Interstitial Cystitis Association
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New Pelvic Physiotherapy Website
Thursday, November 19, 2009

Maeve Whelan, a physical therapist and instructor in Dublin, Ireland, has recently developed a new website www.pelvicphysiotherapy.com.
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Medication Questions on the Go?
Thursday, November 19, 2009

Do you ever find yourself with a question about your or your patient’s medicines?
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Calling All Artists!
Friday, November 06, 2009

The Kakkis EveryLife Foundation invites artists who have been affected by rare diseases to participate in the first annual EveryLife Art Contest.
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National Nurse Practitioner Week, November 8-14, 2009
Friday, November 06, 2009

Next week is National Nurse Practitioner Week, November 8-14, 2009.
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Call to Action: Access to Opiods-the FDA Needs to Hear From You!
Friday, November 06, 2009

The FDA has reopened the public comment period for developing Risk Evaluation and Mitigation Strategies (REMS) that would regulate opiod drug availability.
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The FDA wants to know: How are you disposing of your unused drugs?
Thursday, October 29, 2009

The FDA recently launched a website for patients with information on how to dispose of certain drugs, many of which are commonly prescribed for IC.
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It’s IC Awareness Week!
Tuesday, October 20, 2009

October 19-23 is the 2nd annual IC Awareness Week, dedicated to raising awareness of IC and spreading the word about IC research and treatment.
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Help the ICA win $50,000 from Facebook!!
Friday, October 16, 2009

The ICA is entered in America's Giving Challenge, which gives us a chance to win $50,000!
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Food Choices Offer First Line of Defense for Taming Painful Bladders and Reducing Symptoms of Urgency and Frequency
Monday, September 28, 2009

Many people with bladder conditions such as interstitial cystitis or IC (also known as painful bladder syndrome and bladder pain syndrome) notice that certain foods appear to worsen symptoms of urgency, frequency, and pain.
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Online Pain Advocacy Toolkit Now Available
Friday, September 25, 2009

Healthcare professionals and patient advocates working to alleviate suffering and improve the care of the millions of Americans living with undertreated pain now have a new resource to help them create greater understanding of this serious national health problem.
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New NIH Director Hosts Town Hall Meeting for Constituents
Monday, September 14, 2009

The newly appointed director of NIH, Francis Collins, MD, PhD, held a town hall meeting for non-profit and health organizations this past Wednesday, September 9 to discuss some of his plans for NIH over the next several years.
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National Invisible Chronic Illness Awareness Week, September 14-20, 2009
Monday, September 14, 2009

National Invisible Chronic Illness Awareness Week virtual conference is now underway.
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The 2nd Annual Women in Pain Conference
Thursday, September 10, 2009

Don’t miss the 2nd Annual Women in Pain Conference taking place September 18, 2009 in Los Angeles, CA.
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It’s PAINWeek ‘09
Thursday, September 10, 2009

PAINWeek ’09 (the national conference on pain) is now underway in Las Vegas, NV.
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Dr. Lee Nyberg, NIDDK Urology Director, Retiring in September 2009
Thursday, September 10, 2009

Leroy M. Nyberg, MD, PhD, Urology Director, National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), National Institutes of Health (NIH) is retiring. As the ICA's liaison to the NIDDK, for the past 20 years, Dr. Nyberg helped us better understand the inner workings of NIH and kept us apprised about NIDDK research priorities.
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Raising IC Awareness
Thursday, September 10, 2009

During August, some of the major airways discussed IC and the challenges of living with chronic pelvic pain.
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Pain Month Resources: New APF Website, CME Webcast on Women in Pain
Thursday, August 27, 2009

September is Pain Awareness Month -- The American Pain Foundation offers new online resource, For Grace to host webcast.
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Snapshot of IC News
Friday, July 24, 2009

During the past month, IC made the news in local papers as well as scientific news digests.
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APF News: Patent Pending for New Diagnostic Test
Friday, July 24, 2009

A urine test to diagnose IC by has been developed by Sonia L. Planey, PhD, and her team at The Commonwealth Medical College in Scranton, Pennsylvania.
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ICA Appoints Dr. Barbara Shorter to Medical Advisory Board
Thursday, July 23, 2009

Dr. Barbara Shorter, R.D., C.D.N., Associate Professor of Nutrition and former Director of the Undergraduate Nutrition Program at Long Island University, has been named to the Medical Advisory Board of the Interstitial Cystitis Association (ICA).
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ICA Appoints Attorney Joshua Stein to Board
Monday, July 13, 2009

Joshua Stein, Special Counsel and Co-Chair of the Accessibility and Accommodations Practice Group at Proskauer Rose LLP, has been named to the board of the ICA.
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Dr. Clauw Joins ICA Medical Advisory Board
Wednesday, June 03, 2009

Dr. Daniel Clauw, director of the Chronic Pain and Fatigue Research Center at the University of Michigan, has been named to the Medical Advisory Board of the ICA.
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Patient Advocacy Organizations United on Health Care Reform
Tuesday, June 02, 2009

The ICA is one of 48 national patient organizations calling on President Obama and members of Congress to enact health care reform legislation that guarantees effective and affordable health and long-term care coverage for all Americans.
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Prevalence of Interstitial Cystitis in U.S. Much Larger than Previously Believed
Tuesday, May 12, 2009

Three to 8 million women in the United States may have interstitial cystitis (IC).  This newly released prevalence number, presented at the 2009 American Urologic Association Annual Meeting in Chicago, represents about 3 to 6 percent of all U.S. women.
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Washington Transition: Libby Mullin Leaving the ICA
Monday, April 20, 2009

Transition is the operative word in Washington these days.  And, I am sad to report that after nearly ten years as the voice of people with IC on Capitol Hill, Libby Mullin is moving on.
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IC to Debut on The Doctors
Wednesday, April 08, 2009

Interstitial cystitis (IC) is scheduled to be the topic of the Thursday, April 16 episode of The Doctors, a popular daily television program that offers expert healthcare advice.
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Urology Times Covers Controversial IC and Abuse Issue
Tuesday, April 07, 2009

The April 1, 2009 edition of Urology Times tackles the controversial topic of abuse and its possible connection to interstitial cystitis.
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ICA Joins with Five Non-Profits to Help Millions of Patients Suffering from Chronic Conditions
Monday, March 30, 2009

In an effort to help millions of Americans suffering from multiple chronic medical conditions, the ICA and five other independent nonprofit organizations have come together to form the Overlapping Conditions Alliance.
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National Doctors' Day: March 30, 2009
Monday, March 23, 2009

In celebration of National Doctors' Day on March 30th, the Interstitial Cystitis Association (ICA) thanks all of the doctors and allied health professionals who help people with interstitial cystitis (IC).
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National Pain Care Policy Act Update
Tuesday, March 17, 2009

Our collective voices are making a difference!  You may recall the National Pain Care Policy Act (HR 2994) that passed through the United States House in 2008 and was up for Senate vote when the 110th Congress ended.
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Interstitial Cystitis Association Appoints Dr. Holly Atkinson to Board of Directors
Thursday, February 26, 2009

Health and communications expert, Dr. Holly Atkinson, has been named to the board of directors of the Interstitial Cystitis Association (ICA). Currently serving as the chief of medical affairs for HealthiNation and co-director of the Advancing Idealism in Medicine Program at Mount Sinai School of Medicine, Atkinson brings more than 25 years of communications, nonprofit and medical experience to the ICA.
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The ICA's Website: HONcode Approved
Monday, February 09, 2009

The Health on the Net Foundation Code of Conduct (HONcode) for medical and health websites addresses one of the internet's main healthcare issues: the reliability and credibility of information on websites.
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New on the ICA Website
Tuesday, January 13, 2009

We are updating the ICA website and recently posted a few new sections, including information about patient assistance programs and related conditions. The International section is now integrated into other parts of the website and we hope to make the new "En Espanol" page a hub for Spanish-language information about IC.
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Shop iGive and Search iSearch.iGive -- And, Help People with IC
Monday, December 01, 2008

Here's a way to help people with IC, every time you shop online or search the web: www.iGive.com and www.iSearch.iGive.com.
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Interstitial Cystitis Association Announces Two New Board Members
Wednesday, October 29, 2008

The Interstitial Cystitis Association (ICA) welcomes two dedicated interstitial cystitis (IC) advocates to its Board of Directors, Barbara Zarnikow of Buffalo Grove, Illinois and Paula Whelan of Scottsdale, Arizona.
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NIH Launches an Exciting New Chapter in Federally Funded Research on IC
Friday, September 05, 2008

An exciting new chapter in federally funded research on interstitial cystitis (IC) was just launched by the National Institutes of Health (NIH).
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Interstitial Cystitis Association Announces ICA Pilot Research Program Awards
Wednesday, August 20, 2008

Committed to finding the cause and ultimately, a cure for interstitial cystitis (IC), the Interstitial Cystitis Association (ICA) announced recipients of FY2007 ICA Pilot Research Program grants.
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Empowering Minds Want to Know
Friday, August 15, 2008

The importance of people with interstitial cystitis (IC) playing an active role in management of their healthcare was the theme of the Interstitial Cystitis Association (ICA) Regional Forum held on Saturday, August 9 in Tulsa, Oklahoma.
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Physical Therapy Provides Significant Relief for Painful Bladder Syndrome
Friday, July 18, 2008

Interstitial cystitis (IC), also known as painful bladder syndrome (PBS), was the topic of the Interstitial Cystitis Association (ICA) Regional Forum in Tampa, Florida, on Sunday, July 13.
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Posted November 19, 2009