8093
|
|
Oklahoma, Choctaw
|
IC Support Group
|
The group is for people with IC, fibromyalgia, chronic fatigue syndrome, trigeminal neuralgia, facial pain, IBS and other painful disorders.
|
Brenda Finch
brenda.moore@tds.net
405-390-8624
|
|
Oklahoma, Tulsa
|
Tulsa IC Support Group
|
WHEN: Nov. 19, 2009 5:15- 6:15 Topic “pelvic floor rehab. From a PT perspective”
Feb. 25th, 2010 5:15-6:15 “Neuromodulation as an IC treatment”
May 27th 2010 5:15-6:15 To be determined
WHERE: Urologic Specialists of OK, 10901 East 48th St. South.
|
Barbara Moore
Davbar4@yahoo.com
918-402-4381
|
|
Oregon, Grants Pass
|
Southern Oregon Interstitial Cystitis Support Group
|
Can leave a message anytime. Plan on having meetings at my house the first Monday of each month. Call for address.
|
Cheryl Gross
cheryllynn40@hotmail.com
541-660-3100
541-226-2177
|
|
Oregon, Portland
|
Portland Oregon Support Group
|
|
Tammy Seid, Telephone Support - PORTLAND, OREGON & outline areas of the PNW. (503) 697-2060 Oregon IC State Coordinator - Volunteer
pmccallig@Gmail.com
E-Mail: - Volunteer Support Internet (retired) CURN BSN, RN, Bates, McCallig Patti
Norm Duffett - Volunteer - Telephone Support for (MEN) Portland, Oregon & outline areas. (503) 330-5662 (Cell) |
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Pennsylvania, Darlington
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New support group starting! Meeting place and dates to be announced shortly.
Darlington PA and Cranberry Township (North of Pittsburgh) as well as Beaver County, and Eastern Ohio.
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mail: EMargy Goehring margy.goehring@yahoo.com
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Puerto Rico
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Iraida Cortijo
787-642-4176
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Rhode Island, Cranston
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Group leader: Lynne La Bianca
When : Second Saturday of each month from 2-4, starting May 8th.
Looking forward to meeting you all!!
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E mail: LYN712@COX.NET
Phone: 401-632-4877-home; and cell: 401-529-1464 (Please call anytime for support) |
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South Carolina,
Chesnee
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Check message board for meeting dates and times:
http://health.group.yahoo.com/group/icinsc
Requires membership sing up. Free membership. We often have open chat and sometimes a guest speaker.
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Mrs. Rhonda Greenway
dixiefireball32@gmail.com
864-461-2351 (12 to 5 PM)
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South Carolina
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Facebook Support Group
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http://www.facebook.com/board.php?uid=150497896670#!/pages/Interstitial-Cystitis-Circle-of-Friends-in-SC/479599745326?ref=ts
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Tennessee, Nashville
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WHEN: Tuesday evening, 6:30 PM to 8:00 PM.
WHERE: Contact group leader.
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Becky Wilson
rebeccacwilson@yahoo.com
615-582-7335
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Tennessee,
Oliver Springs
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A new support group is forming. Please contact Pam Hughes if you are interested in attending a meeting.
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Pam Hughes
hughespam@comcast.net
865-435-5363 (home)
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Tennessee, Statewide
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The Tennessee IC Support Network
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For details please visit www.ictnsupport.com.
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http://www.ictnsupport.com/
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Texas, Austin
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Central Texas IC Support Group – Austin
All IC patients and persons seeking IC information are welcome.
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WHEN: Second Monday of every month, from 6:30 PM to 8:00 PM.
WHERE: Seton Hospital on 38th Street, Austin.
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Roy Gafford
roygafford@sbcglobal.net
512-258-5840
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Texas, Dallas
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IC Dallas Support Group
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WHEN: First Monday of every month from 7:00 PM to 9:00 PM.
WHERE: Baylor Richardson Medical Center at 401 W. Campbell Road, Richardson, Texas. Medical Office Building I - Conference Room #2 (first floor).
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Beth Ann McKinney
bamckinn11@aol.com
972-964-5884
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Texas, Fort Worth
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Meets
in the Robb Rutledge Education
Center at
6:30 p.m. on the second Tuesday of each month.
Texas
Health Harris Methodist Hospital Fort Worth
1301 Pennsylvania Ave. Fort Worth, TX 76104
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Texas, North Texas
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PURE HOPE
North Chapter
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Meetings held bi-annually. For more information go to www.pure-hope.org.
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Tina Dodd
tdodd@pure-hope.org
281-353-8078
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Texas, Houston
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PURE HOPE
Medical Center Chapter
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Meetings held bi-annually. For more information go to www.pure-hope.org.
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Jennifer Ward
jward@pure-hope.org
281-489-0602
Novetta Tudor
ntudor@pure-hope.org
713-636-2401
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Texas, San Antonio
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Bi-annual IC education and support meetings
Group sponsor: Urology San Antonio
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WHEN: Meeting held at least once every six months from 6:30 PM to 7:30 PM. See Urology San Antonio website for specific dates.
WHERE: 7718 Louis Pasteur Court, San Antonio.
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Urology San Antonio
Community Education and Outreach Coordinator
210-582-5604
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Texas Lubbock
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IC Lubbock
Lubbock Texas
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Please contact us for meeting info.
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Wendy Cowan
iclubbock@yahoo.com
806-778-6795
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Vermont, Statewide
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IC Support Group of Vermont
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Please phone or email for more information or support.
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Susie Turnau
802-253-1887
js@stowevt.net
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Vermont, Nashua, NH
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Group for people suffering from bladder diseases
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Contact Cecilia for more information.
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Cecilia Svendbye
603-882-2295
Lakambini19@yahoo.com
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Virginia,
DC metro area
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Baltimore/Washington DC IC Support Group
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WHEN: Quarterly.
WHERE: Laurel, Maryland
For more information, visit the group web site at www.baltodcicsupport.com.
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Tina Nachodsky
Tina@BaltoDCicSupport.com
P.O. Box 285
Bel Air, MD 21014
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Virginia, Winchester
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IC - Winchester
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WHEN: First Monday of every month.
WHERE: Winchester Medical Center - Medical Office Building 1 entrance then take elevator to Mall Level to Conference Room 1. Meetings held right around the corner from the subway.
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Kimberly Strawderman
snaggletooth@gmail.com
540-539-3861
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Washington, Bremerton
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WHEN: Third Saturday of every month from 11:00 AM to 12:30 PM.
WHERE: Main floor auditorium of the Harrison Hospital, 2520 Cherry Avenue, Bremerton, WA.
DIRECTIONS: Go in the main entrance and directly to the left to auditorium.
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Jeannine Lewis
jmnidart@oz.net
360-698-1090
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Washington,
Federal Way
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Federal Way IC Support Group
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WHEN: Contact Angela.
WHERE: St. Francis Hospital
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Angela
avance@nventure.com
253-925-0368
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Washington, Yakima
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Yakima IC Support Group
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Contact Sherry for information and support.
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Sherry
rweddle9771@msn.com
509-965-9771 or 509-961-8619
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Washington,
South West
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Oregon Support Group
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Please contact us for meeting info. Also call for telephone support.
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Barb Wills, Internet Support - Volunteer - E-Mail: garybarbwills@aol.com *First Choice
Telephone Support (If needed) (360) 573-6518*Second Choice
*Will cover VANCOUVER, WASHINGTON, and outline areas if needed. (WASHINGTON STATE)
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Washington, Wenatchee
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IC Valley Gals
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WHEN: Meeting dates vary, at least once per quarter. Local Physician normally attends.
WHERE: Meet at Central Washington Hospital, Conference Room A, adjacent to the cafeteria.
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Lisa de Vera
ldevera@nwi.net
509-663-6755 or
Cell: 509-860-7466
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West Virginia,
Morgantown
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WV IC Support Group
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WHEN: Call for meeting dates and times.
WHERE: West Virginia University's Physician Office Center, Conference Rooms 4C & 4D.
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Christina J. Werdebaugh
cjes2000@hotmail.com
304-594-3949 or 304-692-9199
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Wisconsin, Statewide
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WHEN: Please email for dates, times and locations.
WHERE: Meets in different places to make things easier on those that can't travel well.
http://health.groups.yahoo.com/group/ICinWI
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Katrina
carmelann@charter.net
http://icandme.9.forumer.com
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