US Support Groups


The ICA is pleased to provide you with a list of IC, painful bladder syndrome (PBS), and chronic pelvic pain support groups in the United States and around the world. If you know of an existing IC support group that is not on this list, please ask the leader to provide us with the following information:

Looking for awareness items for your support group?


    • Location (city and state)
    • Name of group
    • Meeting schedules and place (day and time)
    • Contact information (email plus phone number and best time to call)

To protect the validity of this information, please email us at icamail@ichelp.org. We will gladly add information about your support group to our listing.

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

 

STATE, CITY

SUPPORT GROUP

MEETING SCHEDULE & LOCATION

CONTACT

Arizona, Tucson

Tucson IC Support Group

 

WHEN: Every other month on the third Sunday at 2 PM.

WHERE: University Medical Center, 1501 North Campbell Avenue, Tucson.

Please email or call for additional information.

Marsha Crawford
tuazmom@gmail.com

520-331-6065

Arizona, Phoenix

Phoenix IC Support Group

The Phoenix Interstitial Cystitis Support Group meets the second Sunday of each month at 2 pm. Contact Heather Brown, Leader at 623-349-4611.

Parking is available in the parking lot on the west side of the hospital. Please arrive early for best seating and the meeting will start promptly at 2 pm. I.C. patients, family members and support people are all welcome to attend. There is no cost to attend.

Please bring your own water and we do have access to restrooms.

Heather Brown, Leader
623-349-4611
heatherbarrowbrown@gmail.com

 

Arizona, Phoenix

IC You of the East Valley

WHEN: Meets 2nd Wednesday of each month.

LOCATION: 48th St. and Chandler (private residence)
http://www.meetup.com/IC-You-of-the-East-Valley/

laughoftenandlivewell@gmail.com

Arizona, Sierra Vista

IC Support Group

Contact Carol for information on location, date, and time.

Carol
520-458-1883

Arkansas, Little Rock

Arkansas IC Support Group Meeting place: First Church of Nazarene 1200 N Mississippi St.Little Rock, Arkansas 72207

Meeting Schedule: Every other month. Third Monday of the Month at 7 pm. Next meeting is February 18th at 7pm
email: icgroup.little.rock.ar@gmail.com

phone: 985-285-6541

call times Mon-Fri between 6pm-9pm. Saturday and Sunday after 1pm-9 pm

Arkansas,
West Plains, MO

MoArk IC

Networking IC/chronic bladder pain patients and medical professionals throughout Missouri and Arkansas.

Contact Shelly Matthewson for more information.

See http://www.moarkic.com/ for more information.

Shelly Matthewson
Romans828@mozarks.com
417-255-1903

P.O. Box 1672
West Plains, MO 65775

California, East Bay Area     www.icsufferers.com

California, Fresno

Urology Associates of Central California (UACC) IC Education and Support Group

Group meets once a month. Please call the RSVP line, 559-321-2860 for date and location.

First contact: Kathryn Villarreal, PA-C, 559-321-2881, email: kvillarreal@urologyassociates.net

Secondary contact: Melodie Moore
melodiem@urologyassociates.net

California, Glendora

Citrus Valley IC Support Group

WHEN: Fourth Tuesday of every month, 6:30 PM.

WHERE: Foothill Presbyterian Hospital in Glendora.

See www.icaction.com for more information.

Dr. Edward Davis
La38ft@aol.com
626-914-3921

California,
Newport Beach

Orange County IC Support Group

WHEN: Third Sunday of the month (except June and holidays) about 2:00 PM to 4:00 PM.

Please contact Gloria Montoya for more information.

Gloria Montoya
glojomo@roadrunner.com
(714) 213-8382 (evenings)

Lori Moody
(714) 290-1531 (evenings)

California, Riverside

Endometriosis Support Group

WHEN: Meets the 3rd Thursday of each month.

LOCATION: 7150 Brockton Ave., Ste. 103, Riverside, CA 92506

Doors open at 6:30PM and meeting starts at 7:00PM

Teresa Denham
Riverside Medical Clinic Foundation
Monday - Friday (8AM-5PM)

(951) 682-2753

California, San Diego

San Diego IC Support Group

Group Sponsors:

Lowell Parsons, MD

Bruce S. Kahn, MD, FACOG

WHEN: Group meetings are held from 1:30 to 3:00 pm on the first Sunday of February, April, June, October & December.

WHERE: Thornton Hospital (part of UCSD Medical Center) in the Coral Conference Room (located on the first floor near the cafeteria).

DIRECTIONS: Thornton Hospital is at 9300 Campus Point Drive, La Jolla, CA 92037. The hospital phone number is 858-657-7000 and the phone number of the Coral Conference Room is 858-657-6644.

Please check out our group website at:
http://health.groups.yahoo.com/group/ICSanDiego

Cathy Salazar-Martiarena
(858) 672-2249

Terry Ward
(619) 266-2701

California, San Luis Obispo

Central Coast California Support Group

 

WHEN: Quarterly.

WHERE: Conference room (main floor) at French Hospital located at, 1911 Johnson Avenue, San Luis Obispo.

Ann LaRose
thewildwildwest@yahoo.com
805-464-0564

Colorado, Colorado Springs

Mountain Oasis Psych Assoc support/psycho-educational group for IC patients   J Blair Cano, MA
jbcano@mountainoasispsych.com
(719) 964-8953

Colorado, Denver

 

WHEN: Second Wednesday of each month at 6PM

WHERE: The Urology Center of Colorado, 2777 Mile High Stadium Circle, third floor conference room

Please call 303-825-8822 to confirm

http://www.tucc.com/ ... Interstitial-Cystitis-Support-Group.html

Urology Center of Colorado
2777 Mile High Stadium
303-825-8822

Colorado,
Fort Collins

 

Email support and information

Erin Thames
erinthames@hotmail.com

Connecticut, New London

 

New London Area IC Support Group

Patients, family members and friends are welcome to attend.

 

WHEN: Third Wednesday of the month from 7:00 to 8:30 PM

WHERE: Lawrence Memorial Hospital, 365 Montauk Avenue, New London, CT.

DIRECTIONS: When you arrive, go to the main entrance & ask for the room assignment at the information desk (room assignments change according to hospital needs, sometimes at the last minute, so check each time). New members may call the hospital for directions at 860-442-0711.

Alyce Hemstreet
alycehemstreet@cs.com
860-442-0711, ext. 5071
(M-F, 8:00 AM to 5:00 PM)

860-739-7504 (after 7:00 PM)

Connecticut, New Hartford

 IC Support Group

WHEN: Second Tuesday of the month from 6:30 to 8:00 PM.

WHERE: Licia & Mason Beekley Community Library, 10 Central Ave., New Hartford, CT 06057

Lisa Cushman
lisa@lisacushman.com

Connecticut, New Haven

Yale Medical Group

WHEN: Second Tuesday of every month.

Please call for information.

Cherrilyn Richmond, MS, WHNP-BC
203-785-6927

Florida,
West/Central England

Patient Advocate

Provides phone and email support, IC information, and healthcare provider referrals.

Iliana C. Brockman
Iliana@icrelief.com

Florida, Jacksonville

  Call or email for support.

Patricia Jones
PMsings2@yahoo.com
904-751-3038

Florida, Saint Augustine

Old City IC Support

WHERE: 740 Charmwood Drive, Saint Augustine.

DIRECTIONS: Call for directions.

Marla Ray
mmartoglio@aol.com

501-2959

Florida, Fort Lauderdale

South Florida IC Support Group

WHERE: “Baptist Medical Plaza at Coral Springs”
6264 W. Sample Road
Coral Springs, FL 33067
(in the Diagnostic Imaging lobby)

Marcia Gordon
MGordon751@aol.com
954-752-4746

Florida, Tampa OPPT Pelvic Pain Support Group When: May 9, 2013
Time: 7:00 P.M.
Where: 2700 W. Dr. Martin Luther King Jr., Blvd Suite 300
Tampa, FL 33607
Phone: 813-805-8108
Florida, Tampa/St. Petersburg  

Meetings: The third Thursday of each month

Leader: Tricia Trinque, M.H.E., Pt
Phone: 727-384-4600

Florida, Treasure Coast

Interstitial Cystitis Support Group of the Treasure Coast

Meets on the 1st Saturday of every month at 1:00 pm

For location details please contact Michelle Lindsey, Support Group Leader

Email or phone Michelle and make sure you reference 'IC.'

Michelle Lindsey
linzeyfive@yahoo.com
772-971-4176

Georgia, Cartersville

Metro Atlanta Interstitial Cystitis Support Group

WHERE: Cartersville Medical Center, 960 Joe Frank Harris Parkway, Classroom #1 (across from the cafeteria) Cartersville, GA 30120

Meets every other month on the 3rd Thursday of the month.

2013 MEETING SCHEDULE:

May 16, 2013
Dr. Jeffrey Proctor speaking on the highlights of annual AUA (American Urological Association) meeting
6:30 pm to 8:00 pm

July 18, 2013
Guest Speaker Dr. Sara Bolden Physical Therapy for IC
6:30 pm to 8:00 pm

September 19, 2013
Topic: T.B.D.
6:30 pm to 8:00 pm

November 21, 2013
IC Diet Power Point Presentation
6:30 pm to 8:00 pm

Judy Eichner
icatlanta@live.com

Jeffrey Proctor, M.D.
770-607-1893

http://www.facebook.com/?ref=tn_tnmn#!/groups/73169908984/

Georgia, Savannah

 

WHEN: Quarterly, call for dates and times.

WHERE: Chandler Hospital.

Jolene Seese
912-352-8632

Hawaii, Maui

Maui Support Group

Contact Suzzana.

Suzzana Goodwin
suzzana@hawaiiantel.net
808-572-7157

Idaho, Coeurd'alene

North Idaho Interstitial Cystitis Support Group

 

WHEN: Second Saturday of every month scheduled from 1:00 P.M. to 3:00 P.M. Email to confirm meeting dates.

WHERE: Event Room # KMC2 at the Kootenia Medical Center, 2003 Lincoln Way, Coeurd'alene.

DIRECTIONS: 208-666-2000

Katrina Brodwater
Katrina_brodwater@yahoo.com

Phone number available by request through e-mail

115 E. Anton #30
Coeurd'alene, Idaho 83815

Illinois, Chicago   Possible new support group in Chicago area. Please contact Jennifer for more information.

Jennifer Kilcline

jennifer.kilcline@sbcglobal.net

Illinois, Dekalb Dekalb Area IC Support Group For information on location, date, and time, please contact Tracie.

Leader: Tracie Klug
Phone: (815) 761-4902

Illinois, Dupage

Dupage Interstitial Cystitis Support Group

Contact Jean for more meeting information

Jean
jboak@sbcglobal.net

630-668-9800

Illinois, Mount Vernon

South Central Illinois IC Support Group

WHERE: St Mary's Hospital, Classroom #2, 605 N. 12th Street, Mt Vernon.

Refreshments served.

Angie
sci_ic_group@yahoo.com
618-925-4017

Illinois, Naperville

Women's Center for Pelvic Medicine IC Support Group Meetings are held on the third Thursday of each month from 6:30-7:30pm in the Heart Hospital conference room on the main floor. For more information please call 630.527.5120 or go to www.edward.org/pelvicpainsupport

Illinois, Park Ridge

 

NW Suburban Illinois IC Support Group

WHEN: Contact Barb for meeting dates.

WHERE: Lutheran General Hospital, 10th Floor of Main Hospital - Room 1064, 1775 Dempster Street, Park Ridge.

Barb Zarnikow
Bzarnikow@aol.com
847-478-9614

Indiana, Evansville

IC Support Group of Evansville

Contact group coordinators for information on location, date, and time.

Gerald Roach and
Angela Roach R.N.
ICSupportofIN@aol.com

812-205-6798 (days)
812-464-0068 (after 6:00 PM)

Indiana, Fort Wayne

Fort Wayne IC Group

WHEN: 1st Tuesday of month, 5:30pm-7pm

WHERE: Women’s Health Center Parkview Hospital North
11123 Parkview Plaza Dr,
Ste 200
Fort Wayne, IN 46845

CONTACT: Deb Farrell
EMAIL: FWICGroup@yahoo.com
PHONE: 260.482.8681 x3327

Iowa, Iowa City

 

I-SEE

WHEN: Last Monday of every month.

WHERE: Iowa City Public Library, 123 Linn Street, Iowa City.

Beth Krayenhagen
319-471-8469
bkrayenh@yahoo.com

Kansas, Kansas City

Greater Kansas City IC Support Group

WHEN: Second Thursday of every other month, 7:00 PM to 9:00 PM. Refreshments at 6:30 PM.

WHERE: Rieke Auditorium, Kansas University Medical Center, 39th and Rainbow, Kansas City, Kansas.

DIRECTIONS: Free parking across from the bookstore on 39th street (north side of 39th street). The entrance to the meeting is at the bookstore. Call Gerri Rathbun 816-252-2566 or KUMC Health Resource Center 913-588-1227.

Gerri Rathbun
glr626@aol.com
816-252-2566

Kentucky, Bowling Green   Meets on the third Wednesday of each month at 5:30PM

Next Meeting: May 7
Speaker: Dr. Barry Jarnigan

Medical Center
350 Park St.
Bowling Green, KY

Meetings are in the conference room
April Lee
aprilslee@windstream.net

Louisiana, Lake Charles

 

Call or e-mail for schedule of meeting dates, times and general information.

Jacqueline Daigle
kirth@centurytel.net
337-588-4586 (after 6:00 PM)

Louisiana, Shreveport

 

IC Support Group

Group sponsor: Regional Urology LLC

Family and friends welcome.

WHEN: Third Thursday of the month (this date may fluctuate slightly according to speaker availability) on an every 3 month basis. IC friendly meal served.

WHERE: Office lobby at 255 Bert Kouns, Shreveport.

Malinda Whitfield, APRN, FNP-BC
mwhitfield@regionalurology.com
318-683-0411 ext 175

Maine, Bangor

 

Bangor Maine Area IC Support Group

WHEN: Second Monday of every month from 6:00 PM to 8:00 PM.

WHERE: Eastern Maine Medica Center, second floor cafeteria area.

Brenda Hanson
bmozartktty@aol.com
207-825-4457

 

Maryland, DC metro area

Baltimore/DC IC Support Group

WHERE: Laurel, Maryland

For more information, visit the group web site at www.baltodcicsupport.com.

Tina Nachodsky
mailto:Tina@BaltoDCicSupport.com

 

Maryland, Baltimore Interstitial Cystitis Support Group Where: Center for Urologic Specialties
5051 Greenspring Ave.
Ste. 302
Baltimore, MD 21209

For questions, contact Donna at 410-937-8882.
Hosted by David Gordon, MD, FACS

Facilitated by Donna Shin, MS, LCPC
Massachusetts   Phone & Email Support Molly Glidden
508-655-4726
icersmeet@aol.com
Massachusetts, Dedham IC Support Group Endicott Library
257 Mount Vernon St
Dedham, MA

Held on the third Saturday of the every month at 10:15am
Group Leader: Annette Eddy annetteeddy@rcn.com

Michigan, Canton

 

Southeast Michigan IC Support Group

C0-sponsors: Henry Ford and University of Michigan Hospitals

WHEN: Last Thursday of every other month, 6:30-7:45 PM

WHERE: Henry Ford Medical Center, 6100 Haggerty Road, Canton in the cafeteria.

Name: Sarah C.
Phone: (248) 761-8752
Email: semichiganicfree@gmail.com

Michigan,
Grand Rapids

Female Pelvic Medicine IC Support Group

WHERE: Female Pelvic Medicine & Urogynecology (@ Women’s Health Center of West MI)
555 Mid Towne St. NE
Suite 450
Grand Rapids, MI 49503

For more information: http://grpelvicmed.com/ ... icsupportgroup/

Elizabeth, dietitian
616-588-1800

Anna
616-588-1139

Michigan, Port Huron

 

Blue Water IC Support Group

 

WHEN: First Wednesday of every other month from 7:00 PM to 9:00 PM.

WHERE: Meeting room at Mercy Hospital.

Sherry Campbell
anitakure@comcast.net
810-320-0224

Michigan, Royal Oak

 

ICMICH

 

WHEN: Third Thursday of the month, except July and December.

WHERE: First floor dining room of the Administration Building (on the campus of Beaumont Hospital), Royal Oak.

Jane Page
janepage@sbcglobal.net
248-549-8445

Michigan, Sagninaw

Midwest Support Group for Interstitial Cystitis/ Chronic Pelvic Pain

 

WHEN: Quarterly.

WHERE: Saginaw Center for Female Urology and Incontinence, 1740 Midland Road, Sagninaw.

Laura Hintz, Nurse Practitioner
989-799-4840

Angie Powers 810-694-3813 (home)
248-321-5692 (cell)

Michigan, Muskegon

 

Muskegon IC Support Group

 

WHEN: We will now be meeting the second Wednesday of all odd months from 6-7pm. The dates for 2013 include: May 8, July 10, September 11, and November 13.

WHERE: Mercy Health Partners, Lakes Village, the meeting will take place in the Board Room on the 2nd Floor. 6401 Prairie Street, Muskegon, MI 49444.

For directions or to RSVP please call 231-727-7944

CONTACT:
Jennifer Mosher, WHNP-BC, mosherjl@trinity-health.org, 231-727-7944 or Leslie Wooldridge, GNP-BC, CUNP, wooldrle@trinity-health.org, 231-727-7944.

Michigan, St. Joseph

 

St. Joseph

 

WHEN: Third Thursday of the month at 7:00 PM, September through May.

WHERE: Room #1, Upton Center in Lakeland Hospital in St. Joseph, Michigan.

Marcia Koehler
ewkoe@peoplepc.com
269-429-8860


Chris Volk
chester468@hotmail.com
269-849-2165

Michigan,
Traverse City

Traverse City IC Support Group

 

Please call for phone support and information.

Jeri Hansen
231-932-7300

Minnesota, St. Louis Park

Park Nicollet IC Support Group

When: Meets quarterly, please call for more details.

All are welcome! Please call for more information and to RSVP.

Contact: Diane Spindler 952-993-0377

Missouri,
Kansas City, KS

 

Greater Kansas City IC Support Group

 

WHEN: Second Thursday of every other month, 7:00 PM to 9:00 PM. Refreshments at 6:30 PM.

WHERE: Rieke Auditorium, Kansas University Medical Center, 39th and Rainbow, Kansas City, Kansas.

DIRECTIONS: Free parking across from the bookstore on 39th street (north side of 39th street). The entrance to the meeting is at the bookstore. Call Gerri Rathbun 816-252-2566 or KUMC Health Resource Center 913-588-1227.

Gerri Rathbun
glr626@aol.com
816-252-2566

Missouri, St. Louis

 

W. I. S. H.

Washington University Interstitial Cystitis Support and Health Education Group

WHEN: Third Thursday of every other month. Refreshments served at 6:30 PM; presentations start at 7:00 PM.

WHERE: Barnes-Jewish Hospital West (Cafeteria Private Dining Room), 12634 Olive Boulevard, Saint Louis.

Bonnie Hana
314-394-0040

Missouri, West Plains

 

MoArk IC

Networking IC and chronic bladder pain patients and medical professionals throughout Missouri and Arkansas!

Contact Shelly Matthewson for more information.

See http://www.moarkic.com/ for more information.

Shelly Matthewson
Romans828@mozarks.com
417-255-1900

P.O. Box 1672
West Plains, MO 65775

Montana, Kalispell

 

Flathead Valley Support Group

Contact Alyson for meeting location and times.

Alyson Gregory
alysonegregory@gmail.com
406-212-2488 (anytime)

Montana, Statewide

 

Please phone or email for support or information.

Dianne Armstrong, RN
di@montanapets.org
406-443-6488

Nebraska, Lincoln

IC support group of Nebraska

Where: Urology PC
5500 Pine Lake Road
Lincoln, NE

Next Meeting: May 21, 2013
6:30-7:30 PM
Speaker: Joe Wollen

Jodi Wills or Doris Minchew/ JodiRW2@aol.com or DMinchow@NebRR.com or contact Urology PC @ 402-489-8888 and ask to speak to a nurse

New Jersey, Barnegat

Hope for Healing

For anyone struggling with loss due to chronic pain syndromes and illnesses

 

WHEN: Every other Wednesday from 7:00 PM to 10:00 PM. Call or email Kimberlee for meeting place and dates.

Kimberlee Armengol
Hope4cure@comcast.net
609-978-1026

New Jersey,
New Brunswick

IC Support Group of Central New Jersey

WHERE: Health Center for Women: 3rd Floor Conference Room. CARES Building at St. Peter's University Hospital, 254 Easton Avenue, New Brunswick, NJ

DIRECTIONS: Park in the CARES building lot. Fee is $3.00. Take elevator to 3rd floor.

Michelle Brill, Group Director
Brillo4@aol.com
732-390-0422

 

New Jersey, Cherry Hill

South Jersey IC Support Group

WHEN: May 11, July 13, September 14, and November 9, 2013

WHERE:
Kennedy University Hospital
2201 Chapel Avenue West
Cherry Hill, NJ 08002

5th Floor Administrative Conference Room A (turn right off elevator)

Linda Benecke
856-667-5842

New Mexico,
Albuquerque

New Mexico IC Patient Support Group

 

 

WHEN: Quarterly.

WHERE: Kaseman Presbyterian Hospital, 8300 Constitution Ave NE Albuquerque, NM
Conference Room B

DIRECTIONS: Hospital phone number 505-291-2000.

For more information or IC support, please contact Teresa McCoy.

Teresa McCoy
icnewmex@aol.com
505-463-2918

New York, Lowville

 

Northern New York

 

WHEN: Contact Beth for meeting details.

WHERE: Lewis County General Hospital in Lowville.

Beth Monnat
jmonnat1@twcny.rr.com
315-346-6405

New York,
New Hyde Park

Interstitial Cystitis Support Group

WHERE: The Arthur Smith Institute for Urology, conference room
450 Lakeville Road Suite M-41, New Hyde Park, NY 11040

Please RSVP at either DMcKay@lij.edu or MRuzimov@nshs.edu or
(516)734-8565 (leave message)

New York, Rochester

IC Support Group of Rochester

WHEN: Meets monthly. See website for dates, times, locations and contact info.

www.freewebs.com/icsgr

New York, Saratoga Springs

    Support group forming in Saratoga Springs, NY, for IC bladder patients. For more information, please call 518-587-0326 and leave a message with your name and number.

North Carolina, Asheville

Western North Carolina IC Support Group

WHEN: Third Saturday of each month at 3:00 pm

The group will not meet in November or December or in snowy weather.

Please call Nancy if you are going to attend the meeting.

Nancy Williams
828-252-5045

Ohio, Cleveland

IC We Can Help Each Other

WHEN: Saturday, 1:00 PM to 3:00 PM.

WHERE: Panera Bread (Small Meeting Room) 5090 Tiedeman Rd, Brooklyn

DIRECTIONS: 216-362-8130

Heather M. Schwarz

IC_HeatherSchwarz@yahoo.com
216-351-4579 (Home)
216-218-4606 (Cell)

Ohio, West Chester

IC Support Group of Cincinnati

Call or email for meeting dates and times.

LOCATION: LORD OF LIFE LUTHERAN CHURCH, 6329 TYLERSVILLE RD. IN WEST CHESTER

Contact Nancy or Erin with questions.

NANCY HICKS, NANWOOD4@AOL.COM
937-550-4362

ERIN THEOBALD
ETHEOBALD@CINCI.RR.COM
513-895-1260

Ohio, Columbus

IC Support Group of Columbus

WHEN: Second Wednesday of the month from 7:00 PM to 8:30 PM. Please contact Tina prior to each meeting date to confirm the event.

WHERE: Meadow Park Church of God, 2425 Bethel Road, Columbus, OH, Room 149 C&F.

For more information, visit http://www.iccolumbus.org/.

Tina Evans
ic1cols2004@yahoo.com
614-846-1209

Ohio, Lima

Interstitial cystitis support group

Contact Jackie, Cheryl or Jaime at Dr. Chung's office, 419-228-1000 or 800- 27CHUNG.

Jackie, Cheryl, or Jaime
419-228-1000
http://www.obgynphy.com/

Ohio, Marion

IC support group

WHEN: Fourth Monday of every month from 6:30 PM to 8:00 PM.

WHERE: Marion-Smith Clinic in Marion.

Vickie
740-383-8093

Oklahoma, Choctaw

IC Support Group

The group is for people with IC, fibromyalgia, chronic fatigue syndrome, trigeminal neuralgia, facial pain, IBS and other painful disorders.

Brenda Finch
sept.girl@live.com
405-390-8624

Oklahoma, Newcastle

IC Support Group

Meetings are held at First Baptist Church Newcastle located at 1650 North Main Street, Newcastle, OK 73065. Park on the north side where the volley ball court is and enter in the Parlor under the green awning.

For more information, please contact:

Kathy Gaynor
405-326-3635
klg65@pldLnet

Sherry Valdez
405-990-5306
gramvaldez@pldi.net

Jamie Smith
405-596-8466
jamers1502@yahoo.com

Oklahoma, Tulsa

Tulsa IC Support Group

WHERE: Urologic Specialist Offices are located just west of the big Garden Ridge shop. Garden Ridge is located on the corner of 51 and Garnett

Annette Nickels
405-372-2251 annettenickels@yahoo.com

Oregon, Grants Pass

Southern Oregon Interstitial Cystitis Support Group

Can leave a message anytime. Plan on having meetings at my house the first Monday of each month. Call for address.

 

Cheryl Gross
cheryllynn40@hotmail.com
541-660-3100
541-226-2177

Oregon, Portland

IC Support of Oregon - Meets in NE Portland

Leave a message at either number for Wendy. Our group meets monthly, the second Wednesday of the month, from 6:30 to 8:30 p.m.

www.icsupportor.org

Wendy Cohan, RN
info@icsupportor.org
503-413-9369
503-977-2342
RSVP and for address of meeting.
Oregon, Portland Pacific NW Oregon IC support in   For email support, contact
Patti Bates pmccallig@gmail.com

Pennsylvania, Butler

 

NEXT MEETING: May 28, 2013 7:30PM until 9PM
Cranberry Twp. Municipal Bldg.
2525 Rochester Rd.
Cranberry Twp., PA. 16066
Please confirm attendance to harleysnob0412@hotmail.com

Email support:
Darlington PA and Cranberry Township (North of Pittsburgh) as well as Beaver County, and Eastern Ohio.

Email: Margy Goehring harleysnob0412@hotmail.com

Pennsylvania, Downingtown Empowerment!

Support for IC, Vestibulitis and Vulvodynia
Empower Physical Therapy
150 East Pennsylvania Ave
Suite 210
Downingtown, PA 19335
contact Jennifer Meyer Icempowermentjen@gmail.com
Pennsylvania, Montgomery County Montgomery County PA Interstitial Cystitis & Pelvic Pain Support Group The Resiliency Center
602 S.Bethlehem Pike, Bldg B
Ambler, PA 19002

Wednesdays 7-9:00pm
And occasional weekend meetings/speakers

Support, Resources, Guest Speakers, Relaxation/Stress Management
Kathleen Krol, LCSW
kasiakrol@aol.com – “Support Group” in subject line
215-289-3101#1 - (voicemail)

Puerto Rico

   

Iraida Cortijo
787-642-4176

Rhode Island, Cranston

  Group leader: Lynne La Bianca

When : Second Sunday of each month from 2-4 @ Panera Bread on Rt. 2, Reservoir Ave. in Cranston. Looking forward to meeting you all!!
E mail: gia630@gmail.com

Phone: 401-529-1464 (Please call anytime for support)
South Carolina Facebook Support Group   http://www.facebook.com/board.php?uid=150497896670#!/pages/Interstitial-Cystitis-Circle-of-Friends-in-SC/479599745326?ref=ts

Texas, Austin

Central Texas IC Support Group – Austin

All IC patients and persons seeking IC information are welcome.

WHEN: Second Monday of every month, from 6:30 PM to 8:00 PM.

WHERE: Seton Hospital on 38th Street, Austin.

Roy Gafford
roygafford@sbcglobal.net
512-258-5840

Texas, Dallas

IC Dallas Support Group

WHEN: First Monday of every month from 7:00 PM to 9:00 PM.

WHERE: Baylor Richardson Medical Center at 401 W. Campbell Road, Richardson, Texas. Medical Office Building I - Conference Room #2 (first floor).

Beth Ann McKinney
bamckinn11@aol.com
972-964-5884

Texas, North Texas

PURE HOPE
North Chapter

Meetings held bi-annually. For more information go to www.pure-hope.org.

Tina Dodd
tdodd@pure-hope.org
281-353-8078

Texas, Houston

PURE HOPE
Medical Center Chapter

Meetings held bi-annually. For more information go to www.pure-hope.org.

Jennifer Ward
jward@pure-hope.org
281-489-0602

Novetta Tudor
ntudor@pure-hope.org
713-636-2401

Texas, San Antonio

Bi-annual IC education and support meetings

Group sponsor: Urology San Antonio

WHEN: Meeting held at least once every six months from 6:30 PM to 7:30 PM. See Urology San Antonio website for specific dates.

WHERE: 7718 Louis Pasteur Court, San Antonio.

Urology San Antonio
Community Education and Outreach Coordinator
210-582-5604

Texas, Lubbock

IC Lubbock
Lubbock Texas

Please contact us for meeting info.

Wendy Cowan
iclubbock@gmail.com
806-778-1620

Texas, Tyler East Texas IC Support Group When: 2nd Tuesday of the month, on a Quarterly basis: (April, July, October, January)
Time: 5:30pm
Where: University of Texas Health Science Center at Tyler, Riter Physicians Building, 4th Floor Conference Room

Please so kindly rsvp for meeting, so leader can prepare accordingly to accommodate all guests and notify of any changes to schedule
Wendy Vanderwater-Bratteli at wbratteli@yahoo.com or 903-570-5351

Utah, Heber City

Northern Utah IC Support Group

When: Will meet when there are enough people to get together. Call or email Kate for more information.

Kate Ayers
435-654-2034
kateayers1957@hotmail.com

Vermont, Statewide

IC Support Group of Vermont

Please phone or email for more information or support.

Susie Turnau
802-253-1887
js@stowevt.net

Vermont, Nashua, NH

Group for people suffering from bladder diseases

Contact Cecilia for more information.

Cecilia Svendbye
603-882-2295
Lakambini19@yahoo.com

Vermont, Norwich

IC Support and Discussion Meeting

WHERE:
Norwich Library
Conference Room
Main Street
Norwich, VT

 

Virginia,
DC metro area

Baltimore/Washington DC IC Support Group

WHEN: Quarterly.

WHERE: Laurel, Maryland

For more information, visit the group web site at www.baltodcicsupport.com.

Tina Nachodsky
Tina@BaltoDCicSupport.com

P.O. Box 285
Bel Air, MD 21014

Virginia, McLean Pain Support Group The Kaplan Clinic
6829 Elm St., Suite 300
McLean, VA 22101
Group Leader: Jodi Brayton LCSW 703-532-4892

Washington, Bremerton

 

WHEN: Third Saturday of every month from 11:00 AM to 12:30 PM.

WHERE: Main floor auditorium of the Harrison Hospital, 2520 Cherry Avenue, Bremerton, WA.

DIRECTIONS: Go in the main entrance and directly to the left to auditorium.

Jeannine Lewis
jmnidart@oz.net
360-698-1090

Washington, Everett (Snohomish County)   Where: Everett Providence Hospital - Colby Campus - Olympic Room (Ground Floor, New Tower) 1321 Colby Ave, Everett, WA 98203 Lori-Ann Curtis, LPN
Email: loriann.everetturology@gmail.com

Washington,
Federal Way

Federal Way IC Support Group

WHEN: Contact Angela.

WHERE: St. Francis Hospital

Angela
avance@nventure.com
253-925-0368

Washington, Yakima

Yakima IC Support Group

Contact Sherry for information and support.

Sherry
rweddle9771@msn.com
509-965-9771 or 509-961-8619

Washington,
South West

Oregon Support Group

Please contact us for meeting info. Also call for telephone support.

Barb Wills, Internet Support - Volunteer - E-Mail: garybarbwills@aol.com *First Choice

Telephone Support (If needed) (360) 573-6518*Second Choice

*Will cover VANCOUVER, WASHINGTON, and outline areas if needed. (WASHINGTON STATE)

Washington, Wenatchee

IC Valley Gals

WHEN: Meeting dates vary, at least once per quarter. Local Physician normally attends.

WHERE: Meet at Central Washington Hospital, Conference Room A, adjacent to the cafeteria.

Lisa de Vera
ldevera@nwi.net
509-663-6755 or
Cell: 509-860-7466

West Virginia, Charleston

Kanawha Valley IC Support Group NEXT MEETING:
Date: Thursday, April 18
Time: 7pm
Place: Riverview Medical Plaza 4610 Kanawha Ave. SW
South Charleston, WV

Directions: on Route 60 - call or email for more assistance: joyh930@gmail.com 304-545-2839
Speaker: Dr. J. H. Mani, Urologist
394-545-2839
Joyh930@gmail.com

Wisconsin, Statewide

 

WHEN: Please email for dates, times and locations.

WHERE: Meets in different places to make things easier on those that can't travel well.

http://health.groups.yahoo.com/group/ICinWI

Katrina
carmelann@charter.net

http://icandme.9.forumer.com

 

Revised April 24, 2013