US Support Groups


The ICA is pleased to provide you with a list of IC, painful bladder syndrome (PBS), and chronic pelvic pain support groups in the United States and around the world. If you know of an existing IC support group that is not on this list, please ask the leader to provide us with the following information:

    • Location (city and state)
    • Name of group
    • Meeting schedules and place (day and time)
    • Contact information (email plus phone number and best time to call)


To protect the validity of this information, please email us at icamail@ichelp.org. We will gladly add information about your support group to our listing.

Don't see a support group in your area? Check out the ICA's Online Support Community!

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

 

 

STATE, CITY

SUPPORT GROUP

MEETING SCHEDULE & LOCATION

CONTACT

Arizona, Tucson

Tucson IC Support Group

 

WHEN: Every other month on the third Sunday at 2 PM.

WHERE: University Medical Center, 1501 North Campbell Avenue, Tucson.

Please email or call for additional information.

Marsha Crawford
tuazmom@gmail.com

520-331-6065

Arizona, Phoenix

Phoenix IC Support Group

Next meeting: Lloyd Wright, Acupuncturist, will be speaking at the June 8, 2 pm meeting of the Phoenix I. C. Support Group. We meet at the Phoenix Baptist Hospital, 2000 W. Bethany Home Rd., Phoenix, AZ in their Wellness Room. There is plenty of parking next to building. Arrive early for best seating and we start on time. Members, family, friends, etc. are all welcome and there is no charge to attend.

All questions to: Heather Brown, Leader at heatherbarrowbrown@gmail.com or 623-689-2537 or carolyn.whitekrueger@gmail.com, Patient Advocate.

Heather Brown, Leader
623-349-4611
heatherbarrowbrown@gmail.com

 

Arizona, Phoenix

IC You of the East Valley

WHEN: Meets 2nd Wednesday of each month.

LOCATION: 48th St. and Chandler (private residence)
http://www.meetup.com/IC-You-of-the-East-Valley/

laughoftenandlivewell@gmail.com

Arizona, Sierra Vista

IC Support Group

Contact Carol for information on location, date, and time.

Carol
520-458-1883

Arkansas, Little Rock

Arkansas IC Support Group Meeting place: First Church of Nazarene 1200 N Mississippi St.Little Rock, Arkansas 72207

Meeting Schedule: Every other month. Third Monday of the Month at 7 pm. Next meeting is February 18th at 7pm
email: icgroup.little.rock.ar@gmail.com

phone: 985-285-6541

call times Mon-Fri between 6pm-9pm. Saturday and Sunday after 1pm-9 pm

Arkansas,
West Plains, MO

MoArk IC

Networking IC/chronic bladder pain patients and medical professionals throughout Missouri and Arkansas.

Contact Shelly Matthewson for more information.

See http://www.moarkic.com/ for more information.

Shelly Matthewson
Romans828@mozarks.com
417-255-1903

P.O. Box 1672
West Plains, MO 65775

California, Fresno

Urology Associates of Central California (UACC) IC Education and Support Group

Group meets once a month. Please call the RSVP line, 559-321-2860 for date and location.

First contact: Kathryn Villarreal, PA-C, 559-321-2881, email: kvillarreal@urologyassociates.net

Secondary contact: Melodie Moore
melodiem@urologyassociates.net

California, Glendora

Citrus Valley IC Support Group

WHEN: Fourth Tuesday of every month, 6:30 PM.

WHERE: Foothill Presbyterian Hospital in Glendora.

See www.icaction.com for more information.

Dr. Edward Davis
La38ft@aol.com
626-914-3921

California,
Newport Beach

Orange County IC Support Group

WHEN: Third Sunday of the month (except June and holidays) about 2:00 PM to 4:00 PM at Hoag Hospital in Newport Beach.

Please contact Lori Moody or like our Facebook page for more information.

Lori Moody
icocsg@gmail.com
(714) 290-1531

California, Riverside

Endometriosis Support Group

WHEN: Meets the 3rd Wednesday of each month (except for August and December), rather than the third Thursday.

LOCATION: 7on the Lower Level of the Riverside Medical Clinic, 7117 Brockton Avenue, Riverside, CA 92506

Doors open at 6:30PM and meeting starts at 7:00PM

Elitia Matthews
Riverside Medical Clinic Foundation
Monday - Friday (8:30AM-5PM)

(951) 682-2753

California, San Diego

San Diego IC Support Group

Group Sponsors:

Lowell Parsons, MD

Bruce S. Kahn, MD, FACOG

WHEN: Group meetings are held from 1:30 to 3:00 pm on the first Sunday of February, April, June, October & December.

WHERE: Thornton Hospital (part of UCSD Medical Center) in the Coral Conference Room (located on the first floor near the cafeteria).

DIRECTIONS: Thornton Hospital is at 9300 Campus Point Drive, La Jolla, CA 92037. The hospital phone number is 858-657-7000 and the phone number of the Coral Conference Room is 858-657-6644.

Please check out our group website at:
http://health.groups.yahoo.com/group/ICSanDiego

Cathy Salazar-Martiarena
(858) 672-2249

Terry Ward
(619) 266-2701

California, San Luis Obispo

Central Coast California Support Group

 

WHEN: Quarterly.

WHERE: Conference room (main floor) at French Hospital located at, 1911 Johnson Avenue, San Luis Obispo.

Ann LaRose
805-464-0564

Colorado, Colorado Springs

Mountain Oasis Psych Assoc support/psycho-educational group for IC patients   J Blair Cano, MA
jbcano@mountainoasispsych.com
(719) 964-8953

Colorado, Denver

 

WHEN: Second Wednesday of each month at 6PM

WHERE: The Urology Center of Colorado, 2777 Mile High Stadium Circle, third floor conference room

Please call 303-825-8822 to confirm

Urology Center of Colorado
2777 Mile High Stadium
303-825-8822

Colorado,
Statewide

 

Email support and information serving the state of Colorado.

Amelia R.
AmeliaRaiteIC@gmail.com

Connecticut, New Hartford

 IC Support Group

WHEN: Second Tuesday of the month from 6:30 to 8:00 PM.

WHERE: Licia & Mason Beekley Community Library, 10 Central Ave., New Hartford, CT 06057

Lisa Cushman
lisa@lisacushman.com

Connecticut, New Haven

Yale Medical Group

WHEN: Second Tuesday of every month.

Please call for information.

Cherrilyn Richmond, MS, WHNP-BC
203-785-6927

Florida, Statewide

 

Please email for more information or support.

Susie Turnau
js@stowevt.net

Florida,
West/Central England

Patient Advocate

Provides phone and email support, IC information, and healthcare provider referrals.

Iliana C. Brockman
Iliana@icrelief.com

Florida, Jacksonville

  Call or email for support.

Patricia Jones
PMsings2@yahoo.com
904-751-3038

Florida, Orlando IC Support of Central Florida Contact Amber for location details Amber Carter
407-797-6717
AmberRenee710@yahoo.com

Florida, Fort Lauderdale

South Florida IC Support Group

WHERE: “Baptist Medical Plaza at Coral Springs”
6264 W. Sample Road
Coral Springs, FL 33067
(in the Diagnostic Imaging lobby)

NEXT MEETING: May 18, 2014

Marcia Gordon
MGordon751@aol.com
954-752-4746

Florida, Tampa OPPT Pelvic Pain Support Group When: May 9, 2013
Time: 7:00 P.M.
Where: 2700 W. Dr. Martin Luther King Jr., Blvd Suite 300
Tampa, FL 33607
Phone: 813-805-8108
Florida, Tampa/St. Petersburg  

Meetings: The third Tuesday of each month

Seabreeze Physical Therapy
419 Pasadena Ave.
St. Petersburg, FL 33707

Leader: Ann-Marie Bragano
Phone: 727-384-3600

Florida, Treasure Coast

Interstitial Cystitis Support Group of the Treasure Coast

Meets on the 1st Saturday of every month at 1:00 pm

For location details please contact Michelle Lindsey, Support Group Leader

Email or phone Michelle and make sure you reference 'IC.'

Michelle Lindsey
linzeyfive@yahoo.com
772-971-4176

Georgia, Cartersville

Metro Atlanta Interstitial Cystitis Support Group

Meets every other Month on the 3rd Thursday of each month at Cartersville Medical Center, 960 Joe Frank Harris Parkway, Cartersville Hospital, Classroom #1 (across from the cafeteria) Cartersville, GA 30120 from 6:30 pm to 8:00 pm

2014 support group meetings schedule:

March 20, 2014
Guest Speaker – Innovation Compounding, Inc. Discuss compounded Rescue Treatments for IC as well as some compounded creams made by this local compounding pharmacy located in Kennesaw, GA.

May 15, 2014
Guest Speaker Dr. Sara Bolden pelvic pain & Trigger Point Release as therapy for IC

July 17, 2014
Dr. Proctor speaking on the highlights of the annual 2014 AUA (American Urological Association) meeting

September 18, 2014
Guest Speaker Dr. Sara Bolden speaking on sexual dysfunction in IC patients

November 20, 2014
Dr. Proctor & Judy Eichner Reviewing the IC Diet & also a Power Point Presentation on the IC Diet

Judy Eichner
icatlanta@live.com

Jeffrey Proctor, M.D.
770-607-1893

http://www.facebook.com/?ref=tn_tnmn#!/groups/73169908984/

Georgia, Savannah

 

WHEN: Quarterly, call for dates and times.

WHERE: Chandler Hospital.

Jolene Seese
912-352-8632

Hawaii, Maui

Maui Support Group

Contact Suzzana.

Suzzana Goodwin
suzzana@hawaiiantel.net
808-572-7157

Illinois, Chicago   WHEN: Saturday, September 21 from 2-3:30pm in the Lincoln Park Library.

Jennifer Kilcline

jennifer.kilcline@sbcglobal.net

Illinois, Dekalb Dekalb Area IC Support Group For information on location, date, and time, please contact Tracie.

Leader: Tracie Klug
Phone: (815) 761-4902

Illinois, Dupage

Dupage Interstitial Cystitis Support Group

Contact Jean for more meeting information

Jean
jboak@sbcglobal.net

630-668-9800

Illinois, Mount Vernon

South Central Illinois IC Support Group

WHERE: St Mary's Hospital, Classroom #2, 605 N. 12th Street, Mt Vernon.

Refreshments served.

Angie
sci_ic_group@yahoo.com
618-925-4017

Illinois, Naperville

Women's Center for Pelvic Medicine IC Support Group Meetings are held on the third Thursday of each month from 6:30-7:30pm in the Heart Hospital conference room on the main floor. For more information please call 630.527.5120 or go to www.edward.org/pelvicpainsupport

Illinois, Park Ridge

 

NW Suburban Illinois IC Support Group

When: Contact Barb for meeting dates.

Next Meeting: Monday, April 14

Guest Speakers:
MAPP Study Reserachers:
Dr. David Klumpp and Dr. James Griffith 

Where:
Lutheran General Hospital
10th Floor of Main Hospital - Room 1064
1775 Dempster Street
Park Ridge, IL

Barb Zarnikow
Bzarnikow@aol.com
847-478-9614

Indiana, Evansville

IC Support Group of Evansville

Contact group coordinators for information on location, date, and time.

Gerald Roach and
Angela Roach R.N.
ICSupportofIN@aol.com

812-205-6798 (days)
812-464-0068 (after 6:00 PM)

Indiana, Fort Wayne

Fort Wayne IC Group

WHEN: 1st Tuesday of month, 5:30pm-7pm

WHERE: Women’s Health Center Parkview Hospital North
11123 Parkview Plaza Dr,
Ste 200
Fort Wayne, IN 46845

CONTACT: Deb Farrell
EMAIL: FWICGroup@yahoo.com
PHONE: 260.482.8681 x3327

Indiana, Indianapolis

Pelvic Pain Support Group

WHEN: Monthly on Saturdays at 2PM

NEXT MEETINGS: Saturday, September 7, October 12, and November 23, 2013

Healthy Pelvis Healthy Core
9640 Commerce Dr. Ste 410
Carmel, IN 46032

phone: 317.735.2479
fax: 317.663.0799
www.myhealthypelvis.com

Iowa, Iowa City

 

I-SEE

WHEN: Last Monday of every month.

WHERE: Iowa City Public Library, 123 Linn Street, Iowa City.

Beth Krayenhagen
319-471-8469
bkrayenh@yahoo.com

Kentucky, Bowling Green   Meets on the third Wednesday of each month at 5:30PM

Medical Center
350 Park St.
Bowling Green, KY

Meetings are in the conference room
April Lee
aprilslee@windstream.net

Cell: 270-991-5698

Kentucky, Lexington

Lexington IC Support Group When: 2nd Thursday of each month

Time: 5:30 pm

Place: Lexington Public Library
Eagle Creek Branch
101 N. Eagle Drive
Lexington, KY 40509
Contact: Cindy Hayden cindy.hayden@eku.edu

Cell: 615 426 1492

Call between 10 am and 3 pm EST

Louisiana, Lake Charles

 

Call or e-mail for schedule of meeting dates, times and general information.

Jacqueline Daigle
kirth@centurytel.net
337-588-4586 (after 6:00 PM)

Louisiana, Shreveport

 

IC Support Group

Group sponsor: Regional Urology LLC

Family and friends welcome.

WHEN: Third Thursday of the month (this date may fluctuate slightly according to speaker availability) on an every 3 month basis. IC friendly meal served.

WHERE: Office lobby at 255 Bert Kouns, Shreveport.

Malinda Whitfield, APRN, FNP-BC
mwhitfield@regionalurology.com
318-683-0411 ext 175

Maine, Bangor

 

Bangor Maine Area IC Support Group

WHEN: Second Monday of every month from 6:00 PM to 8:00 PM.

WHERE: Eastern Maine Medica Center, second floor cafeteria area.

Brenda Hanson
bmozartktty@aol.com
207-825-4457

 

Maryland, DC metro area

Baltimore/DC IC Support Group

WHERE: Laurel, Maryland

For more information, visit the group web site at www.baltodcicsupport.com.

Tina Nachodsky
mailto:Tina@BaltoDCicSupport.com

 

Maryland, Baltimore Interstitial Cystitis Support Group Where: Center for Urologic Specialties
5051 Greenspring Ave.
Ste. 302
Baltimore, MD 21209

For questions, contact Donna at 410-937-8882.
Hosted by David Gordon, MD, FACS

Facilitated by Donna Shin, MS, LCPC
Maryland, Rockville Pain Connection Support Group

Where: 12320 Parklawn Dr.
2nd Floor
Rockville, MD 20852

When: April 14, 2014,

Gwenn Herman, LCSW-C, DCSW
301-231-0008
www.painconnection.org
Massachusetts   Phone & Email Support Molly Glidden
508-655-4726
icersmeet@aol.com
Massachusetts, Dedham IC Support Group Endicott Library
257 Mount Vernon St
Dedham, MA

Held on the third Saturday of the every month at 10:15am

Due to the holidays, the support group will not meet on December 21st.
Group Leader: Annette Eddy annetteeddy@rcn.com
Massachusetts, Newton Pelvic Pain Support Group When: 2nd and 4th Monday of every month
Time: 7-9pm
Where: Newton Wellesley Hospital 2014 Washington St.
Newton, MA
Conference Center Bowles 6
Contact: Annette Eddy 781-407-0914 annetteeddy@rcn.com

Michigan, Canton

 

Southeast Michigan IC Support Group

C0-sponsors: Henry Ford and University of Michigan Hospitals

WHEN: Last Thursday of every other month, 6:30-7:45 PM

WHERE: Henry Ford Medical Center, 6100 Haggerty Road, Canton in the cafeteria.

Name: Sarah C.
Phone: (248) 761-8752
Email: semichiganicfree@gmail.com

Michigan,
Grand Rapids

Female Pelvic Medicine IC Support Group

WHERE: Female Pelvic Medicine & Urogynecology (@ Women’s Health Center of West MI)
555 Mid Towne St. NE
Suite 450
Grand Rapids, MI 49503

For more information: http://grpelvicmed.com/ ... icsupportgroup/

Elizabeth Braun, Dietician
616-588-1800

Michigan, Port Huron

 

Blue Water IC Support Group

 

WHEN: First Wednesday of every other month from 7:00 PM to 9:00 PM.

WHERE: Meeting room at Mercy Hospital.

Sherry Campbell
anitakure@comcast.net
810-320-0224

Michigan, Royal Oak

 

ICMICH

 

WHEN: Third Thursday of the month, except July and December.

WHERE: First floor dining room of the Administration Building (on the campus of Beaumont Hospital), Royal Oak.

Jane Page
janepage@sbcglobal.net
248-549-8445

Michigan, Sagninaw

Midwest Support Group for Interstitial Cystitis/ Chronic Pelvic Pain

 

WHEN: Quarterly.

WHERE: Saginaw Center for Female Urology and Incontinence, 1740 Midland Road, Sagninaw.

Laura Hintz, Nurse Practitioner
989-799-4840

Angie Powers 810-694-3813 (home)
248-321-5692 (cell)

Michigan, Muskegon

 

Muskegon IC Support Group

 

WHEN: We will now be meeting the second Tuesday of all odd months from 6-7pm. The dates for 2014 include: 5/13/14, 7/8/14, 9/9/14, and 11/11/14.

WHERE: Mercy Health Partners, Lakes Village, the meeting will take place in the Board Room on the 2nd Floor. 6401 Prairie Street, Muskegon, MI 49444.

For directions or to RSVP please call 231-727-7944

CONTACT:
Jennifer Mosher, WHNP-BC, CUNP
mosherjl@mercyhealth.com
231-727-7944

Kristin Felt, CURN
feltk@mercyhealth.com
231-727-7944

Michigan, St. Joseph

 

St. Joseph

 

WHEN: Third Thursday of the month at 7:00 PM, September through May.

WHERE: Room #1, Upton Center in Lakeland Hospital in St. Joseph, Michigan.

Marcia Koehler
ewkoe@peoplepc.com
269-429-8860


Chris Volk
chester468@hotmail.com
269-849-2165

Michigan,
Traverse City

Traverse City IC Support Group

 

Please call for phone support and information.

Jeri Hansen
231-932-7300

Missouri,
Kansas City

 

Kansas City MO IC Support Group

 

New Group Starting October 6, 2014

WHEN: The 1st Monday of each month from 7pm-8:30pm

WHERE: North Kansas City Hospital Health Services Pavilion—Burlington Room, 1st floor (2790 Clay Edwards Drive Kansas City, MO) Parking: Parking on the "Purple" section of Parking garage (Level 1) in between entrances 6 and 7 When: The 1st Monday of each month from 7pm-8:30pm

Madalyn Henderson
(660) 654-4398
madyhenderson@gmail.com

Missouri, St. Louis

 

W. I. S. H.

Washington University Interstitial Cystitis Support and Health Education Group

WHEN: Third Thursday of every other month. Refreshments served at 6:30 PM; presentations start at 7:00 PM.

WHERE: Barnes-Jewish Hospital West (Cafeteria Private Dining Room), 12634 Olive Boulevard, Saint Louis.

Bonnie Hana
314-394-0040

Missouri, West Plains

 

MoArk IC

Networking IC and chronic bladder pain patients and medical professionals throughout Missouri and Arkansas!

Contact Shelly Matthewson for more information.

See http://www.moarkic.com/ for more information.

Shelly Matthewson
Romans828@mozarks.com
417-255-1900

P.O. Box 1672
West Plains, MO 65775

Montana, Kalispell

 

Flathead Valley Support Group

Contact Alyson for meeting location and times.

Alyson Gregory
alysonegregory@gmail.com
406-212-2488 (anytime)

Montana, Statewide

 

Please phone or email for support or information.

Dianne Armstrong, RN
di@montanapets.org
406-443-6488

Nebraska, Lincoln

IC support group of Nebraska

Where: Urology PC
5500 Pine Lake Road
Lincoln, NE

Next Meeting: February 18, 2014
6:30-7:30 PM

Jodi Wills or Doris Minchew/ JodiRW2@aol.com or DMinchow@NebRR.com or contact Urology PC @ 402-489-8888 and ask to speak to a nurse

New Jersey, Barnegat

Hope for Healing

For anyone struggling with loss due to chronic pain syndromes and illnesses

 

WHEN: Every other Wednesday from 7:00 PM to 10:00 PM. Call or email Kimberlee for meeting place and dates.

Kimberlee Armengol
Hope4cure@comcast.net
609-978-1026

New Jersey,
New Brunswick

IC Support Group of Central New Jersey

WHEN: Evenings from 7-9pm on the following 2014 dates: April 22, June 17, August 19, October 21, December 16

WHERE: Health Center for Women: 3rd Floor Conference Room. CARES Building at St. Peter's University Hospital, 254 Easton Avenue, New Brunswick, NJ

DIRECTIONS: Park in the CARES building lot. Take elevator to 3rd floor.

Michelle Brill, Group Director
Brillo4@aol.com
732-390-0422

 

New Jersey, Cherry Hill

South Jersey IC Support Group

WHEN: Saturday afternoons on Jan 11, March 8, May 10, July 12, Sept. 13 & Nov. 8 2014

TIME: 1:00-3:00pm

WHERE:
Kennedy University Hospital
2201 Chapel Avenue West
Cherry Hill, NJ 08002

5th Floor Administrative Conference Room A (turn right off elevator)

Linda Benecke
856-667-5842

New York, Montrose

 

Hendrick Hudson Free Library
185 Kings Ferry Road
Montrose, New York 10548

Meetings are the 4th Monday of every month from 1:30 to 3:30.

Inez Benedict
inezink@verizon.net
(914) 739-0315

New York, Lowville

 

Northern New York

 

WHEN: Contact Beth for meeting details.

WHERE: Lewis County General Hospital in Lowville.

Beth Monnat
jmonnat1@twcny.rr.com
315-346-6405

New York,
New Hyde Park

Interstitial Cystitis Support Group

WHERE: The Arthur Smith Institute for Urology, conference room
450 Lakeville Road Suite M-41, New Hyde Park, NY 11040

Please RSVP at either DMcKay@lij.edu or MRuzimov@nshs.edu or
(516)734-8565 (leave message)

New York,
New York

Support Group for Men and Women Coping with Pelvic Pain

When: Monthly

2013 Meeting Dates:
August 14, September 11, October 9, November 6, December 4
1:30 - 3:00 p.m.

Where: Office of Beyond Basics Physical Therapy

Who Should Attend: Anyone Dealing with Pelvic Pain

Next Meeting:
August 14, 2013

Directed by: Alexandra T. Milspaw, M.Ed., LPC

MUST RSVP: Alexandra Milspaw 484-894-1246 or wfwomen@gmail.com

Fee: $20 ($10 if you RSVP 48 hours before group)

Topics to be Covered:

  • What is Mindfulness-Based Stress Reduction (MBSR)?
  • How does MBSR help chronic pain?
  • Why does MBSR work?
  • How can I apply MBSR to not only my personal life, but also my relationships?


Come and experience a guided mindfulness meditation and receive $5 off Alex’s meditation CD!

Alexandra Milspaw
484-894-1246 or wfwomen@gmail.com

New York, Rochester

IC Support Group of Rochester

WHEN: Meets monthly. See website for dates, times, locations and contact info.

www.freewebs.com/icsgr

New York, Saratoga Springs

    Support group forming in Saratoga Springs, NY, for IC bladder patients. For more information, please call 518-587-0326 and leave a message with your name and number.

Ohio, Centerville

IC/Pelvic Dysfunction Support Group Meets 4th Tuesday of every month.
7pm-9pm
Collision Center of Dayton Community Room
7576 Paragon Road
Centerville, OH 45459

Please RSVP to Liz Knecht
Liz Knecht
Elizabeth.knecht@lexisnexis.com
Cell: 937-414-7913

Ohio, Cleveland

IC We Can Help Each Other

WHEN: Saturday, 1:00 PM to 3:00 PM.

WHERE: Panera Bread (Small Meeting Room) 5090 Tiedeman Rd, Brooklyn

DIRECTIONS: 216-362-8130

Heather M. Schwarz

IC_HeatherSchwarz@yahoo.com
216-351-4579 (Home)
216-218-4606 (Cell)

Ohio, West Chester

IC Support Group of Cincinnati

Call or email for meeting dates and times.

LOCATION: LORD OF LIFE LUTHERAN CHURCH, 6329 TYLERSVILLE RD. IN WEST CHESTER

Contact Nancy or Erin with questions.

NANCY HICKS, NANWOOD4@AOL.COM
937-550-4362

ERIN THEOBALD
ETHEOBALD@CINCI.RR.COM
513-895-1260

Ohio, Columbus

IC Support Group of Columbus

WHEN: Second Wednesday of the month from 7:00 PM to 8:30 PM. Please contact Tina prior to each meeting date to confirm the event.

WHERE: Meadow Park Church of God, 2425 Bethel Road, Columbus, OH, Room 149 C&F.

For more information, visit http://www.iccolumbus.org/.

Tina Evans
ic1cols2004@yahoo.com
614-846-1209

Ohio, Lima

Interstitial cystitis support group

Contact Jackie, Cheryl or Jaime at Dr. Chung's office, 419-228-1000 or 800- 27CHUNG.

Jackie, Cheryl, or Jaime
419-228-1000
http://www.obgynphy.com/

Ohio, Marion

IC support group

WHEN: Fourth Monday of every month from 6:30 PM to 8:00 PM.

WHERE: Marion-Smith Clinic in Marion.

Vickie
740-383-8093

Oklahoma, Choctaw

IC Support Group

The group is for people with IC, fibromyalgia, chronic fatigue syndrome, trigeminal neuralgia, facial pain, IBS and other painful disorders.

Brenda Finch
sept.girl@live.com
405-390-8624

Oklahoma, Newcastle

IC Support Group

Meetings are held at First Baptist Church Newcastle located at 1650 North Main Street, Newcastle, OK 73065. Park on the north side where the volley ball court is and enter in the Parlor under the green awning.

For more information, please contact:

Kathy Gaynor
405-326-3635
klg65@pldLnet

Sherry Valdez
405-990-5306
gramvaldez@pldi.net

Oklahoma, Tulsa

Tulsa IC Support Group

WHEN:
July 11, 2013 for naturopathic physician with benefits of Kangen water

October 10, 2013 for pelvic pain physical therapy by Christian McSoud PT

January 16th and April 10, 2014- speakers to be confirmed

TIME: 5:15 - 6:15PM

WHERE: Urologic Specialists of OK at 10901 East 48th st South 74146

Urologic Specialist Offices are located just west of the big Garden Ridge shop. Garden Ridge is located on the corner of 51 and Garnett

Grace Ballard
Phone: 918-508-9696
Email: graceywacy@hotmail.com

Oregon, Grants Pass

Southern Oregon Interstitial Cystitis Support Group

Can leave a message anytime. Plan on having meetings at my house the first Monday of each month. Call for address.

 

Cheryl Gross
cheryllynn40@hotmail.com
541-660-3100
541-226-2177

Oregon, Portland

IC Support of Oregon - Meets in NE Portland

Leave a message at either number for Wendy. Our group meets monthly, the second Wednesday of the month, from 6:30 to 8:30 p.m.

www.icsupportor.org

Wendy Cohan, RN
info@icsupportor.org
503-413-9369
503-977-2342
RSVP and for address of meeting.
Pennsylvania, Downingtown Empowerment!

Support for IC, Vestibulitis and Vulvodynia
Empower Physical Therapy
150 East Pennsylvania Ave
Suite 210
Downingtown, PA 19335
contact Jennifer Meyer Icempowermentjen@gmail.com
Pennsylvania, Montgomery County Montgomery County PA Interstitial Cystitis & Pelvic Pain Support Group The Resiliency Center
602 S.Bethlehem Pike, Bldg B
Ambler, PA 19002

Wednesdays 7-9:00pm
And occasional weekend meetings/speakers

Support, Resources, Guest Speakers, Relaxation/Stress Management
Kathleen Krol, LCSW
kasiakrol@aol.com – “Support Group” in subject line
215-289-3101#1 - (voicemail)

Puerto Rico

   

Iraida Cortijo
787-642-4176

Rhode Island, Cranston

  Phone or email support only. Lynne La Bianca
E mail: gia630@gmail.com
Phone: 401-529-1464 or 401-632-4877

South Carolina

Facebook Support Group   http://www.facebook.com/board.php?uid=150497896670#!/pages/Interstitial-Cystitis-Circle-of-Friends-in-SC/479599745326?ref=ts

South Dakota, Sioux Falls

 

Meets Quarterly
Call for dates and times.

NEXT MEETING: October 13, 2014, 6:30 p.m. at the Sanford Women’s Plaza, 5019 S Western Ave., Sioux Falls, SD 57108.

Please RSVP to our office at 605-328-8750. If you have any questions or concerns, please feel free to contact us at 605-328-8750 or 1-800-618-3329.

800-618-3329
605-328-8750

Texas, Austin

Central Texas IC Support Group – Austin

All IC patients and persons seeking IC information are welcome.

WHEN: Second Monday of every month, from 6:30 PM to 8:00 PM.

WHERE: Seton Hospital on 38th Street, Austin.

Joel Rose
(512) 662-9543

Texas, Dallas

IC Dallas Support Group

WHEN: First Monday of every month from 7:00 PM to 9:00 PM.

WHERE: Baylor Richardson Medical Center at 401 W. Campbell Road, Richardson, Texas. Medical Office Building I - Conference Room #2 (first floor).

Beth Ann McKinney
bamckinn11@aol.com
972-964-5884

Texas, North Texas

PURE HOPE
North Chapter

Meetings held bi-annually. For more information go to www.pure-hope.org.

Tina Dodd
tdodd@pure-hope.org
281-353-8078

Texas, Houston

PURE HOPE
Medical Center Chapter

Meetings held bi-annually. For more information go to www.pure-hope.org.

Jennifer Ward
jward@pure-hope.org
281-489-0602

Novetta Tudor
ntudor@pure-hope.org
713-636-2401

Texas, San Antonio

Bi-annual IC education and support meetings

Group sponsor: Urology San Antonio

WHEN: Meeting held at least once every six months from 6:30 PM to 7:30 PM. See Urology San Antonio website for specific dates.

WHERE: 7718 Louis Pasteur Court, San Antonio.

Urology San Antonio
Community Education and Outreach Coordinator
210-582-5604

Texas, Lubbock

IC Lubbock
Lubbock Texas

Please contact us for meeting info.

Wendy Cowan
iclubbock@gmail.com
806-778-1620

Texas, Tyler East Texas IC Support Group When: 2nd Tuesday of the month, on a Quarterly basis: (April, July, October, January)
Time: 5:30pm
Where: University of Texas Health Science Center at Tyler, Riter Physicians Building, 4th Floor Conference Room

Please so kindly rsvp for meeting, so leader can prepare accordingly to accommodate all guests and notify of any changes to schedule
Wendy Vanderwater-Bratteli at wbratteli@yahoo.com or 903-570-5351
Vermont, Burlington IC Support Group Contact Diana Dunn at dianaddunn@gmail.com for more information. Diana Dunn
dianaddunn@gmail.com

Vermont, Nashua, NH

Group for people suffering from bladder diseases

Contact Cecilia for more information.

Cecilia Svendbye
603-882-2295
Lakambini19@yahoo.com

Vermont, Norwich

IC Support and Discussion Meeting

WHERE:
Norwich Library
Conference Room
Main Street
Norwich, VT

 

Virginia,
DC metro area

Baltimore/Washington DC IC Support Group

WHEN: Quarterly.

WHERE: Laurel, Maryland

For more information, visit the group web site at www.baltodcicsupport.com.

Tina Nachodsky
Tina@BaltoDCicSupport.com

P.O. Box 285
Bel Air, MD 21014

Virginia, McLean Pain Support Group The Kaplan Clinic
6829 Elm St., Suite 300
McLean, VA 22101
Group Leader: Jodi Brayton LCSW 703-532-4892
Virginia, Springfield Northern Virginia IC Support Group

WHEN: Every 3rd Tuesday of the month from 7:00-8:30

WHERE: Kirkwood Presbyterian Church

CONTACT: Jennifer
jzuzelski@hotmail.com
Virginia, Virginia Beach IC Support Group Virginia Beach, VA area (Norfolk, Portsmouth and Suffolk)

WHEN: Meetings will be held the 2nd Thursday of each month.

NEXT MEETING: Thursday, December 12, 2013 at 6:00 PM.

WHERE: The meeting will be held in the Physical Therapy Department waiting area, located at Urology of Virginia, 225 Clearfield Avenue, Virginia Beach, VA 23462.
CONTACT: Physical Therapy at
(757) 466-3406.

Washington, Bremerton

 

WHEN: Third Saturday of every month from 11:00 AM to 12:30 PM.

WHERE: Main floor auditorium of the Harrison Hospital, 2520 Cherry Avenue, Bremerton, WA.

DIRECTIONS: Go in the main entrance and directly to the left to auditorium.

Jeannine Lewis
jmnidart@oz.net
360-698-1090

Washington, Everett (Snohomish County)   Where: Everett Providence Hospital - Colby Campus - Olympic Room (Ground Floor, New Tower) 1321 Colby Ave, Everett, WA 98203 Lori-Ann Curtis, LPN
Email: loriann.everetturology@gmail.com

Washington, Yakima

Yakima IC Support Group

Contact Sherry for information and support.

Sherry
rweddle9771@msn.com
509-965-9771 or 509-961-8619

Washington,
South West

Oregon Support Group

Please contact us for meeting info. Also call for telephone support.

Barb Wills, Internet Support - Volunteer - E-Mail: garybarbwills@aol.com *First Choice

Telephone Support (If needed) (360) 573-6518*Second Choice

*Will cover VANCOUVER, WASHINGTON, and outline areas if needed. (WASHINGTON STATE)

Washington, Wenatchee

IC Valley Gals

WHEN: Meeting dates vary, at least once per quarter. Local Physician normally attends.

WHERE: Meet at Central Washington Hospital, Conference Room A, adjacent to the cafeteria.

Lisa de Vera
ldevera@nwi.net
509-663-6755 or
Cell: 509-860-7466

West Virginia, Charleston

Kanawha Valley IC Support Group NEXT MEETING:
Date- October 24 at 7pm.
Location- Equities House (previously the Boll Furniture Building)
Address- 900 Virginia Street E., Charleston, WV at the foot of the South side Bridge.
Parking- City Parking Building - park on 2nd floor, go through the crosswalk then take the elevator down to 1st. floor.
394-545-2839
Joyh930@gmail.com

Wisconsin, Statewide

 

WHEN: Please email for dates, times and locations.

WHERE: Meets in different places to make things easier on those that can't travel well.

http://health.groups.yahoo.com/group/ICinWI

Katrina
carmelann@charter.net

http://icandme.9.forumer.com

United States  Email Support IC Information Specialist Provides phone and email support, IC information, and healthcare provider referrals. Iliana C. Brockman icrelief@me.com

 

Revised July 24, 2014