Helpful Links & Organizations


Related Interstitial Cystitis (IC) and Other Health Organizations

America Academy of Pain Management
American Autoimmune Related Diseases Association
American Chronic Pain Association
Awake in America
CFIDS Association of America
Endometriosis Association
Healthy Women
International Adhesions Society (IAS)
International Association for the Study of Pain
International Foundation for Functional Gastrointestinal Disorders
International Pelvic Pain Society
Lupus Foundation of America
National Fibromyalgia Partnership
National Foundation for the Treatment of Pain
National Headache Foundation
National Kidney and Urologic Diseases Information Clearinghouse
National Organization for Rare Disorders
National Pain Foundation

National Vulvodynia Association
Pelvic Floor Disorders Network

Prostatitis Foundation
P.U.R.E. H.O.P.E.
S.L.E. Lupus Foundation

Sjogren's Syndrome Foundation
Society for Women's Health Research

Related IC and Painful Bladder Syndrome Organizations Outside the US

Africa: IC East Africa Naukuru Chapter (
Argentina: ARACI (Asociación Rosarina de Afectados de CI)
Austria: ICA Österreich e. V.
Belgium: Interstitiële Cystitis Patiëntenvereniging België (ICPB)
Canada: Association de la cystite interstitielle (CI) du Québec
Czech Republic
: Urologicka klinika VFN a 1. LF UK
Denmark: IC foreningen
France: Association Française de la Cystite Interstitielle (
Germany: ICA Deutschland e.V.
Italy: Associazione Italiana Cistite Interstiziale
Japan: Comfortable Urology Network
Mexico: Asociacion de Cistitis Intersticial Mexico
Poland: Project Vulvodynia
Netherlands: Interstitiele Cystitis Patientenvereniging (ICP)
Spain: A.B.A.T.Y.C.I.
Spain: Asociación Catalana de Afectados de Cistitis Intersticial (ACACI)
United Kingdom: COB Foundation
Worldwide: International Painful Bladder Foundation

Research Links

Multidisciplinary Approach to the Study of Chronic Pelvic Pain (MAPP)
Research America
Research Portfolio Online Reporting Tool (RePORT)

Other Helpful Links for IC Patients, Caregivers and Healthcare Providers

Congress MegaVote
Contact  Your Congressperson
Pain Treatment Topics
Passeport Sante
Pelvic Physiotherapy
People's Pharmacy
Rx List: The Internet Drug Index
Secret Suffering


Revised December 5, 2013