In this month's column, Julie addresses facing the facts about IC and diet limitations, which may not have to be as restrictive as you think!
Do you sometimes get overwhelmed trying to figure out what you can or cannot eat? You aren't alone. Many people get frustrated about diet, finding themselves in a negative cycle of fixating on the foods they can't have. I know I was bad at first . . . thinking that here I was, having to give up so much of my life, and now I can't even have spaghetti or orange juice?
Dietary modification can help control symptoms of IC though, and it is actually something we have in our control. The one thing that helped turn my head around was to realize that eventually everyone "gets" something. Some people get arthritis, some get diabetes, some have even worse diseases like cancer. IC is our "thing." In fact, if you asked ten people on the street if they are supposed to be watching their diet in some way, nine out of ten would say yes . . . and the last one would most likely be lying!
The good news is that an individual's IC diet usually doesn't have to be as strict as you may think. Most people with IC find that they can have a substantial and healthy diet if they do a little detective work to identify their personal trigger foods. That is the idea of the IC elimination diet. Most people do not have to be on the most restrictive diet forever. And, although others with IC are great counsel, your diet is probably not going to look like anyone else's.
A concept that may be helpful to keep in mind is that eventually you will feel normal again, or more accurately, you will find yourself accepting a "new normal." You will learn coping skills that will help you on a daily basis. You will be able to navigate your refrigerator and restaurants without putting yourself in a flare. You will find exercises that you can do, and fixate less on what you can't do.
So, if you are new . . . hang in there . . . ask questions . . . be your own best health care provider. Keep a diary or a calendar. Write down what you eat, what is going on in your life, the medications you are trying, and how you are feeling. If you can't figure it out, share your diary with a trusted friend or your doctor. Sometimes we are too close to a situation to see what may be hurting us.
The ultimate message here is that you CAN do it, you CAN get better, you CAN begin to heal . . . it just takes some time and patience.